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These forums and libraries are the platforms SPM uses to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to members. We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join

Latest Discussions

  • Posted in: Open Forum

    Interesting article from today. @Tom Rivers , what are your thoughts?  https://www.healthcareitnews.com/news/idc-and-gartner-blockchain-what-cios-should-be-doing-now Healthcare IT News IDC and ...

  • Posted in: Open Forum

    Will connect with Susan to discuss next steps. Thanks all.  Jim Skinner ------------------------------ James Skinner Smart Patient Academy New Braunfels TX 8888224770 ------------------------------

  • Posted in: Open Forum

    For anyone attending (or actually not attending) the SPM Family Caregiver webinar on Friday - you may want to check out and try using the Atlas of Caregiving CareMaps app: http://caremap.atlasofcaregiving.accurat.io before the webinar. Here's the ...

  • Posted in: Open Forum

    From the member announcement that went out last week: Announcing our bi-monthly SPM Virtual Town Hall Vera Rulon and Michael Millenson will start with a brief update on SPM's Advocacy and Policy Initiatives.  Then it's your turn - open mic! ...

  • Posted in: Open Forum

    Good input, @Peter Elias - thanks for that JAMA piece, @Adrian Gropper .  @Brennen Hodge , please take note as it relates to http://CitizenHealth.io Citizen Health Citizen Health | A Decentralized ...

  • Posted in: Open Forum

    AnnMarie, love this HBO report. You're my latest patient advocate hero along with Karen Vogel in the video, Trisha Torrey (also in the video) and so many within our SPM=S4PM midst, including @Grace Cordovano .  Would someone please reach out to Karen ...

  • Posted in: Open Forum

    Sure thing - here you go! Help us understand the impact informal/family caregiving has on # nurses when they care for their own families & the impact on nurse managers & organizations that employ nurses: https://participatorymedicine.org/nurse-survey ...

  • Posted in: Open Forum

    Yes, I think that SPM's comments and Patient Privacy Rights' comments on the proposed Centers for Medicare and Medicaid Services (CMS) proposed revisions to FY19 payment are close. We both agree that patients should have immediate electronic access to ...

  • Posted in: Open Forum

    Yes as always. - Danny Daniel Z. Sands, MD, MPH +1-617-256-4775 Danny@DrDannySands.com Twitter @DrDannySands http://www.DrDannySands.com ------Original Message------ ​I registered, but I'm not sure I'm going to be able to participate ...

  • Posted in: Open Forum

    Here's one person's (Benjamin Krause) perspective:  https://www.disabledveterans.org/2018/07/09/die-another-day-va-releases-state-level-veteran-suicide-data/ DisabledVeterans.Org Die Another ...

  • Posted in: Open Forum

    Shout out to @Danny van Leeuwen for his latest blog: https://www.health-hats.com/the-culture-of-participatory-research/ Danny van Leeuwen Health Hats The Culture of Participatory Research My recurring ...

  • Posted in: Open Forum

    Shout out to fellow SPM member @Liz Salmi who will be presenting at this month's Health Records Banking Alliance (HRBA) meeting Thursday, 17 July. Here's Liz' biosketch (for more info on HRBA, contact fellow SPM member, @Richard Gibson ): Liz ...

    1 person likes this.
  • Posted in: Open Forum

    Hi folks, Are you interested in helping out with the Society's accounting and membership services? I'm looking for a dedicated individual who has an inherent interest -- and time! -- in working with financials and helping me out with creating reports ...

  • Posted in: Open Forum

    It's that time again! We will be having our regular bi-monthly Virtual Town Hall meeting. When:  Tuesday, July 17th, 2018 from 7:00 pm to 8:00 pm ET (the third Tuesday of odd-numbered months). Where:  Online with two options for participation: ...

  • Posted in: Open Forum

    Thanks for asking John! From my perspective, I absolutely love the Empathy & Innovation conference. It deeply resonates directly with the work that I do as an advocate working with people who have cancer. I find the stories of how empathy changes patient ...

  • Posted in: Open Forum

    ​John I don't think CUE gets into that level of specificity on particular diseases, but there are patient groups that are members of CUE that do. I don't know if any of them relate to COPD. I suggest joining the CUE Facebook group and posting a message ...

  • Posted in: Open Forum

    Correction - less than 69 miles from the Lewiston Bridge :-)  ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 ---------- ...

  • Posted in: Open Forum

    Cathy, Thank you for taking the time to share these thoughts about the loud voice of hate and inequality dominating the public conversation in the US and the world.  I associate this conversation with fear on a personal level -- possibly lower income, ...

    1 person likes this.
  • Posted in: Open Forum

    Done! With a few minutes to spare before the deadline. After reading the many hundreds of pages, it's discouraging to see how low they are aiming, but, step by step is how we get change, so very grateful to the SPM committee for its public input and ...

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    RE: Warner Slack

    Posted in: Open Forum

    Danny, many thanks for that fitting tribute. While I didn't know Dr. Slack, I did know him through Dr. Ken Walker at Grady Memorial Hospital when living in Atlanta back in the 80's while at Emory University Hospitals.  Looking forward to looking back ...

  • Posted in: Open Forum

    Justice is served: https://www.beckershospitalreview.com/legal-regulatory-issues/colorado-health-system-sues-patient-over-229k-surgery-bill-jury-awards-766.html

  • Posted in: Open Forum

    Thank you all for your responses. Yes Richard it was a teleclinic visit. Our institution has signed an agreement with Zoom to provide the platform for us to do telehealth. In our specialty of Otolaryngology Head & Neck Surgery there is big potential for ...

  • Posted in: Open Forum

    I'm also very excited by this news, after some admitted skepticism about this venture. Dr. Gawande has credibility, understanding of the industry, and a track record for change. I am now hopeful that they'll do something more exciting than what the typical ...

  • Posted in: Open Forum

    Marilyn, It's all good... Let me know if I can be of further assistance, or if there are other resources that might be helpful ------------------------------ It's A Great Day To Be Alive Cathy Bandy Tampa Bay, Florida jerzeycate@gmail.com 813-812-6679 ...

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    RE: Member Survey

    Posted in: Open Forum

    Looking forward to seeing your CQI discussions put into action, @Michael Millenson as I noted you've deleted your post. ​ ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben ...

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    "Observation Status"

    Posted in: Open Forum

    In February I was hospitalized after a Migraine headache took control (of everything), even triggering a bout of Angina. Without going into minute detail regarding the whys and whos (because I don't think they are important here)I have a question about ...

  • Posted in: Open Forum

    https://www.eventbrite.com/e/chicago-participatory-medicine-meetup-tickets-47153268696 Eventbrite Chicago Participatory Medicine Meetup Come meet and learn about others in Chiacgo doing work to improve health ...

  • Posted in: Open Forum

    Talya, Thank you for sharing the article in Psychology Today about your colleague who experienced acupuncture.   The point of this article is in line with a concept I am currently exploring - the role of trust in healthcare consumerism.   This is ...

  • Posted in: Open Forum

    The 10 th Annual Health Literacy Research Conference takes place October 21-23 in Bethesda, Maryland.  Scientific abstract submissions are being accepted NOW through June 15. Details and more info here: http://www.bumc.bu.edu/healthliteracyconference/harc-vii-call-for-abstracts-open/ ...

  • Posted in: Open Forum

    While fellow SPM member @Brennen Hodge can personally attest to what Citizen Health is doing, what do fellow SPM members think of another initiative led by a company called Hu-manity.co?  Brennen shared with me Hu-manity.co's founder and CEO's thinking ...

  • Posted in: Open Forum

    All kinds of direct, concrete awesomeness here. Thanks to all who contributed. ------------------------------ Marjorie Spencer Denmark ME 207 452 2011 Peer-to-peer counselor ------------------------------

  • Posted in: Open Forum

    Thanks to co-author David Andrews for sharing his experience: Find Out What I Know About Me: Improving Diagnosis through Patient Partnerships http://bit.ly/June18PEBlog Patient-experience Find Out What I Know ...

  • Posted in: Open Forum

    Thanks for the recap!! Although I didn't arrive until Friday late afternoon, I did get to experience the evening's events and painted a Walking Gallery jacket on Saturday for another member of the tribe! I am surely going to go next year and for the duration!!!​ ...

  • Posted in: Open Forum

    From the article: "We encourage FDA to recognize and support the changing nature of healthcare delivery when considering evolving regulatory schemes," wrote Hines and Wolf. "Demographic pressures of an aging population are driving a shift in healthcare ...

  • Posted in: Open Forum

    Thanks, Joe!  I'll update our blog post on this.  Is there a link to an article or web page about the winners? ------------------------------ Dave deBronkart SPM Board & e-Patient Dave LLC Nashua NH ------------------------------

  • Posted in: Open Forum

    Hi Everyone, I am in Boston this week speaking at BIO2018 and have decided to organize a meetup at Birch Bar at The Westin on Tuesday June 5th from 7-9 pm. Please see details below and RSVP.  Looking forward to seeing everyone! https://www.eventbrite.com/e/pinksocks-spm-meetup-tickets-46712621709 ...

  • Posted in: Open Forum

    Dear S4PM,  I wrote a blog piece about Patient Partners at Medical and Health Research Conferences. This a primer blog piece providing basic steps if an organization is thinking of including Patient Partners in their conferences.  https://hassanahhealth.wordpress.com/ ...

  • Posted in: Open Forum

    Thanks, Peter - always appreciate your diligence in these matters. ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 -------- ...

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    RE: G Suite Support

    Posted in: Open Forum

    To be used to ask questions or get help with our SPM G_suite tool, I assume? ------------------------------ The chief cause of problems is solutions. Peter Elias Member-at-large of the SPM Board Family Physician Auburn ME 207 576-0716 ------------- ...

  • Posted in: Open Forum

    Sarah, thanks for pulling yesterday's webinar together. I reached out to Dr. Holt- Lunstad who shared the following research paper published last year. Other SPM members might find valuable as it relates to social connection / isolation and health.  ...

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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Joseph Ternullo (President)
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