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These forums and libraries are the platforms SPM uses to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to members. We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join.

Latest Discussions

  • Posted in: Open Forum

    Agreed. We have other more pressing problems to solve. A different platform shouldn't be a priority anytime soon. ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben ...

  • Posted in: Open Forum

    @Kate Lorig - thanks for permission to share your excellent private response. Yes, please do go “on and on” as you indicated! :-)   ​ The following message has been sent to you in response to your Discussion message Message From: Kate Lorig John, ...

  • Posted in: Open Forum

    Great, @Peter Elias - I will put an infographic slide together that will help communicate this move from "consumer" to "investor" so we can enhance the "manifesto" impact.  Small nit: I never liked the term "manifesto" as it brings up images of Karl ...

  • Posted in: Open Forum

    We've just made Amber's excellent instructions into a blog post, so non-members can benefit (and perhaps join!) https://participatorymedicine.org/epatients/2019/10/s4pm2019-conference-livestream-how-to-use-facebook-live.html Feel free to tweet it etc! ...

  • Posted in: Open Forum

    John, I will be there and will look for Greg. Are you attending? Kevin Freiert Salem Oaks Consulting ------Original Message------ @Kevin Freiert , will you be in Boston this week?  Please be sure to connect with fellow SPM member, ...

  • Posted in: Open Forum

    Yes, @Janice Tufte - I am ABSOLUTELY OPTIMISTIC beyond measure in our fellow neighbor helping neighbor! All health care is local. Washington, DC is nearly 400 miles away. Here's to the eternal flame burning in each and every fellow human, neighbor ...

  • Posted in: Open Forum

    Thanks, Grace - I am very eager to use Unblock Health! ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 office +1 585 370 0847 ...

  • Posted in: Open Forum

    Yes, as a first scroll-through, that table is the eye-grabber.   I'm not sure what diabetes examples you mean, unless it's OpenAPS.org . ------------------------------ Dave deBronkart e-Patient Dave LLC SPM co-founder and past co-chair Co-admin for ...

  • Posted in: Open Forum

    Great seeing this will be streamed live as I have a conflict and will be attending portions remotely.  @Amber Soucy, MSN RN , will there be Q&A capability through the FB Livestream? ​ ------------------------------ John Hoben Lifetime Member Society ...

  • Posted in: Open Forum

    Hi all, this is my last patient engagement blog. I'll still be writing and always looking for co-authors, but I'll be writing a column on the Healthcare Scene. Thanks to everyone who has co-authored these with me since 2013!  @Casey Quinlan , @Danny ...

  • Posted in: Open Forum

    This appears to have been resolved. Thank you. ------------------------------ The chief cause of problems is solutions. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 576-0716 ...

  • Posted in: Open Forum

    Brenda, You raise a valid point: Patient Safety vs. Patients feeling safe. I totally agree. The framework has been limited or at least short-sighted when using the term & when referring to the concept of Patient Safety. I myself recognize the difference ...

  • Posted in: Open Forum

    Check out this amazing #WTFix  blog post by our very own @Burt Rosen Time 2 Meet + Time 2 Talk = Time 4 Change https://whatsthefix.info/time-2-meet-time-2-talk-time-4-change/ ​​​ ------------------------------ Amber Soucy, MSN RN S4PM Board ...

    1 person likes this.
  • Posted in: Open Forum

    Patient Empowerment Network is hosting a #SDOH tweetchat tomorrow, Friday 10/4 at 10am PT. The tweetchat guests include one of our amazing #S4PM2019   conference speakers, Dr. Lisa Fitzpatrick, and our outstanding conference sponsor Healthsparq! ...

  • Posted in: Open Forum

    This guide to help meaningfully include the patient and family community as a partner across the quality measure lifecycle has been developed by a national roundtable convened by the Pharmacy Quality Alliance (PQA), in partnership with the National Health ...

  • Posted in: Open Forum

    Didn't want your post to go unremarked, Dave. But I don't know exactly what I think about these eight mechanisms of co-production of medical practice. I think I need each term elaborated a bit before I can determine what I think of them or know how to ...

  • Posted in: Open Forum

    All-Thanks for your kind wishes, welcome and thoughtful comments.  I look forward to working together to move SPM forward toward achieveing its goals and vision. Thanks, Mary ------------------------------ mary hennings concord ma 978-369-2759 --- ...

  • Posted in: Open Forum

    Please share! Understanding How to Better Support Nurse/Family Caregivers  Increasingly, nurses who help care for their own family members are double duty caregivers. Nurses are often the first ones their families call on. While their clinical ...

  • Posted in: Open Forum

    The point of this post is to get input about replacing Connect from as many members as possible. We need information about what works poorly (or doesn't work) and about what you would need or like in a replacement platform. There has been some discussion ...

  • Posted in: Open Forum

    John, I have to echo @Brenda Denzler Brenda's comments and say that the work has just begun. Most of the news suggest that the source of the immediate problem has been found (infection related to possible UTI and confirmed pneumonia) and hopefully ...

  • Posted in: Open Forum

    After reading Anatomy of an Illness, I streamed the movie on Amazon Prime. Starring Ed Asner as Norman Cousins and Eli Wallach as Dr. William Hitzig. Fun! ------------------------------ Robert Becker Humaginarium LLC Oak Park IL 3127887719 robert.becker@humaginarium.com ...

  • Posted in: Open Forum

    Thank you for sharing this, Maria!  Indeed it can feel like all the work we do isn't getting anywhere, but every bit of the generosity and caring you've given others has clearly altered lives, which is in itself caring. And I strongly suspect that some ...

    1 person likes this.
  • Posted in: Open Forum

    Thank you @Jan Oldenburg for the slides, notes and especially for moving this forward. It sounds as if there was good attendance, good energy, and lots of good discussion. If I understand, the next steps are: Identify a work group willing to take ...

  • Posted in: Open Forum

    The site says you have until 11:59 tonight. Feel free to put things in the template in your own words. That has even more impact. Adrian ------Original Message------ Thanks @Vera Rulon for the reminder and the template. :) Done.​ ------------------------------ ...

  • Posted in: Open Forum

    I did the Doodle poll, based on what is on my calendar as of this evening. The longer we go before a date is picked, the more likely one of the days will be taken. ------------------------------ The chief cause of problems is solutions. Peter Elias ...

  • Posted in: Open Forum

    Peter, you present an excellent case study. In that case, IMHO, because we are not dealing with a once-and-done situation (you vaccinate or you don't), but with a chronic situation (denial of necessary medication followed by relapse and a serious medical ...

  • Posted in: Open Forum

    Well, Peter, doctors are not usually quite that blunt. They don't just come right out and say, "It's your own fault." Rather, that is the message lying behind what they DO actually say.   What the Patient Says: I am having more and more trouble exercising ...

  • Posted in: Open Forum

    Me too -- Danny van Leeuwen Danny@health-Hats.com 617-304-4681 Blog: www.health-hats.com Twitter: @healthhats ------Original Message------ I am eagerly looking forward to a link to the recorded version. Peter ------------------------------ ...

  • Posted in: Open Forum

    By way of clarification, members can now navigate to the Board and ExeCom SIGs and read what is there, but cannot post in either community and cannot 'subscribe' and get email notifications of new posts in either community. Both posting and subscribing ...

  • Posted in: Open Forum

    Hi Adrian This is not a new discussion, but you're making it a false binary. HL7 can't "agree to honor the patient's designated destination for access as their the first priority" because HL7 has nothing to say about priority, only about what is possible. ...

  • Posted in: Open Forum

    Great idea to spread the word about the conference on facebook. Do you have stats on how many people did that? Can we send a similar message to people who have registered for the conference? How to alert on Linked In???  I don't use facebook.  I use ...

  • Posted in: Open Forum

    Danny vanLeeuwen @Danny van Leeuwen Questions about event Do I need to be a programmer to attend? Is this about the specific prototype to address medication management mentioned on the event website?  See copied text below. Is this Learning Network ...

  • Posted in: Open Forum

    Cathy,  I appreciate you posting this and sending to our emails also. When I have some set aside time I will browse through the graphics and tools you have provided.  Kindness goes along way.  Thank you! Sincerely  Janice Tufte  ------------------------------ ...

  • Posted in: Open Forum

    I'm going to agree with both the article and Peter.  I spend a lot of time reading what people think about the future of care, and at conferences, where I hear truly ignorant generalizations: "Patients do this," "Patients don't do that," "Patients don't ...

  • Posted in: Open Forum

    Peter @Peter Elias Thank you for sharing the James Corden video on the Bill Maher story about Fat Shaming. James Corden reminds us that there is a strong correlation between poverty and childhood obesity and that there is a known genetic component to ...

  • Posted in: Open Forum

    Thanks to @Dave deBronkart and Ryan for coming to the meeting! What a lively discussion we had!  I love your idea of streaming the meeting live!!  It was an honor to help organize.  I truly love coming to every meeting.  I am painting my own Regina ...

  • Profile Picture

    RE: Unblock Health

    Posted in: Open Forum

    Thanks, @Grace Cordovano - yes, that would be great. When works for you tomorrow as I am very flexible? ​ ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

  • Profile Picture

    RE: SPM "Manifesto"

    Posted in: Open Forum

    Thanks Sue.  Great input for the next iteration! ------------------------------ Burt Rosen Portland OR 2034709948 ------------------------------

  • Posted in: Open Forum

    In your posts in the original thread and in your emails to me you said...   "With Medicare, there are decisions you make at 65 and when you are healthy that cannot be reversed. With Medicare Advantage, once you opt to go into the Medicare Advantage and ...

  • Posted in: Open Forum

    Neil, Thank you for taking the time for sharing your story, and what a wonderfully courageous story it is. I totally agree about the value of information from AARP.  I rely on the AARP material on the Medicare rules, as well as the material published ...

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