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The Society for Participatory Medicine's (SPM) online community is here for its members, to enhance collaboration and to allow members to share with one another in their own personal journey of participatory medicine. 

Some forums and discussions are visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic is only available SPM members. (If you are a member and see this screen, it means you are not logged in.)

We hope you will look around, like what you see, and become a member of the Society for Participatory Medicine. Not a member? Join us today!

Latest Discussions

  • Posted in: Open Forum

    The Incidental Economist (TIE) has a recent short column about the problems of overdiagnosis and overtreatment. It starts the discussion with anecdotes of medical professionals having this happen to them. The conclusion is four simple things patients ...

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    RE: Why SPM?

    Posted in: Open Forum

    Following up on this by @Robert Becker : "Coming back to the question of what unites stakeholders, the best answer may also be what motivates them, fires them up, glues them together. The lofty idea that is supposed to do it for us probably doesn't. ...

  • Posted in: Open Forum

    I hope I am not misunderstood.  I am a zealous advocate for recognizing the value of the long tail, the quiet 80% in the Pareto distribution, the lurkers. That's why I so often raise the issue of how SPM needs to find ways to hear them, understand them, ...

  • Posted in: Open Forum

    Jay-Great!  Your student did an excellent job of summarizing the impact and value of secure messaging and health apps in the context of the Manifesto.  There are follow-up questions to explore, I think, like why do ~95% of secure messages emanate from ...

  • Posted in: Open Forum

    Rebecca Kirkland 9:33 AM (5 minutes ago) to DoNotReply This is a very interesting discussion ...

    1 person likes this.
  • Posted in: Open Forum

    Physicians not trusting the patient’s expertise, even when the patient is medically trained, is not that uncommon. Chrystal Lewis, an RN and academic, has a rare genetic condition that it took her doctors a long time to recognize for what it was and ...

  • Posted in: Open Forum

    I can't image what could possibly go wrong....arrrgh. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 576-0716 ...

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    RE: Picking a PCP

    Posted in: Open Forum

    Peter, thanks for the link to the article. It’s quite good. :) Tapping into the wisdom/knowledge of the people on staff who may have worked with a given physician is a great point to make. I did that when I needed to consult with an ENT. I asked the ...

  • Posted in: Open Forum

    It appears that this problem has been resolved. Thank you. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 576-0716 ...

  • Posted in: Open Forum

    Thank you for this update. I hope we can look forward to some regular posts here on Connect from these active working groups. In addition to keeping us updated, it might generate suggestions and volunteers. There is some inconsistent information on that ...

  • Posted in: Open Forum

    The Society for Participatory Medicine community is invited and encouraged to join us for our next SPM Town Hall, scheduled for Thursday, April 29th from 6:00 PM - 7:00 PM (EST). For those unable to attend, a recording of the meeting will be posted to ...

    1 person likes this.
  • Posted in: Open Forum

    Hi Peter, Thanks for your patience and my apologies for the delay. Click here to be linked to the recording of the SPM Town Hall - March, 2021 In the future, I will endeavor to have the recording link posted as soon as it is made available.  Regards,  ...

  • Posted in: Open Forum

    SPM colleagues, together with collaborators at the National Library of Medicine I am coediting a book on online misinformation in medicine.  It will be published by Rowman & Littlefield and the Medical Library Association.  I'm attaching a Call for Chapters. ...

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    Navigation support

    Posted in: Open Forum

    There's a lot of useful information in this article by  by Christina Farr. As a retired PCP and health advocate/navigator for family and friends, though, I loved this sentence: "But the experts I spoke to agreed that tech is no replacement for human ...

  • Posted in: Open Forum

    I'm glad it worked. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME ------------------------------

  • Posted in: Open Forum

    Hi Board-Please find the board materials for our next meeting.  Please note.  I'm asking you to please review a 15 minute Ted Talk by Simon Sinek that discusses the need for organizations to clarify the "why" of what they do.  We'll be discussing that ...

  • Posted in: Open Forum

    TOMORROW APRIL 20th: Supporting patients and family caregivers between visits improves care transitions. Join 2 SPM members: CEO Eran Kabakov , PT & Chief Engagement Officer, Geri Lynn Baumblatt , MA for the: National Transitions of Care Coalition ...

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    Newsletter

    Posted in: Open Forum

    Thanks for the fine newsletter . It's exciting to see the energy and activity: the inaugural edition of the Participatorian, resumption of Town Halls, and the conversation about conversations. ------------------------------ Every good deed is worth ...

  • Posted in: Open Forum

    Ahhh.... I see.  I have to agree: when you have a good relationship with a doctor already, it's easier to roll with it when snafus happen. ------------------------------ Brenda Denzler MedicalPTSD.com Pittsboro NC 919-418-0628 ---------------------- ...

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    SPM and HIMSS21

    Posted in: Open Forum

    HIMSS21 Global Health Conference & Exhibition  August 9-13, 2021 | Las Vegas, NV  HIMSS Global Health Conference & Exhibition (held August 9–13, 2021 virtually and in Las Vegas) brings you the world-class education, cutting-edge products and solutions, ...

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    Patient registries

    Posted in: Open Forum

    Hi all Is there anyone here who is interested in patient registries? My daughter died from rare disease 4 years ago and since I also have professional experience in data analysis I have been trying to help with some patient registry efforts. I'd be interested ...

  • Posted in: Open Forum

    I signed up. I had to assume it was a virtual meeting, as in-person meetings are still very few and far between and tend to involve only folks who are already local.  Once, during cancer treatment, when I was in the midst of a raging Code Red PTSD attack ...

    1 person likes this.
  • Posted in: Open Forum

    You are cordially invited to join the Linnea Olson Hackathon, which is meeting online on Fridays at noon Eastern. The sessions will be recorded if you are interested but have a conflict. Linnea is a charismatic lung cancer patient who has been ...

  • Posted in: Open Forum

    This is an excellent piece, Geri!  I appreciated hearing the information about how technology can help in this situation - that removing human judgement from the question about symptoms of depression or anxiety allows people to feel more comfortable disclosing ...

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    RE: New Book

    Posted in: Open Forum

    Hi Lisa. Thank you for mentioning The Informed Patient in this thread, I have read it. It's a paragon of health literacy! Moreover it's genteel, like a tour guide at Gettysburg.  I wish the book had room for a section on health insurance, the front door ...

  • Posted in: Open Forum

    I must apologize. I didn't realize that there was a geo restriction until they mentioned it during the discussion of the film. If I had known, I would have only sent the email announcement to my DC area subscribers. They did mention that they are showing ...

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    March Board materials

    Posted in: Open Forum

    https://docs.google.com/spreadsheets/d/1p9aTCZIsD2aLbSt-K1JXkv5sLdrmpu8U/edit#gid=2081922927 Google Docs 3.23.21 agenda.xlsx Sheet1 Society for Participatory Medicine Board Meeting 3/23/2021 6-7:30pm ET Board ...

  • Posted in: Open Forum

    I read Christakis's Connected. The premise of the book is both illuminating and eerie. That people are strongly influenced by their position in a social network, more than they are by personal contact with individuals. I could say, for example, that many ...

    1 person likes this.
  • Posted in: Open Forum

    @John Grohol - I'll continue to moderate on a volunteer basis.​ ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 ...

  • Posted in: Open Forum

    This is a very positive step. Thank you for the hard work and dedication. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ...

  • Posted in: Open Forum

    If anyone wants to access the free recording of this Athena Forum presentation and discussion on patient engagement and education that @Eran Kabakov and I participated in, it's now available here along with many other great past webinars:  https://athenaforum.net/cv_issues/ ...

  • Posted in: Open Forum

    A Year in America's First COVID Epicenter | The New Yorker A Year in America's First COVID Epicenter James Ross Gardner Twelve months after Seattle suffered the first reported coronavirus death in the ...

  • Posted in: Open Forum

    Change of pace.  Learn from the clowns. Embrace failure, take a deep breath, laugh, cry, engage. Revisit chat with Jason Stewart from Laughter League at Boston Children's.Hospital. Listen here https://www.health-hats.com/pod114/ ------------------------------ ...

    1 person likes this.
  • Posted in: Open Forum

    A quick heads-up:   At 9 ET this blog post will go live. I haven't been involved in the project per se, but as it says, this is a major campaign for SPM this year, so please please circulate to your communities! UPDATE: it's live: https://participatorymedicine.org/epatients/2021/03/shake-up-the-system-sign-and-share-the-participatory-medicine-manifesto.html ...

  • Posted in: Open Forum

    Good Evening, fellow SPM-ers :) I hope everyone remains safe and healthy.  Over the next few weeks, I will be updating our @S4PM twitter lists, and would like to particularly focus on "SPM Members on Twitter." If you don't know what a Twitter list is ...

    1 person likes this.
  • Posted in: Open Forum

    The Society for Participatory Medicine has once again added its voice to a letter endorsing an AHRQ seeking more research on some of the most critical health system issues raised by COVID-19.  We are in good company. The are 118 signatories that include ...

  • Posted in: Open Forum

    https://docs.google.com/spreadsheets/d/1V2Mcqhvf9S98bAIK1UvBPa8ks75Obf8O/edit#gid=1741809881 Google Docs 2.23.21 agenda.xlsx Sheet1 Society for Participatory Medicine Board Meeting 2/23/2021 6-7:30pm ET Board ...

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    RE: VAERS

    Posted in: Open Forum

    No, VAERS is not a reliable source of informatiion about COVID vaccine side effects. VAERS is a list of reported events that occur after a vaccination. It does not attempt to determine causality. ------------------------------ Every good deed is worth ...

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    RE: Storytelling

    Posted in: Open Forum

    I edit for a number of science-y types who have the added disadvantage of having English as their second language. Thus, most of what they read in English, and thus how they learn the nuances of English, is via science writing in their specific fields. ...

  • Posted in: Open Forum

    Yesterday's Wall Street Journal had a great article about how patients are taking the lead in research regarding COVID-19. Click below for a link to the article. Covid-19 Patients Are Doing Their Own Research ------------------------------ ...

    2 people like this.

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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