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To be clear, I didn't point to the article becuase I thought it was a great article.  I pointed to it becuase I think it is great that articles about participatory medicine, patient autonomy, and changing roles have become mainstream. I will edit my ...

https://www.eventbrite.com/e/nov-7-chicago-participatory-medicine-meetup-tickets-51337352403?ref=eios&aff=eios Eventbrite Nov. 7 Chicago Participatory Medicine Meetup! Our next Chicago SPM meetup is set ...

My story of transition, which started 2.5 years ago https://www.connect-cx.com/blog/2018/10/9/from-deep-expertise-to-broad-experience ------------------------------ Mark VanderKlipp Connect_CX Evanston, IL 2316315107 ------------------------------

Thanks Wheezy! Easiest way to do this is post a URL to a tweet or FB post so people can click and reshare. Got some handy? I'm on the fly, will try later if nobody else does ... ------Original Message------ Hello all! If any of you are ...

Hello all! If any of you are active on social media, now is the time to do our final push for registration for our annual conference! If you follow SPM on twitter, facebook, linkedin, youtube, etc, please cross-post and share with your audiences and ...

Jim, this additional material looks fantastic. It was delightful catching up with you by phone Friday. Looking forward to seeing you in Texas the next time I'm in the Houston area. John ------------------------------ John Hoben Lifetime Member Society ...

Can someone please write a few lines about the last town hall meeting for the Newsletter?  I need it by the end of next week. 10/19.  Thanks ------------------------------ Danny van Leeuwen Health Hats www.health-hats.com @healthhats -------------- ...

Please send me links to articles published since August by SPM members.  Tx ------------------------------ Danny van Leeuwen Health Hats www.health-hats.com @healthhats ------------------------------

Most of us won't be surprised by the results of this survey by JAMA re difficulties in getting medical records from hospitals in a timely manner.  The story is so relevant to the SPM conference -- and a topic to consider for the manifesto to be created ...

We have (at least) one member reporting that their credentials for logging in do not work, forcing them to reset their password, but that the next time they login they have to reset their password AGAIN. And again the next time. Wash, rinse, repeat. ...

Please please - click the social media links and RT / re-share them.  It takes literally just 2 clicks and really amplifies awareness of our event. We've got this process down to a science now, and next year we'll want to start it much earlier, but even ...

Hi Erin, I'm really biased, since I used to work on the Google Hotels product, but... you might want to try that option :).  Just go to Google, search for " Boston hotels ," and then click "View [xxx] hotels." If you're a Google One member, you'll ...

Thanks for writing this post, Dave. I think the blog posts about the speakers have been fantastic for promoting the conference.  Note, I not only clicked and shared on Twitter I also commented on the blog post.  Janice ------------------------------ ...

I'll bump this back up to the top of Open Forum: The code for SPM members to register for our conference, discounting the fee from $150 to $100, is CHC18SPMMEM ------------------------------ Dave deBronkart SPM Board & e-Patient Dave LLC Nashua ...

Great article, thanks for sharing! Using a framework to help patients prioritize desired outcomes is both engaging and impactful. Engaging by enabling the patient to drive the conversation with established priorities and set goals. Impactful because an ...

Grace, thank you! Looking forward to attending the Wednesday PM meet up. Conference is around the corner! Mark VanderKlipp Founding Partner, Connect_CX (231) 631-5107 www.connect-cx.com linkedin | twitter ...

@Jan Oldenburg has written a great post for this year's #PatientsIncluded conformance statement.  The blog post Social media to click and easily reshare: Twitter      Facebook     LinkedIn Thank you Jan! ------------------------------ Dave deBronkart ...

I did get through the registration, and it processed my credit card and then took me to the "do you want to book a hotel?" page.   I'm still waiting for the  confirmation by email. It's not the easiest registration - I had to search the forum here to ...

There is another concept I have tried to incorporate with the italicized lines. An appeal to a universal truth. In this case equality. Each italicized line ought to apply to any patient. For a manifesto to have memorable effect the language needs to appeal ...

@Danny Sands - I will be curious to hear what happens with an incognito/private browser window. I think a cookie problem would look different from what she describes. I think what she says happens is as follows: She tries to log in but the site ...

HI Everyone....just a reminder, if you are patient or caregiver and need funds to go and participate in the SPM conference on Oct 17th this is the last day to submit an application for a patient travel award. https://is.gd/hzAniE ------------------------------ ...

Posting this to Open Forum and to the Event Planning SIG ... our efforts are working - registration is running 50% ahead of last year - keep sharing as we spread the word globally!   (And here's our entire series of blog posts about the conference) ...

Hi everyone, SPM has partnered with a group of members conducting initial research. Please share and take these surveys as they will be up through the end of October. Aggregate results will be shared back out on SPM and at the National Caregiving Conference.  ...

Hi Liza, I'd love to hear more about your study and am also doing work around family caregivers. I also know, virtually anyway, Gary Kreps.  You should also connect with @Sarah Krug as she runs Cancer101. And with @Denise Brown who runs Caregiving.com. ...

I just posted the video recordings from the August & September Learning Exchange webinars here:  https://participatorymedicine.org/webinars/ .  If you missed the live webinars, I highly recommend both webinars and think that they offer good content that ...

Nancy,  On the page with the options for registering, Don't select attendee. Go to bottom of that screen and select  co-located or Deep Dive session Only Then on the next screen select Society for Participatory Medicine Also, you ...

Hi, I'm posting on behalf of two friends, both with very complex cases, who are looking for appropriate care providers. Recommendations and suggestions welcome: The first is recommendations for the son of a friend who will live and work in DC. He ...

Regarding our conference, Oct. 17 in Boston: The latest pre-conference blog post is live, by Rasu Shrestha.   Social media links for easy click-and-resharing:  A Tweet to RT SPM Facebook post to share  LinkedIn post to share ...

Thanks for the link to the article, Peter. This is, indeed, a huge problem. There seems to be a need for balance between "evidence-based medicine," which is so much the watchword in health care, and remaining open to patient reports of health adversity ...

This article,  A New Response to the Data-Centric Future of Healthcare , popped up in my feed today.  There may be some value in some of the article, but the lede stopped me cold: DOS is Health Catalyst's response to a simple truth: The future of healthcare ...

Please share to your networks! A tweet you can open, for easy retweeting: https://twitter.com/ePatientDave/status/1041687873374875649 FB post for easy re-sharing: https://www.facebook.com/epatientdave/posts/10216287172029767 ...

I post a link to this article because I think it demonstrates that we (the participatory medicine advocates) have made progress. The article is a short commentary published in the WMJ, the journal associated with the Wisconsin Medical Society. (Disclaimer: ...

Conference page with full links to reg, agenda, the whole nine Poetry for Personal Power is working on attending this conference in force in service of its PCORI grant aimed at determining the research priorities on the person/patient side of behavioral ...

Are you organized? Good with numbers? Are you a leader who wants to hone your skills? What would you think about managing a corporation with a multi-million dollar budget ? Too big? Then consider running for treasurer of SPM. We're currently identifying ...

Ken, Yes, I agree with all you say, and I think that is the ultimate goal. The problem is, what do you have to talk about? If we are not gathering the right information about each of these issues, how can there be a discussion, much less sharing of ...

Cathy and Geri, Like Geri, I've been unable to find very much that is on point in this area. There's this great study from 2008 that highlights that creating healing relationships with patients (which includes empowering them and reducing the power differential) ...

Liz Szabo has an opinion piece in today's NYTimes , in which she argues that the conversations and news reports of precision medicine (for cancer) are unbalanced and misleading. Misinformation obviously makes informed decision making a challenge.  The ...

------------------------------ It's A Great Day To Be Alive Cathy Bandy Tampa Bay, Florida jerzeycate@gmail.com ------------------------------

I came across a couple of articles regarding the History of participatory Medicine and thought some might find a historical context of current efforts helpful. https://www.cbord.com/cbord-explains-participatory-medicine/ Cbord ...

I don't know if they would have the time to be involved, however I would highly recommend my Carediologist and/ or his Nurse PRacticioner. Superior Skills in this area. We were never without correct and complete information regarding all options.  Up ...