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Hi all, On Wednesday, Nov 20th Dr. Jiayun Xu and I will be discussing how to better support family caregivers. We'll be going over our research we partnered with the Society on to understand the challenges of nurses who also caregive informally for people ...

When it comes to electronic health records and their impact on in-person communication —- maybe it should be called Care Is Somewhere Else 😂😂😂 Sue ------Original Message------ You know their external interface really was called Care Elsewhere, ...

Interesting concept.  If I understand it right, you are creating a  bidding platform that enables patients to obtain discounts on healthcare.   Providing information for patients to even access healthcare options is a formidable task.  Putting the data ...

@Brenda Denzler @Adrian Gropper @Dave deBronkart Data and Goliath by Bruce Schneier recommended by Brian Kaney, speaker on the FHIR Standard Society for Participatory Medicine Conference October, 2019FHIR session SPM 2019 https://www.facebook.com/participatorymedicine/videos/539567450143262/ ...

Thank you Danny and Peter. It's my privilege! Brian ------------------------------ Brian Mack Great Lakes Health Connect Grand Rapids MI 6165884694 ------------------------------

So how did it go?? I sometimes wonder how life would be different if I'd moved to DC ten years ago ... other than "my mortgage payments would be a TEENSY bit huger than here in New Hampshire..." ------------------------------ Dave deBronkart e-Patient ...

I was so confused today on the patient empowerment workgroup call, Lisa ... the FHIR community is so full and diverse and inter-relating that I completely missed (at first) that the Lisa on this call was YOU!  And boy did that add to my own confusion. ...

I just tweeted to them , including your screenshot :-)  Hola @nejmcatalyst ... may I humbly suggest, the demographic categories on your newsletter sign-up list lack "patient" and "caregiver"? I believe this is called a modeling bias, and it ...

I thought so too. Marilyn ------------------------------ Marilyn Mann Kensington, Maryland @MarilynMann (301) 520-5488 ------------------------------

Hi all, @Denise Brown will be hosting the 4th Annual National Caregiving Conference here in Chicago Nov 7-9th. On Nov 8th,  @MaryAnne Sterling will be hosting a policy/advocacy track with a panel session called: Act at a State & Local Level. I'll ...

That's an excellent question Janice. The answer is probably no, unless research shows that voice prompts add value. The reason why I can guess no in advance is that we are using video games as our educational technology; and our market is folks who already ...

Every now and again I come across an essay so good it is painful to pick a teaser quote, because the entire essay demands to be read. Careful and Kind Care Requires Unhurried Conversations is such an article. Here's part of the lede: "In order to ...

This is fantastic news, @Brenda Denzler - well deserved! Godspeed to you in Amsterdam.  ​ ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

Starting a "daily" (translated 'when I see something') health hacker award shout out for neat people I see doing amazing things. Today's award goes to this ortho surgeon:  https://twitter.com/cadiulus Twitter ...

Dear Participatorians: Members of the Society for Participatory Medicine elect two members-at-large to participate in the executive committee and the board of directors. Any member is eligible to self-nominate for member-at-large. Besides participating ...

Just shared via our SPM twitter! https://twitter.com/S4PM/status/1189323771322228736?s=20 ------------------------------ Amber Soucy, MSN RN S4PM Board of Directors S4PM Social Media Lead Twitter: @wheezynurse Email: wheezynurse@gmail.com Website: ...

Hi all, Just resurfacing the Quick Start Guide for SPM Connect that @Peter Elias took the time to create.​ Please give if it a read if you haven't already and offer any suggestions for additional information that it will be beneficial to include. ...

I went to AHIP's main event a few years ago - seemed very much like HIMSS in that it was a lot if industry professionals talking to each other and there was less interaction / engagement with other stakeholders. I haven't been to the other AHIP events. ...

I wanna gooooooo.....     Seriously, Chicagoland, it was exhilarating to visit with this group - twice, so far, I think.  Well worth an evening. ------------------------------ Dave deBronkart e-Patient Dave LLC SPM co-founder and past co-chair Co-admin ...

Gretchen I'm so very sorry to hear of this devastating loss. I would speak to someone knowledgeable about inherited cardiovascular disease and sudden cardiac death in the young for what questions to ask. If you can arrange to speak to the pathologist ...

Dear board colleagues (copy to all members): Next board meeting is 10/29 at 6pm ET at usual Zoom line. Let me know if you can't attend for any reason. Draft agenda is here .  Please do pre-reads and be prepared for discussion. Comments welcome. ...

Greetings, This is a starting resource opportunity  though no resources should be referenced until researched. I have specialized in resource guides for individuals seeking assistance for three decades, I would not refer people here. As I mentioned it ...

Do you have an iPhone? I was able to access it with the iPhone Podcasts app. Marilyn ------------------------------ Marilyn Mann Kensington, Maryland @MarilynMann (301) 520-5488 ------------------------------

It was a wonderfully organized conference. I have taken some time to reflect, but I will get some thoughts out on the blog next week. And now, because I shared this publicly, I will have to deliver! :) ------------------------------ Thanks, Ileana ...

" I want to see patients have direct access to the same information that providers have (or at least access to more of the information that providers have) so that they're not dependent on their clinicians to offer access to information that could be ...

Wow, Peter, that's the best thing I've ever seen about the agile rationale - and when not to use it.  I'm looking back now at my last few years, thinking about whether I've tried too much to think things out when there's in fact been no clear path forward. ...

Or "engaged patient" -- Dave's ePatient moniker? ------------------------------ Brenda Denzler MedicalPTSD.com Pittsboro NC 919-418-0628 ------------------------------

Thanks, Peter - what's the original link just for context? ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 office +1 585 370 ...

Thanks, Dave! @Amber Soucy, MSN RN ​, please let me know how I can help as I will have some volunteer time available this Sunday. ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben ...

I agree that the choice of one technology or another is neither the problem nor the solution. I think we should stay with Connect using Higher Logic until other issues have been successfully resolved and there is a clear plan for how a discussion platform ...

@Kate Lorig - thanks for permission to share your excellent private response. Yes, please do go “on and on” as you indicated! :-)   ​ The following message has been sent to you in response to your Discussion message Message From: Kate Lorig John, ...

John, I will be there and will look for Greg. Are you attending? Kevin Freiert Salem Oaks Consulting ------Original Message------ @Kevin Freiert , will you be in Boston this week?  Please be sure to connect with fellow SPM member, ...

Yes, @Janice Tufte - I am ABSOLUTELY OPTIMISTIC beyond measure in our fellow neighbor helping neighbor! All health care is local. Washington, DC is nearly 400 miles away. Here's to the eternal flame burning in each and every fellow human, neighbor ...

Thanks, Grace - I am very eager to use Unblock Health! ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 office +1 585 370 0847 ...

Yes, as a first scroll-through, that table is the eye-grabber.   I'm not sure what diabetes examples you mean, unless it's OpenAPS.org . ------------------------------ Dave deBronkart e-Patient Dave LLC SPM co-founder and past co-chair Co-admin for ...

Great seeing this will be streamed live as I have a conflict and will be attending portions remotely.  @Amber Soucy, MSN RN , will there be Q&A capability through the FB Livestream? ​ ------------------------------ John Hoben Lifetime Member Society ...

Hi all, this is my last patient engagement blog. I'll still be writing and always looking for co-authors, but I'll be writing a column on the Healthcare Scene. Thanks to everyone who has co-authored these with me since 2013!  @Casey Quinlan , @Danny ...

This appears to have been resolved. Thank you. ------------------------------ The chief cause of problems is solutions. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 576-0716 ...

Brenda, You raise a valid point: Patient Safety vs. Patients feeling safe. I totally agree. The framework has been limited or at least short-sighted when using the term & when referring to the concept of Patient Safety. I myself recognize the difference ...

Check out this amazing #WTFix  blog post by our very own @Burt Rosen Time 2 Meet + Time 2 Talk = Time 4 Change https://whatsthefix.info/time-2-meet-time-2-talk-time-4-change/ ​​​ ------------------------------ Amber Soucy, MSN RN S4PM Board ...