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The Society for Participatory Medicine's (SPM) online community is here for its members, to enhance collaboration and to allow members to share with one another in their own personal journey of participatory medicine. 

Some forums and discussions are visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic is only available SPM members. (If you are a member and see this screen, it means you are not logged in.)

We hope you will look around, like what you see, and become a member of the Society for Participatory Medicine. Not a member? Join us today!

Latest Discussions

  • Posted in: Open Forum

    Hi Beth, Sorry you can't make it, you will be missed. Although, I guess that means I can put my suit back in the closet! Yes, The Town Hall will be recorded and posted to Connect soon after. Brian -- Brian Mack E-Mail: brianmack626@gmail.com ...

  • Posted in: Open Forum

    Hi Vera, This is great news. I just wanted to thank you for all of your hard work in helping with the advocacy of participatory medicine. It's good to see SPM among so many other organizations supporting telehealth reform. Best, John

  • Posted in: Open Forum

    Thanks Robert,  That is a perfectly reasonable and achievable solution. I will take your suggestion and provide a brief opening to these board update messages( or any other content I may be posting on another's behalf) moving forward.  Regards,  Brian ...

  • Posted in: Open Forum

    Having medical insurance is not guarantee that your care will be covered. Raise your hand if this has been an issue for you? It has for me, for sure. And for countless of my patients. Here is a very nice article on No Patient Left Behind by Deborah ...

  • Posted in: Open Forum

    This is a very important and enlightening discussion. Thank you for sharing the ebook, and for your work Janice and Michael. Also, great idea for some of our clinical leaders to write for the NEJM Catalyst. Another candidate is Jan Oldenburg, who wrote ...

  • Posted in: Open Forum

    The idea of becoming "empowered with transparency and humility" is novel. Our culture often gives power to those who "never apologize never explain." ------------------------------ Robert Becker Humaginarium LLC Oak Park IL 3127887719 robert.becker@humaginarium.com ...

  • Posted in: Open Forum

    Agreed. My nurse and I had a handout we gave patients with some information and resources. In the pre-internet, pre-Dr. Google days, I developed a great relationship with the medical librarian at my institution and was able to refer patients and families ...

  • Posted in: Open Forum

    I will try to check into the pricing transparency of my local hospitals in a couple of weeks. Add it to my "shuck-it" list.  Another issue related to price transparency going in, is cost transparency coming out again.  An MD on the west coast wanted ...

  • Posted in: Open Forum

    @Peter Elias Thanks for sharing this event. A great approach to participatory medicine -- combining participant sharing with the input of a cardiology specialist. The registration is full but they will host more. Beth​ ------------------------------ ...

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    HIMSS

    Posted in: Open Forum

    Hi all - I may have missed a note regarding SPM members getting together at HIMSS August 9-13th?  Is there a formal event, or should we determine a good time to gather for those attending?  And, I believe there was a registration code that was shared ...

  • Profile Picture

    SPM Blog

    Posted in: Open Forum

    Check out the SPM blog and share with your network. We have been posting new content weekly. This week a Northeastern alum summarized the results of a Capstone project in which he discusses how technology can accelerate the adoption of participatory medicine ...

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    RE: Compassion

    Posted in: Open Forum

    I was asked to speak to a group of Nursing students a couple of years ago. The theme for the series was "Patient Safety" so I included "live interaction role-plays” with my husband that focused on the need for compassion as part of the Patient Safety ...

  • Posted in: Open Forum

    There's a nice article that has some background information about the Cures Act (that makes sharing clinical notes with patients a legal requirement) and some practical tips for using shared office visit notes in palliative care. Our own @Liz Salmi ...

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    RE: Storytelling

    Posted in: Open Forum

    I happen to have republished a blog about change/improvement: https://medium.com/i-am-cheese/why-the-change-you-want-to-see-in-the-world-has-to-start-from-you-df342dfbded0?sk=6424f76e1623e05c026ae042d7d856ed The link above is without paywall FYI ...

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    RE: Power of Patients

    Posted in: Open Forum

    In terms of making it possible, encouraging him (and as many others as we can) to share his story here and then encouraging members to talk to him and each other, here or with other tools... ------------------------------ Every good deed is worth doing. ...

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    RE: Connections

    Posted in: Open Forum

    @Jay Spitulnik So sorry to hear about your granddaughter. I know you asked specifically about referrals for practitioners at Children's National Hospital. Let me also make sure you have thought about reaching out for other resources. To start, let me ...

  • Posted in: Open Forum

    Good article. I must admit to a bit of jaw-dropping, that this is considered a brave new experiment, but…. When I was in cancer treatment, I took a fluoroquinolone for a few days after every infusion, to prevent my becoming febrile as I became neutropenic ...

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    RE: Town Hall meeting?

    Posted in: Open Forum

    A member was kind enough to forward me their copy of the June Participatorian just now. The 'announcement' was a graphic and link at the bottom of the newsletter: ------------------------------ Every good deed is worth doing. Peter Elias Lifetime ...

  • Posted in: Open Forum

    Thanks, Elizabeth. Your story about the friend with the hernia repair…scary! To think he almost used a surgeon who had proved himself/herself incapable of the task, yet again! Yikes! But the fact that you drew a SRO crowd for your talk to the nursing ...

  • Posted in: Open Forum

    Addendum to my recommendation of An American Sickness. Kaiser Health News, which employs the author, has a weekly podcast named What the Health? I started listening after reading the book and found it very informative and engaging. It's a roundup and ...

  • Posted in: Open Forum

    https://docs.google.com/spreadsheets/d/1HNOV1PiT0IN0qup9RZGdTbFulZAeOibp/edit#gid=1827648262 ------------------------------ mary hennings concord ma 978-369-2759 ------------------------------

  • Posted in: Open Forum

    Great idea! We need more of this. As a long-term caregiver who's been caring for my spouse of 30 years through numerous health crises and hospitalizations, I'd love to see us caregivers included in the conversation. We tend to end up bridging the gaps ...

  • Posted in: Open Forum

    While I can't speak for the board, I can pretty assuredly say that the board has never placed ultimatums on our membership and we understand that people come to the Society for a multitude of reasons, looking to get sometimes very different things from ...

  • Posted in: Open Forum

    Over the past several months a search committee made up of SPM board members has worked to develop a job description and recruit prospective candidates to fill the role of Executive Director for SPM. This individual will work with the board to refine ...

    1 person likes this.
  • Posted in: Open Forum

    Just received this - and given the recent town hall & this community, thought it may be of interest: We invite you to CHI's Virtual Education Series: Culturally-Competent Strategies to Address Vaccine Hesitancy in Communities of Color.   ...

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    RE: Storytelling

    Posted in: Open Forum

    I have read Ship Fever based on Peter's recommendation. Beautifully written collection of short stories. The longest is the title story, about Irish immigrants in Canada during the Great Famine in the 1840s. After nearly starving to death in their native ...

    1 person likes this.
  • Posted in: Open Forum

    One of the topics we discussed at some lengths was the impact of politicizing medical and public health issues. COVID, masks, COVID vaccines, the HPV vaccine (in contrast to the Hepatitis B vaccine released at about the same time) were examples. This ...

    1 person likes this.
  • Posted in: Open Forum

    During my time on the Board as Member-at-Large, I did this informally on my own, not as part of official Board work.  I had access to the back end of Wild Apricot so I was able to generate a simple report of lapsed members once a month. Most months the ...

    1 person likes this.
  • Posted in: Open Forum

    https://docs.google.com/spreadsheets/d/1wCVf3yM2ZTjtQv5O_YeikyTJDAtAV7Qo/edit#gid=89154888 ------------------------------ mary hennings concord ma 978-369-2759 ------------------------------

  • Posted in: Open Forum

    @Amber Soucy , Thank you for that very thorough and helpful response. In reading your response to my question, that I need to be more transparent in my point of view. I am one of the voices that is concerned about the state of healthcare -- I am concerned ...

  • Posted in: Open Forum

    Thanks so much! I responded by PM with some contact info. ------------------------------ Marge Benham-Hutchins PhD, RN Lifetime Member Chair Department of Biobehavioral Nursing Science and Associate Professor College of Nursing and Health Sciences Texas ...

  • Posted in: Open Forum

    This is a complex and very important topic. Hesitancy is a pretty limited framing. Both intuition and the data (such as it is) suggest that accessibility, logistics, and mundane issues of living are at least as big an issue as hesitancy. One real example ...

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    RE: Why SPM?

    Posted in: Open Forum

    The Second Wave feminists had a saying: the personal is political. To a large extent, I think that’s correct. So I think what we’re discussing is “political” in the non-partisan sense of that word. I need to get that book. As more of us are living longer, ...

  • Posted in: Open Forum

    Free Webinar on May 19: How peer/behavioral modeling videos can help people w/ conditions like heart failure  gain understanding,  build confidence & self-efficacy with Dr. Peter Orton, who studied under Albert Bandura (creator of social modeling ...

  • Posted in: Open Forum

    There's no doubt that health information is more widely available these days, but how useful is the information? Most of it is written, much of it is written in medical or scientific jargon that untutored patients don't understand. The average American ...

  • Posted in: Open Forum

    The Incidental Economist (TIE) has a recent short column about the problems of overdiagnosis and overtreatment. It starts the discussion with anecdotes of medical professionals having this happen to them. The conclusion is four simple things patients ...

  • Posted in: Open Forum

    I hope I am not misunderstood.  I am a zealous advocate for recognizing the value of the long tail, the quiet 80% in the Pareto distribution, the lurkers. That's why I so often raise the issue of how SPM needs to find ways to hear them, understand them, ...

  • Posted in: Open Forum

    Jay-Great!  Your student did an excellent job of summarizing the impact and value of secure messaging and health apps in the context of the Manifesto.  There are follow-up questions to explore, I think, like why do ~95% of secure messages emanate from ...

  • Posted in: Open Forum

    Rebecca Kirkland 9:33 AM (5 minutes ago) to DoNotReply This is a very interesting discussion ...

    1 person likes this.
  • Posted in: Open Forum

    Physicians not trusting the patient’s expertise, even when the patient is medically trained, is not that uncommon. Chrystal Lewis, an RN and academic, has a rare genetic condition that it took her doctors a long time to recognize for what it was and ...

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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