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The Society for Participatory Medicine's (SPM) online community is here for its members, to enhance collaboration and to allow members to share with one another in their own personal journey of participatory medicine. 

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Latest Discussions

  • Posted in: Open Forum

    This has been an interesting and educational experience on Higher Logic. I look forward to a continuation of our discussions on the participatory medicine forums . See you all there. ------------------------------ Every good deed is worth doing. Peter ...

  • Posted in: Open Forum

    Thought folks might be interested in this info from a survey conducted by Savvy Coop. As I've said before, it's not privacy at this macro level that concerns me the most, but I note that even at the level I'm most concerned with, there are some patients ...

  • Posted in: Open Forum

    Sorry, Peter and Danny. I had a bizarre computer event associated with a software update this afternoon. Ancient messages got resent to many, many people. No idea why. Please ignore the message. ------------------------------ mary hennings concord ...

  • Posted in: Open Forum

    Hi Beth, Just following up on Danny's last post. In 2019, there was an extremely good survey done of present and past SPM members that offers some insight into your question. The top five reasons that active members joined SPM were [by order of magnitude]: ...

  • Posted in: Open Forum

    I am sending a reminder in case anyone wants to attend--this is taking place next week. I will be speaking about participatory medicine on the last morning of the event. Dear Participatorians: Register for the Patient Experience Symposium , which ...

  • Posted in: Open Forum

    Peter, good essay. Thanks for the link. I have reached the (tentative) conclusion that Western medicine is quite good at acute care, on the whole. Not so good at catching conditions before they reach the “acute” stage, even if patients are regularly reporting ...

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    RE: board update

    Posted in: Open Forum

    We will check the list to be sure you are on it, Beth. Thanks for doing a deep dive into your received email file. We don't want to miss any members with these communications. When tech works well, it's great and it's really frustrating when it doesn't. ...

  • Posted in: Open Forum

    Thanks for the addition, John. I completely agree that this is the case, but I think it needs to be made screamingly loud-and-clear apparent from the get-go. My relative (a rare one who reads all the terms) was positively appalled to learn that her ...

  • Posted in: Open Forum

    Yes, the EHR can contribute to misdaignosis in a multitude of ways. Distraction from the patient's agenda to follow the EHR agenda. Being given a constraining set of boxes rather than the opportunity to describe what one sees or relate what the patient ...

  • Posted in: Open Forum

    Dear SPM Colleagues, A few days ago, two women in their early 50s, both dear friends, died of advanced cancer. This plus a rise in cases and exacerbations per my integrative oncologist over the last two years, has been the impetus for me to push forward ...

  • Profile Picture

    DPharm 9/13 & 14

    Posted in: Open Forum

    Is anyone else going to be at DPharm Boston in a couple weeks? This will be my first conference in a couple years - I'd love to have a chance to grab coffee, afternoon snack, whatever & chat. Lisa ------------------------------ Lisa Nelson ...

  • Posted in: Open Forum

    I understand. But how great would it be if there could be a conference/roundtable composed of patients, patient advocates, nurses, and physicians who could develop short, workable checklist for patient engagement? When I win the lottery big-time, I’ll ...

  • Posted in: Open Forum

    Beth, speaking of insurance physicians and their level of competency…. My insurance company does a yearly “wellness check” visit. The issue came up of my allergies, and I told her fluoroquinolones. She asked what symptoms they produced, and I told ...

  • Posted in: Open Forum

    Dr. Ofri is always worth reading, and t his discussion of how she has come to see the value in telemedicine is no exception. "The most important element of connection is the ability to connect at all. Patients lead complicated lives." "Far from being ...

  • Posted in: Open Forum

    @Geri Baumblatt . SPM has been increasingly focused on policy and internal structure/governance. There has not been​ much focus or work on supporting grass roots member activities or growing/engaging membership in order to create a movement pushing for ...

  • Posted in: Open Forum

    Viktor Montori is *always* worth listening to, IMO. https://empendium.com/mcmtextbook/interviews/perspective/303749,patient-centered-care-in-clinical-practice Peter ------------------------------ Every good deed is worth doing. Peter Elias Lifetime ...

  • Posted in: Open Forum

    Yes, thanks Peter. It also reinforces what Beth suggested: Get a copy of the medical record BEFORE you sign the AMA form. Brenda

  • Posted in: Open Forum

    Interesting article, Janice. I think the "guinea pig" factor is a big, big one in why patients can be reluctant to participate in research. Using patient data when that data is one point among hundreds or thousands is probably a lot less risky-feeling ...

  • Posted in: Open Forum

    Yes I have upcoming https://EmergencyMCG.com business in Boston. Would love to see you, Brenda, Danny, Danny and everyone. John __________________________________ John Hoben | hoben.john@gmail.com | +1 585 993 8265 office | +1 585 370 0847 ...

  • Posted in: Open Forum

    @Danny van Leeuwen I visited your Medium page. That's where I will keep up with your posts. Awesome that you did the Camino de Santiago. Beth​ ------------------------------ Beth Barnett, RN, BSN, PhD Lifetime Member Society for Participatory Medicine ...

  • Posted in: Open Forum

    Greetings SPM, I agree that connect is very underutilized. I often feel I am posting into a vacum as only one maybe two people respond to my threads and usually noone does. This does not appear participatory at all. Individuals who are better known or ...

  • Posted in: Open Forum

    Have been thinking about this essay some more, now that I've read it all. First, I stand by my statement that I loved it. I did. It's a great description of how our ideas about disease and health, and how we NAME those things, has changed in the last ...

  • Posted in: Open Forum

    First, I love the quote after your signature. :) Second, in general I hate EHRs, and the experience you had with yours is one reason why. Allow me to be a pessimist here and make a prediction: You will wind up having to fight with billing about charges ...

  • Posted in: Open Forum

    Before we blame the EHR (though I’m not a HUGE fan of it), perhaps we should ask…. Do the countries that outrank us in terms of health outcomes use EHRs or not? If they do use them, are the recording systems they use similar to or different from our ...

  • Posted in: Open Forum

    Hi Brad, I know Alan and Saul -- hoping to set up a webinar with them on their work/approach later this year. So will let you know when we have a date for that. in the mean time, they've added an intro video about it to help clinicians/providers learn ...

  • Posted in: Open Forum

    Sorry Geri, Not al 100% yet after my THR and some issues following. Been watching PCORI BOG meeting all morning too. I think you know I have been very involved with homelessness and SdoH issues for decades. I have served on Healthcare for the Homeless ...

  • Posted in: Open Forum

    I don't have any particular expertise in this area, but I believe even if you do not use the hospital's name, if it is reasonably identifiable that would be sufficient. In other words, identifiable by a "reasonable person." Marilyn ------------------------------ ...

  • Posted in: Open Forum

    Good blog. I would add to the advice given: take a look at the details of the study. Was the amount of the drug (or in this case, since it was their focus, vitamin) studied consistent with what has been believed (by its advocates) to be effective? Was ...

  • Posted in: Open Forum

    Sorry about the “not pacifist” comment. Here lately I’ve been extra-sensitive to being told that what I think or feel or experience isn’t REALLY what I think, feel, or experience — that someone else knows these things about me better than I do. I find ...

  • Posted in: Open Forum

    Hi Beth - here's a bit of tangential background from this recent "Potter Report" you might find of value: ---------- Forwarded message --------- Date: Wed, Jun 1, 2022 at 2:40 PM Subject: [hc-hackers] Fwd: The Potter Report 📝 To: Healthcare Benefits ...

  • Posted in: Open Forum

    Working to create patient education for 20+ years, I couldn't agree more. Not only do people want more info - we often don't cover key questions and meet their informational needs about everything from post-op depression to impact on their sex life, etc. ...

    1 person likes this.
  • Posted in: Open Forum

    Please find the link to the board agenda for the May meeting. Thanks, Mary https://drive.google.com/drive/folders/16vL_wF0LacGvYwckbrlVkqIlL9C6YyJ4 ------------------------------ mary hennings concord ma 978-369-2759 --------------------------- ...

  • Posted in: Open Forum

    Was this recorded for subsequent viewing? I was unable to attend due to a prior commitment. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family ...

  • Posted in: Open Forum

    Excellent op ed and question from Brenda.. ------------------------------ Rebecca Kirkland, MD Pittsboro NC ------------------------------

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    Article:

    Posted in: Open Forum

    This article is not from my mPTSD group, but very well could have been. It's about trusting the medical profession, and how it too often lets patients down by blaming their symptoms on their "poor choices" rather than doing any serious investigation of ...

    1 person likes this.
  • Posted in: Open Forum

    Honestly, there needs to be more cross-disciplinary training of ALL healthcare and mental health professionals. There's so much mutual knowledge that could be helpful to both sets of professionals that it's shameful that our academic institutions remain ...

    1 person likes this.
  • Posted in: Open Forum

    Such a wonderful, important point about the power of brief, silent seconds of time. I have had the experience, and been part of it in many manifestations, extending the notion of 'silence' into withholding information from family members under the guise ...

  • Posted in: Open Forum

    Thanks, John! ------------------------------ Michael Metzler Michael Metzler Consulting, LLC Medfield MA 5082642818 ------------------------------

  • Posted in: Open Forum

    @Geri Baumblatt Thank you for posting. Beth​ ------------------------------ Beth Barnett, RN, BSN, PhD Lifetime Member Society for Participatory Medicine ------------------------------

  • Posted in: Open Forum

    These are great articles, Marilyn. I admire his own resilience! Brenda

    1 person likes this.

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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