Home

A message for our members about HIMSS22. SPM is a HIMSS collaborator again this coming year. HIMSS22 is the can't-miss health information and technology event of the year, where professionals throughout the global health ecosystem connect for the education, ...

Thanks, Susan. Excellent paper from the always excellent Don Berwick. ------------------------------ Judy Danielson ------------------------------

Brenda and All SPMrs Here are listed on demand sessions available today from yesterdays sessions on the PCORI conference site, available after you register. "> https://janicetufte.com/ www.linkedin.com/in/janicetufte

Geri, you have no idea how it warms my heart to hear you say that. :) To some extent, I have internalized the message that I’m an undesirable, difficult patient and that I could and should be more pliant and grateful. So it does me good to see that someone ...

Sharing out this free webinar happening next week:  https://www.healthliteracysolutions.org/events/event-description?CalendarEventKey=1308bf95-a[…]a5-df4a1c54cbc9&Home=%2fevents-conferences%2fcalendar   ------------------------------ Geri Lynn ...

Not  long ago, CNN produced a documentary about the development of Covid-19 vaccines by the NIH and Moderna. The Cultural Programs of the National Academy of Sciences (CPNAS) hosted an online screening. The film highlighted the amazing work of NIH funded ...

Congratulations, Alexander - Godspeed to you and your success. -- ________________________________________________________________ John Hoben | hoben.john@gmail.com | +1 585 993 8265 office | +1 585 370 0847 mobile | John.hoben1 skype ...

Hi All You might be interested in attending one or more of the BMJ's Webinars on Patient access to their Health Records. https://linktr.ee/BMJPatient Regards Ken ------------------------------ Ken Masters Researcher / Academic SQU, Oman - ...

Hi Janice.  I will pass this on to the group working on assessing the conference.  I am sure they will appreciate your thoughts.  Looking at new geographies is one of the considerations.  That will depend on finding interested sponsors, in part.  I know ...

Dear Fellow Participatorians, I will be speaking at the upcoming Health AdvocateX conference on behalf of SPM. The theme of this year's virtual conference, to be held November 4-6, is "Health Advocacy Now: Lessons from the Pandemic." This organization, ...

This is an excellent example of what "could be" and one wonders how it has taken so long for a study like this to take hold...that is if it ever does other than in print. I don't know whether I mentioned I had occasion to give a presentation to Nursing ...

Hi All A gap between examiners' and patients' perceptions of effective communication is apparent Yes, I suspect that gap exists everywhere, because of the exam system, no matter how well-intended. The OSCE exam is a really good exam, because it allows ...

From Axios Vitals health newsfeed   " Advocates are fighting against the $14.5 billion health records industry, shaping what health-record software looks like - and who wins IT contracts. ( Insider )"  Link to an article that quotes Liz Salmi ...

https://www.eventbrite.com/e/chicago-participatory-med-meetup-conversational-agents-in-healthcare-tickets-190658503717 Eventbrite Chicago Participatory Med Meetup: Conversational Agents in Healthcare Eventbrite ...

Hi Susan > An intro discussion on JoPM/JMIR is scheduled for 10/6 at 1:30. I may have missed previous posts on this: could you please post the link and time-zone? Thanks ------------------------------ Ken Masters Researcher / Academic SQU, Oman ...

Randy,      I am not suggesting that rare diseases be a priority. Rather, that this funding opportunity could be used to create resources which could benefit the larger community. For example, if health literacy is an issue, creating training or resources ...

Hi Robert - let me check with @Josephshen and @RayWeadock as they may have someone in their networks.  John​ ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

Three page summary attached. ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 office +1 585 370 0847 mobile / text john.hoben1 ...

Fair question. No guarantees, of course, but I think two things can help: CLEARLY label it as a work in progress or draft. Make sure that your organization has an agora where this is an understood cultural norm, so feedback is intended and received ...

Healthy skepticism is what has brought participatory medicine to the forefront of our advocacy for many of us. Brenda PCORI could certainly do more to advance patient centered care and outcomes and working with patients, families and caregivers at all ...

In one of my FB groups, someone mentioned that she had been bitten by a puppy. She was asking about how members of this group handled bites.  I wrote back to ask if the puppy had been vaccinated for rabies. My point being, if it hadn't, or if she didn't ...

@Janice Tufte I should have been clearer when I suggested the stipend. It was my idea to suggest the stipend and so everyone knows, I did not consult you before proposing it. It just occurred to me that this is the kind of work that SPM should support.  ...

I understand, John. And the rationale for not allowing comments on news article seems reasonable to me...though as you said, allowing one class of individuals to comment but not other classes is not kosher.  That said, I would point out that while some ...

Hello all! My nascent organization will be hosting the TakeEMBack (take Emergency Medicine Back) Summit 100% virtually September 27th-28th 2021, FREE to Patient-Advocates and SPM members! Thank you to @Geri Baumblatt for introducing me to some incredible ...

Greetings SPM  Nice to be on the forum again!  I wanted to share with you all some of the activities I have been involved with.  I have been very active with the Computable Publising  FEvIR Platform developing out human readable evidence related ...

Marilyn Interesting wording to say the least. It appears they might have a goal of patients to pay up front "to ensure access to care" Hmmm ------------------------------ Janice Tufte Patient Partner @Hassanah2017 Seattle WA https://janicetufte.com ...

https://www.eventbrite.com/e/chicago-society-for-participatory-medicine-september-meetup-tickets-170219837115?ref=eios Hello, s4pmers! Chicago group has a virtual meeting coming up and please RSVP. Local Health Rosetta advisor Michael Kroupa and patient ...

Beth, it’s an emotional issue for me, too. I know a few women who have had abortions, and it was a gut-wrenching decision for them. It wasn’t easy. Perhaps for some women it is, so they do it with a light heart. But the ones I know who’ve done it have ...

from SPM Members @Eran Kabakov & myself:  Join us Sept 15 for a free webinar with Dr. Rebecca Sudore as she discusses her research behind advanced care planning and medical decision-making for all! https://us02web.zoom.us/webinar/register/9016282902466/WN_a1hzEgieR26xN7kNT8ufxg ...

I am sorry to have to miss this - I will be in the Northeast Kingdom of Vermont with family that entire week without reliable internet. I assume it will be recorded and link provided for those of us who cannot attend. Thanks. ------------------------------ ...

Fellow Participatorians,  In the spirit of transparency and open communication, Interim Board Chair, Mary Hennings, provides an update on SPM board topics for inclusion in the monthly newsletter, The Participatorian. There is commonly far more going ...

Hello, I'll be participating in the virtual HCEA Conf on Patient Education Virtual Conference in September. The conference is free to students and just $99 for all others - so please share with your networks, especially any students who may be interested: ...

Hi Beth, Sorry you can't make it, you will be missed. Although, I guess that means I can put my suit back in the closet! Yes, The Town Hall will be recorded and posted to Connect soon after. Brian -- Brian Mack E-Mail: brianmack626@gmail.com ...

Hi Vera, This is great news. I just wanted to thank you for all of your hard work in helping with the advocacy of participatory medicine. It's good to see SPM among so many other organizations supporting telehealth reform. Best, John

Thanks Robert,  That is a perfectly reasonable and achievable solution. I will take your suggestion and provide a brief opening to these board update messages( or any other content I may be posting on another's behalf) moving forward.  Regards,  Brian ...

Having medical insurance is not guarantee that your care will be covered. Raise your hand if this has been an issue for you? It has for me, for sure. And for countless of my patients. Here is a very nice article on No Patient Left Behind by Deborah ...

This is a very important and enlightening discussion. Thank you for sharing the ebook, and for your work Janice and Michael. Also, great idea for some of our clinical leaders to write for the NEJM Catalyst. Another candidate is Jan Oldenburg, who wrote ...

The idea of becoming "empowered with transparency and humility" is novel. Our culture often gives power to those who "never apologize never explain." ------------------------------ Robert Becker Humaginarium LLC Oak Park IL 3127887719 robert.becker@humaginarium.com ...

Agreed. My nurse and I had a handout we gave patients with some information and resources. In the pre-internet, pre-Dr. Google days, I developed a great relationship with the medical librarian at my institution and was able to refer patients and families ...

I will try to check into the pricing transparency of my local hospitals in a couple of weeks. Add it to my "shuck-it" list.  Another issue related to price transparency going in, is cost transparency coming out again.  An MD on the west coast wanted ...