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Hi Beth, Sorry you can't make it, you will be missed. Although, I guess that means I can put my suit back in the closet! Yes, The Town Hall will be recorded and posted to Connect soon after. Brian -- Brian Mack E-Mail: brianmack626@gmail.com ...

Hi Vera, This is great news. I just wanted to thank you for all of your hard work in helping with the advocacy of participatory medicine. It's good to see SPM among so many other organizations supporting telehealth reform. Best, John

Thanks Robert,  That is a perfectly reasonable and achievable solution. I will take your suggestion and provide a brief opening to these board update messages( or any other content I may be posting on another's behalf) moving forward.  Regards,  Brian ...

Having medical insurance is not guarantee that your care will be covered. Raise your hand if this has been an issue for you? It has for me, for sure. And for countless of my patients. Here is a very nice article on No Patient Left Behind by Deborah ...

This is a very important and enlightening discussion. Thank you for sharing the ebook, and for your work Janice and Michael. Also, great idea for some of our clinical leaders to write for the NEJM Catalyst. Another candidate is Jan Oldenburg, who wrote ...

The idea of becoming "empowered with transparency and humility" is novel. Our culture often gives power to those who "never apologize never explain." ------------------------------ Robert Becker Humaginarium LLC Oak Park IL 3127887719 robert.becker@humaginarium.com ...

Agreed. My nurse and I had a handout we gave patients with some information and resources. In the pre-internet, pre-Dr. Google days, I developed a great relationship with the medical librarian at my institution and was able to refer patients and families ...

I will try to check into the pricing transparency of my local hospitals in a couple of weeks. Add it to my "shuck-it" list.  Another issue related to price transparency going in, is cost transparency coming out again.  An MD on the west coast wanted ...

@Peter Elias Thanks for sharing this event. A great approach to participatory medicine -- combining participant sharing with the input of a cardiology specialist. The registration is full but they will host more. Beth​ ------------------------------ ...

Hi all - I may have missed a note regarding SPM members getting together at HIMSS August 9-13th?  Is there a formal event, or should we determine a good time to gather for those attending?  And, I believe there was a registration code that was shared ...

Check out the SPM blog and share with your network. We have been posting new content weekly. This week a Northeastern alum summarized the results of a Capstone project in which he discusses how technology can accelerate the adoption of participatory medicine ...

I was asked to speak to a group of Nursing students a couple of years ago. The theme for the series was "Patient Safety" so I included "live interaction role-plays” with my husband that focused on the need for compassion as part of the Patient Safety ...

There's a nice article that has some background information about the Cures Act (that makes sharing clinical notes with patients a legal requirement) and some practical tips for using shared office visit notes in palliative care. Our own @Liz Salmi ...

I happen to have republished a blog about change/improvement: https://medium.com/i-am-cheese/why-the-change-you-want-to-see-in-the-world-has-to-start-from-you-df342dfbded0?sk=6424f76e1623e05c026ae042d7d856ed The link above is without paywall FYI ...

In terms of making it possible, encouraging him (and as many others as we can) to share his story here and then encouraging members to talk to him and each other, here or with other tools... ------------------------------ Every good deed is worth doing. ...

@Jay Spitulnik So sorry to hear about your granddaughter. I know you asked specifically about referrals for practitioners at Children's National Hospital. Let me also make sure you have thought about reaching out for other resources. To start, let me ...

Good article. I must admit to a bit of jaw-dropping, that this is considered a brave new experiment, but…. When I was in cancer treatment, I took a fluoroquinolone for a few days after every infusion, to prevent my becoming febrile as I became neutropenic ...

A member was kind enough to forward me their copy of the June Participatorian just now. The 'announcement' was a graphic and link at the bottom of the newsletter: ------------------------------ Every good deed is worth doing. Peter Elias Lifetime ...

Thanks, Elizabeth. Your story about the friend with the hernia repair…scary! To think he almost used a surgeon who had proved himself/herself incapable of the task, yet again! Yikes! But the fact that you drew a SRO crowd for your talk to the nursing ...

Addendum to my recommendation of An American Sickness. Kaiser Health News, which employs the author, has a weekly podcast named What the Health? I started listening after reading the book and found it very informative and engaging. It's a roundup and ...

https://docs.google.com/spreadsheets/d/1HNOV1PiT0IN0qup9RZGdTbFulZAeOibp/edit#gid=1827648262 ------------------------------ mary hennings concord ma 978-369-2759 ------------------------------

Great idea! We need more of this. As a long-term caregiver who's been caring for my spouse of 30 years through numerous health crises and hospitalizations, I'd love to see us caregivers included in the conversation. We tend to end up bridging the gaps ...

While I can't speak for the board, I can pretty assuredly say that the board has never placed ultimatums on our membership and we understand that people come to the Society for a multitude of reasons, looking to get sometimes very different things from ...

Over the past several months a search committee made up of SPM board members has worked to develop a job description and recruit prospective candidates to fill the role of Executive Director for SPM. This individual will work with the board to refine ...

Just received this - and given the recent town hall & this community, thought it may be of interest: We invite you to CHI's Virtual Education Series: Culturally-Competent Strategies to Address Vaccine Hesitancy in Communities of Color.   ...

I have read Ship Fever based on Peter's recommendation. Beautifully written collection of short stories. The longest is the title story, about Irish immigrants in Canada during the Great Famine in the 1840s. After nearly starving to death in their native ...

One of the topics we discussed at some lengths was the impact of politicizing medical and public health issues. COVID, masks, COVID vaccines, the HPV vaccine (in contrast to the Hepatitis B vaccine released at about the same time) were examples. This ...

During my time on the Board as Member-at-Large, I did this informally on my own, not as part of official Board work.  I had access to the back end of Wild Apricot so I was able to generate a simple report of lapsed members once a month. Most months the ...

https://docs.google.com/spreadsheets/d/1wCVf3yM2ZTjtQv5O_YeikyTJDAtAV7Qo/edit#gid=89154888 ------------------------------ mary hennings concord ma 978-369-2759 ------------------------------

@Amber Soucy , Thank you for that very thorough and helpful response. In reading your response to my question, that I need to be more transparent in my point of view. I am one of the voices that is concerned about the state of healthcare -- I am concerned ...

Thanks so much! I responded by PM with some contact info. ------------------------------ Marge Benham-Hutchins PhD, RN Lifetime Member Chair Department of Biobehavioral Nursing Science and Associate Professor College of Nursing and Health Sciences Texas ...

This is a complex and very important topic. Hesitancy is a pretty limited framing. Both intuition and the data (such as it is) suggest that accessibility, logistics, and mundane issues of living are at least as big an issue as hesitancy. One real example ...

The Second Wave feminists had a saying: the personal is political. To a large extent, I think that’s correct. So I think what we’re discussing is “political” in the non-partisan sense of that word. I need to get that book. As more of us are living longer, ...

Free Webinar on May 19: How peer/behavioral modeling videos can help people w/ conditions like heart failure  gain understanding,  build confidence & self-efficacy with Dr. Peter Orton, who studied under Albert Bandura (creator of social modeling ...

There's no doubt that health information is more widely available these days, but how useful is the information? Most of it is written, much of it is written in medical or scientific jargon that untutored patients don't understand. The average American ...

The Incidental Economist (TIE) has a recent short column about the problems of overdiagnosis and overtreatment. It starts the discussion with anecdotes of medical professionals having this happen to them. The conclusion is four simple things patients ...

I hope I am not misunderstood.  I am a zealous advocate for recognizing the value of the long tail, the quiet 80% in the Pareto distribution, the lurkers. That's why I so often raise the issue of how SPM needs to find ways to hear them, understand them, ...

Jay-Great!  Your student did an excellent job of summarizing the impact and value of secure messaging and health apps in the context of the Manifesto.  There are follow-up questions to explore, I think, like why do ~95% of secure messages emanate from ...

Rebecca Kirkland 9:33 AM (5 minutes ago) to DoNotReply This is a very interesting discussion ...

Physicians not trusting the patient’s expertise, even when the patient is medically trained, is not that uncommon. Chrystal Lewis, an RN and academic, has a rare genetic condition that it took her doctors a long time to recognize for what it was and ...