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Greetings S4PM These days we are all virtually connecting more. We need to remember to use artificial tears for better eye health, take a screen break, get some fresh air and exercise as well as eat right. I expect for most of us on S4PM virtual meetings ...

This is a very interesting article.  Although the study was done two years ago, the results highlight a lot of issues that we are seeing play out in the face of COVID-19.  It feels like a call to action.  Here are a few things that I think SPM might be ...

The Weather Channel has a COVID-19 page that will break it down to the county level for you, so that you can track cases and deaths for your immediate area, as well as by state and larger governmental units. Brenda ------Original Message------ Our ...

Catherine @Catherine Smith NEW TOPIC:  SPM's role in the dissemination of valid health information I think that you have raised a point that is relevant to the role of an organization such as the Society for Participatory Medicine What you wrote: ...

I don't know how to respond to this question. It has been addressed often in recent reporting. For one thing, there was a pandemic playbook developed byt the NSC in 2016 that apparently was ignored - as reported by Politico, Business Insider, KSC, Kaiser ...

@Dave deBronkart Thank you Dave for bringing up this topic. I have been preparing for what to do to manage the symptoms. You know,  a lot of us are going to be home feeling sick and will want to tackle the symptoms. I am a little frustrated that ...

"until we know how to read these bills we will be at the mercy of a medical system" The quote ("until we learn how to read") seems to beckon the angel of health literacy. I may have previously mentioned my own experience in this regard. I recently ...

@Eran Kabakov is doing 15 minute demo webinars every day this week as well​​:  Daily, 15 minutes, introduction webinars 3/23-27 12pm EST https://bit.ly/2UaDcRj ------------------------------ Geri Lynn Baumblatt, MA Pnicipal, Articulations Consulting ...

Sorry if this has been discussed already. I just received this email from Quest regarding my son's lab results. Seems if I pay cash for a lab test directly to Quest, I can see the results online the moment they are ready. If my doctor orders a lab test, ...

In participatory medicine fashion, here's a resource on the British Medical Journal (BMJ) best practices website tracking emerging treatments (and other pertinent data) for COVID-19:  https://bestpractice.bmj.com/ topics/en-gb/3000168/ emergingtxs ...

Dear fellow board members, I hope everyone is staying safe from COVID-19 and maintaining outside connections. To assist with that, and in case you haven't had enough Zoom conferences, we have our board meeting Tuesday 3/24 at 6pm. The agenda is here ...

Beth, What about a third option? Is it possible for some/much/all of the observations typically done in the hospital for possible stroke patients to be done BY the patients, themselves, or their caregivers? How complex are these observations? Would ...

Brenda @Brenda Denzler , I think your intra-operative notes are covered by this item in Dave's message A vastly expanded set of data will now be the default data set, including Open Notes.  It's not explicitly mentioned as "OpenNotes" but all the ...

So very hard to speak up to providers we are so heavily dependent on.  What a great role model, and inspiration to do so anyway.  Thanks for sharing. ------------------------------ Sandy Rose Madbury NH ------------------------------

Hi All (I originally posted this in the Research forum, but Dave suggested I also post it here). Colleagues and I have just published a paper in the JMIR (open access) on Surgeons' interactions with and attitudes toward e-patients in Germany and Oman. ...

I know, right?! It was crazy! We were trending today, a day later. We are still crazy popular!! And we made a ton of new friends. Traffic on the site nearly DOUBLED yesterday. So excited!! Jeanne Pinder Founder, CEO, ...

Cool opportunity: Robert Wood Johnson Foundation is supporting a convening of patients/advocates who will learn from each other. A convening for patients, by patients (and care partners). We call it " Convening the Center ."  Who can attend? ...

We do a lot of translation of patient facing materials for deployment in different countries, and need to get text approved by ethics committees and IRBs.   We never rely on an automated translation tool for anything that goes in front of a patient.  ...

Thanks @Beth Barnett !  THCB just posted my take on the Cures regulations. It's based on SPM's work and features the the video by @Dave deBronkart and Morgan. https://thehealthcareblog.com/blog/2020/03/11/a-patients-view-of-the-cures-regulations/ ...

I would like to add the cost of dental care in the United States to the topic of unethical pricing. ------------------------------ Beth Barnett, RN, BSN, PhD Lifetime Member Society for Participatory Medicine ------------------------------

I just got this info in about Belk's book: Hello again everyone! My book The Great American Healthcare Scam: How Kickbacks, Collusion and Propaganda Have Exploded Healthcare Costs in the United States is now available for ...

Adult patients, caregivers and clinicians can find evidence based community programs (usually free at this site. http://www.eblcprograms.org/evidence-based/map-of-programs/   These programs have all been vetted by the Administration for Community Living ...

Thanks, I will try that. ------------------------------ Marilyn Mann Kensington, Maryland @MarilynMann (301) 520-5488 ------------------------------

Please reply privately to Nahed directly at their email address below if interested in this opportunity. Thanks! ---------- Forwarded message --------- From: Nahed < nkhairy@naphse.org > Date: Thu, Mar 5, 2020 at 2:16 PM Subject: inquiry ...

@Heather Kho I don't have any resources to offer. I have empathy for what they are going through because of my daughters' experiences. It has also sensitized me to other patients' needs as well, whether or not they are AYA. For example, I always discuss ...

The AMA just published the ultimate guide to patient right of access. Our plain email point is clearly supported on page 23. http://go.politicoemail.com/?qs=a56214e30b03c3f6009138a04e8ce5c7e6573485e6f77a2ed6de00a8aaaf4ef0d158df8d3d08a0280c995baced8545f9 ...

In addition to being limited, their Search function depends on their back-end indexing process which (based on conversations I hve followed in the HUG support group) has some serious issues. ------------------------------ The chief cause of problems ...

We no longer have anyone actively adminstering or moderating the discussions on Connect. That means it is up to users to remember that a new topic requires a new thread. Please don't 'hijack' a thread about a subject by starting a discussion of something ...

Yes we welcome board observers. Please make sure you identify yourself on the call/video. https://zoom.us/j/4373789884 FYI the agenda has changed because the final report for survey won't be available for another few weeks. We have a packed agenda tonight. ...

Ofri and Rosenthal remind me of Matt Taibbi's description of Goldman Sachs in Rolling Stone Magazine : "The world's most powerful investment bank is a great vampire squid wrapped around the face of humanity, relentlessly jamming its blood funnel into ...

Maybe Adrian. But only if you view the patient portal as a way to access your medical record information. In fact there is much more to a portal than that, including secure communications with one's healthcare team and convenience transactions, such as ...

The journal BMJ Quality & Safety just notified me that they printed a letter of mine that appeared online (without my knowing it) in May, 2019. OK, less a letter than a semi-sarcastic email responding to an article on differences in patient experience ...

You may be interested in this proposal for a patient bill of rights for cancer patients that I received from Len Barry. 10 Principles for a Cancer Patient's Bill of Rights Risk reduction Patients have the right to be educated about opportunities ...

A number of discussion groups were formed to function as workplaces for specific tasks. Some of these were for projects largely at a Board level, such as advocacy, audit, governance, marketing, membership, organizations partnerships, and travel fund. ...

Hi All I agree that this is a good ruling, but there must also be an understanding about the provider's position. They should be allowed to charge, and sometimes for the complete procedure .  To do something even simple like an x-ray requires ...

Hi Bob,  It sounds like @Eran Kabakov is going to head up hosting the SPM table as he lives in Florida & the conference is in Orlando this year: April 20-22. More info about the conf is here: https://www.theberylinstitute.org/page/CONF2020_OVERVIEW ...

Why I Hate Marriage Proposals: It Has to Do with Medicine Follow the link to my Psychology Today post. I'm sending it out today as it's more of an #antivalentines ​​gift. ------------------------------ Talya Miron-Shatz, PhD. Center for Medical Decision ...

Unfortunately I am unable to attend this year... :( I was hoping to gather info from every vendor I could visit (not sure I could get them all :) -- and ask them how many of them had a formal "patient advisor/partners" on their boards/exec teams/office ...

Thanks for following up. Peter ____________________________ Peter Elias Certified Green Dot instructor ------Original Message------ The survey will not be distributed immediately.  We are awaiting a summary report that ...

I do think there is an issue regarding the privacy and security of data downloaded to apps, and I think that blocking this option limits the opportunity to see novel information services offered via apps that can access health information from EHRs.  ...