Home

Welcome.

There is a Quick Start Guide to help get started on the site.

These forums and libraries are the platforms members of SPM use to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for our SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to logged-in members. If you are a member and see this, it means you are not logged in.

We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join.

Latest Discussions

  • Posted in: Open Forum

    For those who are interested, more information can be accessed at ResearchtothePeople (website https://www.researchtothepeople.org/ and Slack researchtothepeople). If you have any questions, difficulties in plugging in, or comments, I am happy to help. ...

  • Posted in: Open Forum

    This looks great. Thanks for sharing it! ------------------------------ Erin Moriarty Wade Self-employed Boca Raton FL 404.931.2377 ------------------------------

  • Posted in: Open Forum

    SPM members are collaborating to offer a free screening Dr. Jessica Zitter's new film on #familycaregiver burden later this month for HCPs: Family Caregivers need more support both from care teams. Healthcare providers are invited to join a  free ...

  • Posted in: Open Forum

    Excellent tip, thank you Brenda. The lead author Len Berry is a venerable master of marketing science, a learned amplifier of the voice of the customer. The article leverages the theory of learned helplessness, a pillar of positive psychology discovered ...

    1 person likes this.
  • Profile Picture

    RE: Journal Review

    Posted in: Open Forum

    Thanks John, I was hoping you'd say that. Hope you had a nice Christmas... Are you down in Bradenton? ------------------------------ It's A Great Day To Be Alive Cathy Bandy Tampa Bay, Florida jerzeycate@gmail.com ------------------------------

  • Posted in: Open Forum

    Michael, thanks again for your original post. Please forgive me if I took things off track. Personally, I think everything is connected so we will persevere. Peter, thanks for your cogent description of aerosols outdoors. Your description lines up ...

  • Posted in: Open Forum

    I'm fond of lifting pearls of wisdom from unlikely places, like popular culture for example. I think it was Bob Dylan who said, "don't criticize what you can't understand."  Do patients understand medicine and healthcare? I think not. I doubt that ...

    1 person likes this.
  • Posted in: Open Forum

    @Danny Sands Well done, my friend. I'm sure the few minutes of opened time will swell shortly.  ​ ------------------------------ Danny van Leeuwen Health Hats www.health-hats.com @healthhats ------------------------------

  • Profile Picture

    Board Materials

    Posted in: Open Forum

    Board Agenda Link https://docs.google.com/spreadsheets/d/1vV2tLYOGXq6k3D4s5qeti8qw5mNZjEwq/edit#gid=647762765 ------------------------------ mary hennings concord ma 978-369-2759 ------------------------------

  • Posted in: Open Forum

    Transparent communication in healthcare. Connection, trust, control. Research to practice. Change management. Community organizing. @Liz Salmi tells her story of OpenNotes. Listen to podcast episode here https://www.health-hats.com/pod102 ...

  • Posted in: Open Forum

    I love it when people do that, Peter! The docs I've had who've done that with me--they are exceptional. And what I've found is that THOSE are the docs practicing in my health care system who, it seems, wind up leaving not just the system, but medical ...

  • Posted in: Open Forum

    Hello, I am doing some freelance work for a company that helps connect patients and their physicians with Clinical Trials and other pre-approval treatment options. I was wondering if any physicians here might be able to speak with me for a few minutes ...

  • Posted in: Open Forum

    John, The event is online, so you can attend. Best Marilyn ------------------------------ Marilyn Mann Kensington, Maryland @MarilynMann (301) 520-5488 ------------------------------

  • Posted in: Open Forum

    This Giving Tuesday, why not consider a donation to the Society? It's quick, it's easy, and it may be tax-deductible (depending on your tax situation)! http://participatorymedicine.org/donate/ I'm going to donate right now... :) Best, John ------------------------------ ...

    1 person likes this.
  • Posted in: Open Forum

    For anyone who is interested to attend: the 1st Caregiver Visionary Awards are taking place on Facebook Live on Tuesday, Nov 24. Please share - half the point of the awards is to raise awareness about the impact on family caregivers and how individuals ...

  • Profile Picture

    Board Materials

    Posted in: Open Forum

    Hi All, I hope you are all well. Please find a link to board materials and agenda for next Tuesday's meeting. Happy Thanksgiving. Mary https://docs.google.com/spreadsheets/d/1QXnjn8BIAAqIeCq1ynW0-alupzoAJSQb/edit#gid=1511550919 Google Docs ...

  • Posted in: Open Forum

    Hi everyone! I'm Chris, from Abridge. We recently joined the Society for Participatory Medicine because we believe our goals are aligned with SPM's Manifesto. In particular, the tenets of helping patients and clinicians "Share and Listen" and "Share ...

  • Posted in: Open Forum

    Person-included research, co-production, tragedy, grief, health equity, and relationships in life and research. Chat with Amy Price of Stanford and BMJ. https://www.health-hats.com/everyone-included-research . ------------------------------ ...

  • Posted in: Open Forum

    Hi All, Please find materials for tomorrow's special board meeting. Thanks, Mary Agenda link: https://docs.google.com/spreadsheets/d/1PwU0ZW4BgHqQ9_2GrdMwywbcC21W5aRs-uv57k1T7n8/edit#gid=0 ED Sub-Group Discussion Notes link: https://docs.google.com/document/d/1Gq5MtJH3JGpLZtpaVMNsCJTwE6BPYt8Z/edit ...

  • Posted in: Open Forum

    I don't know her, @Susan Woods . But I'll reach out. You can, too. It's a very good idea.​ ------------------------------ Danny Sands Board Co-chair Danny@ParticipatoryMedicine.org Danny@DrDannySands.com http://DrDannySands.com +1-617-256-4775 ---- ...

  • Profile Picture

    Failure Ink

    Posted in: Open Forum

    Amazing includes failure, frequent failure. Hearing about a failure, we naturally ask, 'And then what happened? What did you learn? What eventually worked?' A brief podcast episode with Health Hats. Podcast episode   ------------------------------ ...

  • Posted in: Open Forum

    Hi Dave Thanks very much this. Regards Ken ------------------------------ Ken Masters Researcher / Academic SQU, Oman ------------------------------

  • Posted in: Open Forum

    Neely Williams, change agent, pastor, attending to communities' spiritual and physical health through engagement and profound listening. Health Hats, the Podcast episode https://www.health-hats.com/minister-to-community-spirit/ ------------------------------ ...

  • Posted in: Open Forum

    Ummm, I checked with two browsers before I posted. The error message is below. YOU can access the black links because you are on the Board. The problem is (and has been for a long time) that the Board by default stores pretty much everything it does ...

  • Posted in: Open Forum

    If Brad is having trouble logging on to Connect, he should let Danny Sands know. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician ...

  • Posted in: Open Forum

    Thanks Peter.  I added them to the show notes ------------------------------ Danny van Leeuwen Health Hats www.health-hats.com @healthhats ------------------------------

  • Posted in: Open Forum

    This has been a much discussed concern for years. Too much of the conversation has focused on why our membership remains small rather than how to invite, inspire, engage and retain more members. (I've been guilty of that.) Discussing how we got here ...

  • Posted in: Open Forum

    Thank you @Adrian Gropper ! Though kudos go to @Michael Millenson as he did the heavy lifting​​. Thank you also to the BOD and @Danny Sands who made sure that the letter was reviewed and approved in a timely matter.​ ------------------------------ ...

  • Posted in: Open Forum

    Thanks for posting this Katherine and for all the great work you and @Mitchell Li did to put this together. I highly recommend people check it out. ​Direct Primary Care is a very interesting model and also seems like a way for clinicians to thrive vs ...

  • Posted in: Open Forum

    I have written to her as well, now, John. She may not join, but at least she will have had two folks suggest that she consider it. Brenda

  • Posted in: Open Forum

    Thanks, Geri. ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 office +1 585 370 0847 mobile / text john.hoben1 Skype ------ ...

  • Posted in: Open Forum

    Hi all - please nominate people and orgs for these family caregiving awards! - geri https://www.caregiving.com/awards Caregiving Caregiving Visionary Awards 2020 - Caregiving.com Show your appreciation ...

  • Posted in: Open Forum

    Hi all,  I have come to know Moyez Jiwa, MD, a physician and researcher working in Melbourne, Australia, who publishes the Journal of Health Design (JHD). He also does the Health Design Podcast as a companion of sorts to the JHD.  Dr. Jiwa shared some ...

  • Posted in: Open Forum

    Congratulations Danny! I know you'll represent us well. It's interesting that a research institute doesn't include representatives from higher ed. Jay Spitulnik, PhD, CPT Associate Teaching Professor Director of Health Informatics ...

  • Posted in: Open Forum

    Janice, I just sent you an invitation to join the group. If you go to Facebook, you should be able to accept the invitation. Otherwise, anyone can send a request to join and then the administrators can approve it after checking to see if the person ...

  • Posted in: Open Forum

    Sara Welcome to SPM and thank you for your efforts in writing this book! What an accomplishment. The Informed Patient is a wonderful title. I am hoping you enjoy your colleagues and discussions here on connect and hopefully in person one day! Sincerely ...

  • Posted in: Open Forum

    Hi Victoria, Nice to "see" you again!  My thinking is no, SPM is not a member of NHC. NHC has a number of requirements for membership, including paying a significant fee and meeting all of its Standards of Excellence, two of which, I believe are an annual ...

  • Posted in: Open Forum

    Join tonight's #carechat on Twitter for a discussion on the intersection of caregiving & working with myself and other members: @Pete Wendel , @George Karavattuveetil & Olga Masevich & others. ​​ Sept 27 at 8pm CT / 9pm CT #CareChat ​​ ...

  • Posted in: Open Forum

    Thanks for letting us know about this. I read the Facebook blogpost, and looks like they are doing a number of things, such as archiving groups that no longer have an admin, flagging misinformation, limiting the extent to which Facebook recommends groups ...

  • Posted in: Open Forum

    Update to my recent post. According to the National Consumer Voice for Quality Long-Term Care, CMS just yesterday (9/17/2020) has amended the guidance for visitation in Nursing Homes. This is a great win for patient advocacy! I'll refer you ...

WELCOME.

We're glad you found us.

JOIN US!

 

The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

We encourage you to visit our SPM website, where you can learn much more about us, including:

 

Our active participatory medicine community based on the four CARE pillars of Communication, Advocacy, Research and Education. We would love to have you join us.

 

Members of the SPM Board.

Most Active Members (based on last 30 days)