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These forums and libraries are the platforms SPM uses to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to members. We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join

Latest Discussions

  • Posted in: Open Forum

    This is nice but hardly jump up and down material. VA and CMS are not leading in this respect. Argonaut is dragging its feet when it comes to patient-directed exchange and VA is leading from behind.  The problem is is that CMS nor VA are defining Open ...

  • Posted in: Open Forum

    Ohmygosh, Beth, Thanks so much! Adding here: We also just won the national first place for public service in the 2017 SIgma Delta Chi awards in small-market television reporting from the Society for Professional Journalists. This comes ...

  • Posted in: Open Forum

    Congratulations... I had the opportunity to see this. It was well done. One of the best I've seen. ------------------------------ It's A Great Day To Be Alive Cathy Bandy Tampa Bay, Florida jerzeycate@gmail.com 813-812-6679 --------------------- ...

  • Posted in: Open Forum

    Curriculum here : Please join us! April 24, 2018 7-8pm ET Join from PC, Mac, Linux, iOS or Android: https://zoom.us/j/ 9560424034 Or iPhone one-tap : US: +16699006833 ,, 9560424034# or +14086380968 ,, 9560424034# ...

  • Posted in: Open Forum

    Greetings @DannySands  I hope you enjoyed #IM2018 ​​I read over the session a couple of nights ago and the "How I learned to love engaged patients" session I laughed at with delight when I saw it. I then noticed it you with S4PMs very own @ePatientDave ...

  • Posted in: Open Forum

    Greetings @S4PM​ I attended the #HCSRN2018 conference last week. An opportunity to hear and learn from as well as  meet, thought leaders and doers in Health Care Systems Research. ​​Evidence based studies presented in sessions and posters, glad to see ...

  • Posted in: Open Forum

    Beth,  Yes I am attending and Health Datapalooza is a one of a kind health data research extravaganza, where you can meet with other innovators and learn about the latest best evidence studies and methodologies. Perhaps I might meet you there! ------------------------------ ...

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    Lancet:

    Posted in: Open Forum

    @Danny Sands here's the Lancet article I just showed you.  Everyone here should love it. :) Hypertension: time for doctors to switch the driver's seat? The money shot:  Surely, it is time for care providers to rethink the chain of medical ...

  • Posted in: Open Forum

    Problems solved! Thanks for the references. ------------------------------ If you're not getting the right answers, maybe you are asking the wrong questions. ====================== Michael Robkin, MBA Consultant, Executive, Caregiver, Patient Los Angeles, ...

  • Posted in: Open Forum

    All, On May 7, SPM Board Chair and Co-Founder, Danny Sands, will keynote at the New England Health Executive Network monthly breakfast briefing. SPM Chairman Emeritus and Co-Founder, Dave deBronkart, SPM member Naomi Fried, and Jan Walker, Co-Founder ...

  • Posted in: Open Forum

    ​​https://participatorymedicine.org/epatients/2018/04/support-healthhats-danny-van-leeuwens-nomination-for-pcori-board-of-governors.html Danny van Leeuwen is seeking nomination and support as a "patient/caregiver stakeholder" seat on the Board of Governors ...

    1 person likes this.
  • Posted in: Open Forum

    Hi all, I've been fortunate to be on the road over the last year attending various conferences, events, summits, meetings. Here's my latest piece on refreshing the healthcare conference experience.  https://medium.com/citizen-health/shattering-the-mold-its-time-for-reality-conferences-334291be3b03 ...

  • Posted in: Open Forum

    Hi SPMers, I am attending the lecture described below next Thursday, 4/19; it's part of the U. Chicago Harper Lecture series. I can bring along a guest or 2 if any Boston-area folks are interested in attending. There's a $20 fee, which includes drinks ...

  • Posted in: Open Forum

    All, Am forwarding message below from Bill Doherty,our newest SPM member and a seasoned conference organizer, SPM member, John Novack recruited Bill. You will notice that SPM member Randi Oster is on the dais for this event. Best regards, Joe ...

  • Posted in: Open Forum

    Thought I would pass this on. Inspired by my patient experience, my neurosurgeon and many other patients and care partners, I spoke at TEDx a few weeks back on " How to Save your Life in a Complex Health Care System ." As I think many of us know, health ...

  • Posted in: Open Forum

    this was a new one to me. I went over their website and agree, mostly developing nations focus. Thanks for the info. ------------------------------ Claire Snyman Patient, Advocate, Speaker & Author Vancouver, Canada ------------------------------

  • Posted in: Open Forum

    Well put together Joyce! Wishing you all the best in your presentation. I am sure you will spread a powerful message :) ------------------------------ Claire Snyman Patient, Advocate, Speaker & Author Vancouver, Canada ------------------------------

  • Posted in: Open Forum

    Dear Members, Many of you are involved in projects and committees for SPM. We use Google Suite (Google Apps) for our work. But some are confused or frustrated by it and need to know how to make better use of it. Member Eran Kabakov is teaching ...

  • Posted in: Open Forum

    All,    This conference is occurring on May 8 and will be held at the Marriott Cambridge, Massachusetts.  I have attended the event most years and will be attending this year.   It is a high quality, very well run event.  If you are attending,  please ...

  • Posted in: Open Forum

    Forwarding this to SPM Connect with permission. Please send tips / leads directly to Kevin at kevinlomangino@gmail.com If you're not familiar with Health News Review , it's an invaluable resource - real journalists rating mass media news stories ...

  • Posted in: Open Forum

    All,   On May 7,   SPM Board Chair and Co-Founder, Danny Sands, will keynote at the New England Health Executive Network monthly breakfast briefing. SPM Chairman Emeritus and Co-Founder, Dave deBronkart,  SPM member Naomi Fried, and Jan Walker, Co-Founder ...

  • Posted in: Open Forum

    Just in case you needed another reason to delete your Facebook account: https://www.cnbc.com/2018/04/05/facebook-building-8-explored-data-sharing-agreement-with-hospitals.html Regards ------------------------------ Ken Masters Researcher / Academic ...

  • Posted in: Open Forum

    http://www.patient-experience.org/Resources/Blogs/DM-Blog/Blogs/April-2018-(1)/I-m-not-gonna-lie-to-you-Marge.aspx ------------------------------ Geri Lynn Baumblatt, MA Patient Engagement, Health Literacy, Shared Decision Making, Family Caregiver at ...

  • Posted in: Open Forum

    ONC has published a guide to getting your health record, along with some useful info on why you would want to access your health record. See:  ONC Guide to Getting Your Health Record . Check out the ONC Data Brief that is referenced on the website, too. ...

  • Posted in: Open Forum

    This was a good edition - I have been reading over it! Thanks for pointing it out John. ------------------------------ Claire Snyman Patient, Advocate, Speaker & Author Vancouver, Canada ------------------------------

  • Posted in: Open Forum

    Like all activists, I want change, which begs the question, how?  How do we make change start?  Erin Gilmer ​@GilmerHealthLaw posted three tweets last night that caught my eye, quoting Derek Thompson speaking from his 2017 book Hit Makers: How Things ...

  • Posted in: Open Forum

    All,  Last Thursday, the Society for Participatory Medicine entered into a strategic relationship with The Conference Forum, well recognized for their high quality conferences.  As a gesture of good will, they offered us a limited number of guest passes ...

  • Posted in: Open Forum

    Greetings, all. I've fielded a query from a trusted media watchdog outlet seeking people/patients who have been harmed "by misleading, incomplete or inaccurate medical information from any media sources -- including news stories, marketing, news releases, ...

  • Posted in: Open Forum

    Francie Grace wrote a great quick post on this important issue. If you have time, read this quick post, click, and comment! Must Do By Midnight: Comment On NIH Plan For Handling ALL Health Data! -- Dave deBronkart / "e-Patient ...

  • Posted in: Open Forum

    Liz, That was so thoughtful of you helping Casey with her article search. Not having access to full articles,  those of us not directly attached to an academic or research institute can provide challenges. Especially if we are searching for a paper we ...

  • Posted in: Open Forum

    @Harlan Krumholz ​, How has your opinion changed (or not) since publishing this article four years ago? ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

  • Posted in: Open Forum

    Thank you, @John Hoben ! @Brennen Hodge and @william Gunn , if you're willing to take the survey and/or talk in more detail, please let me know!​​​ ------------------------------ Liz Boehm Experience Innovation Network Cambridge MA eboehm@vocera.com ...

  • Posted in: Open Forum

    There has been some recent change and in a good direction. At the Interoperability Showcase at HIMSS18 in Las Vegas three weeks ago, I watched Ricky Bloomfield MD of Apple download his record in realtime in front of us from three different health systems ...

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    Medecision

    Posted in: Open Forum

    What working experience do any SPM members have with Medecision as a company and in particular, their Aerial offerings?  See this announcement below for details. Thanks in advance,  John https://globenewswire.com/news-release/2018/03/27/1453682/0/en/Medecision-Launches-Aerial-CarePlanner-360-the-Latest-Release-in-Suite-of-Advanced-Care-Management-Solutions.html ...

  • Posted in: Open Forum

    Greetings All, I am currently involved with a research project encompassing the potential applications that 3D Printed medications may present to the world of healthcare.  In hopes of getting as much perspective to broaden my approach on this project, ...

  • Posted in: Open Forum

    Hey @John Hoben ! I'm here and looking forward to these great discussions in this amazing community! Thanks for helping out with my login issues.  ------------------------------ Brennen Hodge Citizen Health Hattiesburg MS 6014632436 -------------- ...

  • Posted in: Open Forum

    Thanks, John. It's a great idea and I'll definitely speak with Jen Gunter. Just to give you guys an idea of the project - it focuses on birth, but truly I'm sure it represents other cases in the medical realm. Recenly I did a study showing that birth ...

  • Posted in: Open Forum

    Tremendously thankful for your two recommendations @John Hoben  ​I will reach out to both @Brennen Hodge and Dr. Jen Gunter, MD promptly. ------------------------------ Kistein Monkhouse, MPA Founder of Patient Orator W: www.patientorator.com E: ...

    1 person likes this.
  • Posted in: Open Forum

    Here is a brief report of our most recent (March 20th) Virtual Town Hall. We had 11 participants including 5 members of the Board. The conversation focused primarily on SPM's education pillar and ways SPM could work to educate patients, caregivers, ...

  • Posted in: Open Forum

    Hi, This is a potential opportunity from the National Library of Medicine for members of Society for Participatory Medicine - -- Possibly a nonprofit (health related organization) could apply. -- Possibly patient advocates could network with organizations ...

    1 person likes this.

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

We encourage you to visit our SPM website, where you can learn much more about us, including:

 

Our active participatory medicine community based on the four CARE pillars of Communication, Advocacy, Research and Education. We would love to have you join us.

 

Joseph Ternullo (President)
Susan Woods (President-Elect)
Jonathan Wald (Past President)
John Grohol (Treasurer)
Nancy Finn (Secretary)
Peter Elias (Member-at-Large)
Tracy Zervakis (Member-at-Large)
Danny Sands (Board Chair)
Sarah Krüg (Acting Executive Director)
Mandi Bishop
Kyra Bobinet
Donna Cryer (on leave)
Judy Danielson
Dave deBronkart
Joe and Terry Graedon, (Co-Editors of JoPM, members ex-officio)
John Hoben
Bruno Nardone
Jane Sarasohn-Kahn (on leave)
Charlie Smith (Editor of JoPM, member ex-officio)
Kenneth P. Yale

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