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The Society for Participatory Medicine's (SPM) online community is here for its members, to enhance collaboration and to allow members to share with one another in their own personal journey of participatory medicine. 

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Latest Discussions

  • Posted in: Open Forum

    As someone who could use the travel grant more than ever to present research SPM helped us do, I'm very disappointed - but mainly I don't understand the reasoning if SPM is not hard up for funds. Now more than ever, since the pandemic people doing advocacy ...

  • Posted in: Open Forum

    I don't know if SPM wants to weigh in as an organization, but I am sure some of us share my concern about how much health data is collected, shared, sold and misused. It appears that the FTC is going to be looking into this. Here's a thread about it: ...

  • Posted in: Open Forum

    Viktor Montori is *always* worth listening to, IMO. https://empendium.com/mcmtextbook/interviews/perspective/303749,patient-centered-care-in-clinical-practice Peter ------------------------------ Every good deed is worth doing. Peter Elias Lifetime ...

  • Posted in: Open Forum

    Yes, thanks Peter. It also reinforces what Beth suggested: Get a copy of the medical record BEFORE you sign the AMA form. Brenda

  • Posted in: Open Forum

    Interesting article, Janice. I think the "guinea pig" factor is a big, big one in why patients can be reluctant to participate in research. Using patient data when that data is one point among hundreds or thousands is probably a lot less risky-feeling ...

  • Posted in: Open Forum

    Yes I have upcoming https://EmergencyMCG.com business in Boston. Would love to see you, Brenda, Danny, Danny and everyone. John __________________________________ John Hoben | hoben.john@gmail.com | +1 585 993 8265 office | +1 585 370 0847 ...

  • Posted in: Open Forum

    @Danny van Leeuwen I visited your Medium page. That's where I will keep up with your posts. Awesome that you did the Camino de Santiago. Beth​ ------------------------------ Beth Barnett, RN, BSN, PhD Lifetime Member Society for Participatory Medicine ...

  • Posted in: Open Forum

    Greetings SPM, I agree that connect is very underutilized. I often feel I am posting into a vacum as only one maybe two people respond to my threads and usually noone does. This does not appear participatory at all. Individuals who are better known or ...

  • Posted in: Open Forum

    Have been thinking about this essay some more, now that I've read it all. First, I stand by my statement that I loved it. I did. It's a great description of how our ideas about disease and health, and how we NAME those things, has changed in the last ...

  • Posted in: Open Forum

    First, I love the quote after your signature. :) Second, in general I hate EHRs, and the experience you had with yours is one reason why. Allow me to be a pessimist here and make a prediction: You will wind up having to fight with billing about charges ...

  • Posted in: Open Forum

    Before we blame the EHR (though I’m not a HUGE fan of it), perhaps we should ask…. Do the countries that outrank us in terms of health outcomes use EHRs or not? If they do use them, are the recording systems they use similar to or different from our ...

  • Posted in: Open Forum

    Hi Brad, I know Alan and Saul -- hoping to set up a webinar with them on their work/approach later this year. So will let you know when we have a date for that. in the mean time, they've added an intro video about it to help clinicians/providers learn ...

  • Posted in: Open Forum

    Sorry Geri, Not al 100% yet after my THR and some issues following. Been watching PCORI BOG meeting all morning too. I think you know I have been very involved with homelessness and SdoH issues for decades. I have served on Healthcare for the Homeless ...

  • Posted in: Open Forum

    I don't have any particular expertise in this area, but I believe even if you do not use the hospital's name, if it is reasonably identifiable that would be sufficient. In other words, identifiable by a "reasonable person." Marilyn ------------------------------ ...

  • Posted in: Open Forum

    Good blog. I would add to the advice given: take a look at the details of the study. Was the amount of the drug (or in this case, since it was their focus, vitamin) studied consistent with what has been believed (by its advocates) to be effective? Was ...

  • Posted in: Open Forum

    Sorry about the “not pacifist” comment. Here lately I’ve been extra-sensitive to being told that what I think or feel or experience isn’t REALLY what I think, feel, or experience — that someone else knows these things about me better than I do. I find ...

  • Posted in: Open Forum

    Hi Beth - here's a bit of tangential background from this recent "Potter Report" you might find of value: ---------- Forwarded message --------- Date: Wed, Jun 1, 2022 at 2:40 PM Subject: [hc-hackers] Fwd: The Potter Report 📝 To: Healthcare Benefits ...

  • Posted in: Open Forum

    Working to create patient education for 20+ years, I couldn't agree more. Not only do people want more info - we often don't cover key questions and meet their informational needs about everything from post-op depression to impact on their sex life, etc. ...

    1 person likes this.
  • Posted in: Open Forum

    Please find the link to the board agenda for the May meeting. Thanks, Mary https://drive.google.com/drive/folders/16vL_wF0LacGvYwckbrlVkqIlL9C6YyJ4 ------------------------------ mary hennings concord ma 978-369-2759 --------------------------- ...

  • Posted in: Open Forum

    Was this recorded for subsequent viewing? I was unable to attend due to a prior commitment. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family ...

  • Posted in: Open Forum

    Excellent op ed and question from Brenda.. ------------------------------ Rebecca Kirkland, MD Pittsboro NC ------------------------------

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    Article:

    Posted in: Open Forum

    This article is not from my mPTSD group, but very well could have been. It's about trusting the medical profession, and how it too often lets patients down by blaming their symptoms on their "poor choices" rather than doing any serious investigation of ...

    1 person likes this.
  • Posted in: Open Forum

    Honestly, there needs to be more cross-disciplinary training of ALL healthcare and mental health professionals. There's so much mutual knowledge that could be helpful to both sets of professionals that it's shameful that our academic institutions remain ...

    1 person likes this.
  • Posted in: Open Forum

    Such a wonderful, important point about the power of brief, silent seconds of time. I have had the experience, and been part of it in many manifestations, extending the notion of 'silence' into withholding information from family members under the guise ...

  • Posted in: Open Forum

    Thanks, John! ------------------------------ Michael Metzler Michael Metzler Consulting, LLC Medfield MA 5082642818 ------------------------------

  • Posted in: Open Forum

    @Geri Baumblatt Thank you for posting. Beth​ ------------------------------ Beth Barnett, RN, BSN, PhD Lifetime Member Society for Participatory Medicine ------------------------------

  • Posted in: Open Forum

    These are great articles, Marilyn. I admire his own resilience! Brenda

    1 person likes this.
  • Posted in: Open Forum

    Elizabeth, an oncologist who became a friend (an acquaintance through the autism community) told me several times that I was wrong to want to play a part in my own cancer treatment decisions. Wrong to expect to be anything more than a passenger on an ...

  • Posted in: Open Forum

    You’re right, Janice. There are ethics that medical providers are sworn to uphold. And all too often medical PTSD is created by the failure of doctors and nurses and techs to honor their vows. However, the sad truth is that sometimes medical, treatment-related ...

  • Posted in: Open Forum

    Thank you @John Grohol , both for your perceptive comment and your years of solid contributions. I agree that there are many reasons people will come and go (or stay but change their activity level) in a volunteer organization. In my own case, I came ...

  • Posted in: Open Forum

    Forgot to add this - which may be helpful for commenting: https://www.takemedicineback.org/call-to-action ------------------------------ Geri Lynn Baumblatt, MA Pnicipal, Articulations Consulting Cofounder, Difference Collaborative @DiffCollab Family ...

  • Posted in: Open Forum

    @mary hennings Mary, Thank you for sharing this article. I acquired the article from the public library and it is attached. I strongly agree with the writer about changing the standard language used in medicine -- this is a great idea, and it ties in ...

  • Posted in: Open Forum

    Thank you for sharing this experience with us. The act of asking her and gaining her cooperation is so important. There are so many facets to engagement. Beth ------------------------------ Beth Barnett, RN, BSN, PhD Lifetime Member Society for Participatory ...

  • Posted in: Open Forum

    I remember that presentation, Beth! Thanks for the reminder. All the best, Michael ------------------------------ Michael Millenson Health Quality Advisors LLC Highland Park IL 312-952-1075 ------------------------------

  • Posted in: Open Forum

    I actually want to create two learning modules. One is for medical professionals. I think that's where the most urgent need lies, at this point in time. The other, later down the line, is a learning module for people with mPTSD--people who are terrified ...

  • Posted in: Open Forum

    Looks good. I registered but am not sure I will get back from the Bill Koch Ski Festival in time. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician ...

  • Posted in: Open Forum

    Marge, @Marge Benham-Hutchins Thank you for sharing this article from Health Executive. I was reading this article with the idea that there might be a confluence of agendas here - patients want their own health records to be accurate for improved treatment. ...

  • Posted in: Open Forum

    Passing this along from WEGO Health... Connect With Leading Patient Leaders This Rare Disease Day This Rare Disease Day, we're sitting down with top rare disease patient leaders, Jenica Leah, Meridith O' Connor, and Jessica ...

  • Posted in: Open Forum

    Correct. One cannot transform a file uploaded to a library in HigherLogic - or in most of the forum technologies I've used - into a discussion post. The two options generally are: Upload a file to a library or other document repository and then post ...

  • Posted in: Open Forum

    Thank you Beth I appreciate you taking the time to respond. Evidently other S4PMrs were not very interested. An interesting point or aftermath fall out about the Health Affairs 'Race and Health' virtual summit is that they are not allowed to promote ...

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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