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These forums and libraries are the platforms SPM uses to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to members. We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join

Latest Discussions

  • Posted in: Open Forum

    We had another great Virtual Town Hall this evening and I thank those who joined us. Innovation and creativity are more often found at the margins than at the hub. Our Town Halls are good examples and tonight was a great example. Lots of enthusiasm and ...

  • Posted in: Open Forum

    Thanks for sharing! The interesting (puzzling) thing about this article is that it makes no mention of the FTC guidelines that patient influencers are required to follow which requires them to disclose any financial relationship that is associated with ...

  • Posted in: Open Forum

    On October 24, we had the privilege of having Joe Ternullo speak at a New England HIMSS Student Networking Event. Joe spoke about the role of health informatics in participatory medicine, and he gave me permission to share a recording of his presentation ...

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    RE: HIMSS2019

    Posted in: Open Forum

    HI Danny, That is extremely helpful - thank you so much! I will look into Connected Health. Was supposed to attend Health 2.0 in September to speak but had to pull out due to a family issue last minute but hope to go this coming year. Thanks again, ...

  • Posted in: Open Forum

    Thank you. This is extremely helpful. Peter ------Original Message------ Hi John and Moses, John, I did text you offline. Good question about  strengths and weaknesses I experienced beyond speed to market as a strength for the Amazon platform and/or ...

  • Posted in: Open Forum

    Welcome, Fred!  'Tis good having you in our midst. What do you hope to achieve with SPM membership? ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

  • Posted in: Open Forum

    My problem with single payer is that it does not go far enough.  For profit hospitals and clinics as well as big pharma will still be running the show which means our tax dollars will be subsidizing private corporations.  We need to take the healthcare ...

  • Posted in: Open Forum

    Be sure to address not just prostate cancer related deaths but all-cause mortality.  I have an intervention that is 100% effective at preventing deaths from prostate cancer: kill the patient the instant the diagnosis is made. No more deaths from prostate ...

  • Posted in: Open Forum

    I went to the site and tried the patient engagement measurement tool. I scored a 69-"activated, confident." I would have scored higher if I'd chosen to answer a couple of questions differently, I'm sure. But I couldn't. They struck me as being ...

  • Posted in: Open Forum

    SPM members (particularly those in the USA) may find this large scale disparity a good framework for solution cooperation. Market driven reform that makes universal insurance coverage tertiary to the patient+physician+clinician+health professional+layperson ...

  • Posted in: Open Forum

    What's everyone's thoughts on this platform called Medmij (corrected to one “j” - cannot edit the title spelling) for developing patient-centric apps?  (Hat tip to @Dave deBronkart for this tidbit - what do you think, @Brennen Hodge ?  https://twitter.com/herkocoomans/status/1062696701176307719?s=21 ...

  • Posted in: Open Forum

    In the last 5 years I have led my place of worship through the Sunday School department which I head to provide free Community drainage fumigation to eliminate mostly mosquitoes that causes malaria and to also provide free medical check, drugs and counselling. ...

  • Posted in: Open Forum

    Thanks Melanie and John for bringing this to our attention.  I'll check it out and see if it might be a good fit.  Best to you all. Jim Skinner ------------------------------ James Skinner Smart Patient Academy New Braunfels TX 8888224770 --------- ...

  • Posted in: Open Forum

    Check out my conversation with Joyce Lee on design thinking in healthcare, hacking the EHR and improving diabetes care. (Audio plays 3x/day. 5 days/wk for 2 weeks then rolls over into podcast archive. Podcast will be embedded in blog post linked below ...

  • Posted in: Open Forum

    Hi Jamie! I looked at the About page  https://salemoaks.com/about/ ... I don't see anything there about any newly published e-learning - what am I missing?  Glad to have you with us! ------------------------------ Dave deBronkart SPM Board & e-Patient ...

  • Posted in: Open Forum

    It's that time again! We will be having our regular bi-monthly Virtual Town Hall meeting. When:  Tuesday, November 20th, 2018 from 7:00 pm to 8:00 pm ET (the third Tuesday of odd-numbered months). Where:  Online with two options for participation: ...

  • Posted in: Open Forum

    Geri, this is an amazing story about the power - and effectiveness - of caregivers contributing to care.  Attaching the paper here, since it is open access.. I hope they are doing a prospective study, and including other outcomes; PCORI would love if ...

  • Posted in: Open Forum

    Hi Dave, You made me laugh about the JAMA. On  a related note, I just wrote a book on the waiting experience and I was trying to submit a potential blog to Participatory Medicine and a number of the links are broken. You seem pretty engaged in the community ...

  • Posted in: Open Forum

    Yes, it's not always published where you might think or labeled as a patient engagement study. For example, the studies I was involved in were often published in GI journals. I believe that Stan Hudson did some work on the health literacy side to collect. ...

  • Posted in: Open Forum

    Love this Google service. Regular updates on fellow SPM member @Talya Miron-Shatz and anyone you want to follow. ​ ---------- Forwarded message --------- From:   Google Scholar Alerts   <scholaralerts-noreply@google.com> Date: Thu, Nov 1, ...

  • Posted in: Open Forum

    Yes, great news, Talya!  When I've worked with pharma (or anyone else for that matter) I've found that a significant source of disconnect can be lack of coherent definition(s) of what they MEAN by patient engagement.  This leads to all KINDS of misunderstandings, ...

  • Posted in: Open Forum

    Thanks to @Cathy Bandy for posting about this in our Lounge section.  I want to spotlight it here in Open Forum, but I'll "lock" this message to direct any further discussion to her original thread over there .  (Click that link, to discuss) ___________ ...

  • Posted in: Open Forum

    Someone recently shared this with me and I thought I'd share it with the group. I don't know anything more than what you see below. Note: Deadline is Nov 15. === The Building Healthcare Collectives Project team is delighted to announce our newly launched ...

  • Posted in: Open Forum

    Thanks Ellen and Dave for the clarification. I will apply and see what happens. I was not actually looking for an SMP endorsement but simply some level of insight into how the process is weighted and the value of making the effort. You all have answered ...

  • Posted in: Open Forum

    Dave, thank you! I will post it to the SPM blog. Much appreciated. Mark VanderKlipp Founding Partner, Connect_CX (231) 631-5107 www.connect-cx.com linkedin | twitter | instagram | facebook Memberships: ...

  • Posted in: Open Forum

    @Marilyn Mann and I were among the authors of the recent Yale paper  in JAMA Network Open that's gotten so much publicity recently about the difficulty of getting accurate information on retrieving one's records. @Regina Holliday was in the NBC ...

  • Posted in: Open Forum

    (I have often referred to patients as "the ultimate stakeholder"... "After all, who has more AT STAKE (the definition of a stakeholder) in how well healthcare works, than the patient??" ------------------------------ Dave deBronkart SPM Board & e-Patient ...

  • Posted in: Open Forum

    I'm on the steering committee for the 2019 edition of Health Datapalooza, which will be the 10th year of the event. Last year, they went for PatientsIncluded with some help from PCORI. I'm looking to crowdsource some ideas on who might be a good ask to ...

  • Posted in: Open Forum

    Hello SPM!  A colleague from Wolters Kluwer is looking for people to interview - see the information below.  Please contact her at danette.somers@wolterskluwer.com if you're interested in participating, and please feel free to forward to others.  Thank ...

  • Posted in: Open Forum

    I'm relatively new here, so forgive me if this has been discussed before. NQF published a playbook for shared decision making earlier this year.  (A summary of the NQP Playbook™    is here - the playbook itself is $100.) The playbook is organization ...

  • Posted in: Open Forum

    Yes, @Talya Miron-Shatz - thank you for the reality check reminder on perspective. Well said. Point taken.  Hope you have a wonderfully blessed day/week/year/life. Looking forward to meeting you in person (or at least in real time via Zoom) this side ...

  • Posted in: Open Forum

    https://www.eventbrite.com/e/nov-7-chicago-participatory-medicine-meetup-tickets-51337352403?ref=eios&aff=eios Eventbrite Nov. 7 Chicago Participatory Medicine Meetup! Our next Chicago SPM meetup is set ...

  • Posted in: Open Forum

    Thanks Wheezy! Easiest way to do this is post a URL to a tweet or FB post so people can click and reshare. Got some handy? I'm on the fly, will try later if nobody else does ... ------Original Message------ Hello all! If any of you are ...

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    Social Media!

    Posted in: Open Forum

    Hello all! If any of you are active on social media, now is the time to do our final push for registration for our annual conference! If you follow SPM on twitter, facebook, linkedin, youtube, etc, please cross-post and share with your audiences and ...

  • Posted in: Open Forum

    Jim, this additional material looks fantastic. It was delightful catching up with you by phone Friday. Looking forward to seeing you in Texas the next time I'm in the Houston area. John ------------------------------ John Hoben Lifetime Member Society ...

  • Posted in: Open Forum

    Can someone please write a few lines about the last town hall meeting for the Newsletter?  I need it by the end of next week. 10/19.  Thanks ------------------------------ Danny van Leeuwen Health Hats www.health-hats.com @healthhats -------------- ...

  • Posted in: Open Forum

    Most of us won't be surprised by the results of this survey by JAMA re difficulties in getting medical records from hospitals in a timely manner.  The story is so relevant to the SPM conference -- and a topic to consider for the manifesto to be created ...

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    Password reset failure

    Posted in: Open Forum

    We have (at least) one member reporting that their credentials for logging in do not work, forcing them to reset their password, but that the next time they login they have to reset their password AGAIN. And again the next time. Wash, rinse, repeat. ...

  • Posted in: Open Forum

    Please please - click the social media links and RT / re-share them.  It takes literally just 2 clicks and really amplifies awareness of our event. We've got this process down to a science now, and next year we'll want to start it much earlier, but even ...

  • Posted in: Open Forum

    Hi Erin, I'm really biased, since I used to work on the Google Hotels product, but... you might want to try that option :).  Just go to Google, search for " Boston hotels ," and then click "View [xxx] hotels." If you're a Google One member, you'll ...

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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Our active participatory medicine community based on the four CARE pillars of Communication, Advocacy, Research and Education. We would love to have you join us.

 

Joseph Ternullo (President)
Susan Woods (President-Elect)
Jonathan Wald (Past President)
John Grohol (Treasurer)
Nancy Finn (Secretary)
Peter Elias (Member-at-Large)
Tracy Zervakis (Member-at-Large)
Danny Sands (Board Chair)
Sarah Krüg (Acting Executive Director)
Mandi Bishop
Kyra Bobinet
Donna Cryer (on leave)
Judy Danielson
Dave deBronkart
Joe and Terry Graedon, (Co-Editors of JoPM, members ex-officio)
John Hoben
Bruno Nardone
Jane Sarasohn-Kahn (on leave)
Charlie Smith (Editor of JoPM, member ex-officio)
Kenneth P. Yale

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