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These forums and libraries are the platforms SPM uses to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to members. We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join

Latest Discussions

  • Posted in: Open Forum

    Hear, hear, Grace! Couldn't agree with you more on the need to stop assuming everyone has health literacy (because we all know what ASSuming makes out of you and me).  Here's a related piece on statistical literacy from Wegwarth and Gigerenzer  https://link.springer.com/chapter/10.1007/978-3-319-64310-6_13 ...

  • Posted in: Open Forum

    Hey folks, Anybody here with expertise on Medicare reimbursements? I have a very specific question. Regarding Botox treatments for therapy (not cosmetic). We see wildly varying rates -- lower for some docs and much higher for others. Thanks ...

  • Posted in: Open Forum

    Thanks, Marilyn! Sandra Raup ------Original Message------ ​I attended the Healthcare Innovation Summit last year and was a reviewer on the article. There were some other patient advocates there as well. I don't have any ongoing involvement. ...

  • Posted in: Open Forum

    Most of you know WEGO Health , a corporate partner and sponsor of S4PM. WEGO matches businesses and enterprises (pharma, researchers, entrepreneurs, etc.) with patient experts. I know that many of you have found good paying gigs through WEGO. In 2017 ...

  • Posted in: Open Forum

    Hi everyone, The newsletter team is in the process of finalizing the winter newsletter. If you have published a piece you would like included in the upcoming edition, please email me the title and link at enlighteningresults@gmail.com by no later than ...

  • Posted in: Open Forum

    Imagine two approaches to making airline travel arrangements for a vacation. In the first instance, you get to pick the itinerary and destination, then you decide on dates to fly, what class of tickets to buy, what size car to rent, what hotel ...

  • Posted in: Open Forum

    Impressive! ------------------------------ Alexandra Albin Monterey Ca 831.372.4813 ------------------------------

  • Posted in: Open Forum

    The official @ rarediseaseday 2018 poster is out Share with your friends and let's spread the word about # RareDiseaseDay #2018 Download the poster from rarediseaseday.org/downloads # showyourrare ------------------------------ ...

  • Posted in: Open Forum

    Yes, I agree that this shouldn't reassure white women that they are safer, although I believe the statistics that African Americans can experience less careful care. I wonder if part of this is trying to systematize every single decision so no thinking ...

  • Posted in: Open Forum

    Hi All While I do think that there is over-testing and other medical "overuse", to be fair to health professionals, applying medicine is not like applying Newtonian Physics.  In many cases, symptoms point in a general direction, and then tests have to ...

  • Posted in: Open Forum

    Hi Everyone, I recently joined Savvy Cooperative, a patient-owned co-op that helps restore power back to patients and gives them a voice in healthcare innovations. Savvy is an online platform that anyone can sign up for, and lets you share your experiences ...

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    Chiropracter

    Posted in: Open Forum

    Dear fellow SPMers I need advice for my mother ( chronic pain). Does anyone know any good and competent chiropracter who can consult us online. Since we are based in India, we can talk with the practitioner privately over his consultation and other fees. ...

  • Posted in: Open Forum

    Health News Watchdog HealthNewsReview.org only reviews news stories and news releases that include a claim of efficacy about: Specific treatments, tests, products or procedures (A story that includes multiple claims about multiple interventions or ...

  • Posted in: Open Forum

    Looks good! ------------------------------ Jon Lebkowsky Polycot Associates, LLC Austin TX 512 762-6547 ------------------------------

  • Posted in: Open Forum

    Hi @Vera Rulon - @John Grohol should be able to help you.  ​​ ------------------------------ John Hoben Lifetime Member SPM Internal Communications Team https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 ---------------- ...

  • Posted in: Open Forum

    My favorite addition to this use avoidance list: "noncompliant."  Dr. Danielle Ofri's NY Times 2012 article sums things up well.  https://well.blogs.nytimes.com/2012/11/15/when-the-patient-is-noncompliant/ Well ...

  • Posted in: Open Forum

    I hope those of you in the northeast US are enjoying the snowstorm and staying safe. SPM uses G Suite (fka Google Apps) for some of its internal functions, mainly documents and Google docs, but soon this will include Google Calendar for events of ...

  • Posted in: Open Forum

    @Carla Berg I missed your message yesterday! I think Discourse might work! I'll email you and maybe set up a chat soon. I'll also find Coleen Young, thanks for suggestion @David Grayson . I don't know who to contact at MSKCC for updates to Patient ...

  • Posted in: Open Forum

    In case it's of interest, the Center for Plain language is now accept entries for the ClearMark awards for the best plain language print and digital resources in English and Spanish.  Deadline to enter is Jan 31. There are 10 categories for original ...

  • Posted in: Open Forum

    Hi @Jose Vasquez - good hearing from you. I just texted you so please call back today or tomorrow at your convenience as I'm on vacation​.  Have you connected with any of the community leaders (for most, not employed by VA) listed as CVEB members?  ...

  • Posted in: Open Forum

    In case it's of interest, ACH posted a call for abstracts, workshops and symposia for their ENRICH event at the End of May.  Call for Oral Abstracts, Narrative Medicine, Workshops, Symposia, Special Interest Groups   Opens:  Tuesday, ...

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    RE: Suicide

    Posted in: Open Forum

    John, hristmasYes I am. Actually there are quite a dew hotlines now. And there are multiple sites on the internet where people considering suicide can turn for support and resources. I do some online volunteer work with one of them.  I was surprised to ...

  • Posted in: Open Forum

    Thanks, @Grace Cordovano - my buddy texted me Saturday (yesterday) morning indicating he's awaiting his mom sending the initial results. I've given him a heads up about your excellent practice and the whole concept of participatory medicine which is ...

  • Posted in: Open Forum

    There is good work and lots of excitement in the fields of AI, deep learning, and big data. From the outside and especially from the distant perspective of one who is not up to one's neck in the field, it seems magic at times: lots of data + a fast ...

  • Posted in: Open Forum

    Thanks, @Shannon Brownlee, MSc - this is greatly appreciated for those of us not in physical attendance last month. ​ How would you define success for SPM in 2018 in general and would you be willing, able and interested helping in several initiatives ...

  • Posted in: Open Forum

    Dave, while not a Wiki-expert, I'd be happy to help learn and get that rectified over the holiday break next week. What's your thoughts? ------------------------------ John Hoben Lifetime Member SPM Internal Communications Team https://www.linkedin.com/in/johnhoben ...

  • Posted in: Open Forum

    Danny, Thanks, i am going to reach out. They sound completely aligned with what we are doing with What's the Fix? as well. ------------------------------ Burt Rosen HealthSparq Portland OR 2034709948 ------------------------------

  • Posted in: Open Forum

    The FDA has posted proposed rules on oversight of clinical decision support software for clinicians and for patients. This last section, starting on page 11 and entitled "V. Patient Decision Support Software" is relevant to many of us. @David Harlow ...

  • Posted in: Open Forum

    Anyone else attending JPM week in San Fran this coming January? Perhaps we can plan a meet up? ------------------------------ Eran Kabakov www.Doco.la Largo FL eran@doco.la 7163088119 ------------------------------

  • Profile Picture

    Need 2-3 Volunteers!

    Posted in: Open Forum

    Dear Members, As you know, we had a very successful inaugural conference on Oct 25 in Boston. One of the ways it was successful was the program: the speakers were powerful and the audience was engaged. We need to publish a proceedings about the conference ...

  • Profile Picture

    Patient empowerment

    Posted in: Open Forum
  • Posted in: Open Forum

    HIMSS18: WHERE THE WORLD CONNECTS FOR HEALTH HIMSS18 brings you the world-class education, cutting-edge products and solutions, and unique networking opportunities you need to solve your biggest health challenges - all at one time, all in one place. While ...

  • Posted in: Open Forum

    Dear Members,  Within the next few weeks we need to hold an election for two members-at-large.  The term for the member-at-large position is one year and they are permitted to serve multiple terms.  Our current members-at-large, Peter Elias ...

  • Posted in: Open Forum

    ​​I attended the Cardiovascular Clinical Trialists Forum in Washington recently. I gave a brief talk on patient cost-sharing for PCSK9 inhibitors. Anyway, I was following up by email with a cardiologist I met at the meeting, and he asked me the following: ...

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    RE: OpenNotes and Cerner

    Posted in: Open Forum

    First: I just have to make sure you know that OpenNotes is not a software or a product, it is a quite literally a movement encouraging doctors and other healthcare professionals to share the notes they write with the patients they are caring for. So when ...

  • Posted in: Open Forum

    Thank you for the edit with the explanation. Without an explanation, members have to (1) watch the video to see what it is about; and (2) guess how it might be applicable. ------------------------------ The chief cause of problems is solutions. Peter ...

  • Posted in: Open Forum

    @Tahir Ahmad To successfully market your product in America or the West, You will need to adopt a biblical approach ( no less than a Swiss cheese approach ) in this highly - highly competitive market where the only mantra is the survival of the fittest ...

  • Posted in: Open Forum

    USA Today on wearables, Sensogram gets shoutout Pete Ianace | Dec 7, 2017 https://www.linkedin.com/pulse/usa-today-wearables-sensogram-gets-shoutout-pete-ianace Read more... --- Shared via LinkedIn Sent from my iPhone

  • Posted in: Open Forum

    Very interesting article. I was thinking about inflammatory pathways and how they are so often triggered due to a genetic susceptibility (one pathogenic mutation or maybe a few) plus environment. I'm not sure how many inflammatory pathways exist, but ...

  • Posted in: Open Forum

    http://informaticsprofessor.blogspot.in/2017/11/end-of-era-for-academic-informatics.html Is SMART on FHIR the new USB to MicroUSB Cable ------------------------------ Shail Agarwal Bhagwat Prasad Prakash Chand Agra 919997927718 ------------------ ...

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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