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The Society for Participatory Medicine's (SPM) online community is here for its members, to enhance collaboration and to allow members to share with one another in their own personal journey of participatory medicine. 

Some forums and discussions are visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic is only available SPM members. (If you are a member and see this screen, it means you are not logged in.)

We hope you will look around, like what you see, and become a member of the Society for Participatory Medicine. Not a member? Join us today!

Latest Discussions

  • Posted in: Open Forum

    While I can't speak for the board, I can pretty assuredly say that the board has never placed ultimatums on our membership and we understand that people come to the Society for a multitude of reasons, looking to get sometimes very different things from ...

  • Posted in: Open Forum

    Over the past several months a search committee made up of SPM board members has worked to develop a job description and recruit prospective candidates to fill the role of Executive Director for SPM. This individual will work with the board to refine ...

    1 person likes this.
  • Posted in: Open Forum

    I read her book some time ago. Her #2 point about American health care is right in line with what the alt-med folks say about cancer: they don’t want to cure it, because it’s too lucrative. This added a layer of trouble to my being able to feel comfortable ...

  • Posted in: Open Forum

    Just received this - and given the recent town hall & this community, thought it may be of interest: We invite you to CHI's Virtual Education Series: Culturally-Competent Strategies to Address Vaccine Hesitancy in Communities of Color.   ...

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    RE: Storytelling

    Posted in: Open Forum

    I have read Ship Fever based on Peter's recommendation. Beautifully written collection of short stories. The longest is the title story, about Irish immigrants in Canada during the Great Famine in the 1840s. After nearly starving to death in their native ...

    1 person likes this.
  • Posted in: Open Forum

    One of the topics we discussed at some lengths was the impact of politicizing medical and public health issues. COVID, masks, COVID vaccines, the HPV vaccine (in contrast to the Hepatitis B vaccine released at about the same time) were examples. This ...

    1 person likes this.
  • Posted in: Open Forum

    During my time on the Board as Member-at-Large, I did this informally on my own, not as part of official Board work.  I had access to the back end of Wild Apricot so I was able to generate a simple report of lapsed members once a month. Most months the ...

    1 person likes this.
  • Posted in: Open Forum

    https://docs.google.com/spreadsheets/d/1wCVf3yM2ZTjtQv5O_YeikyTJDAtAV7Qo/edit#gid=89154888 ------------------------------ mary hennings concord ma 978-369-2759 ------------------------------

  • Posted in: Open Forum

    @Amber Soucy , Thank you for that very thorough and helpful response. In reading your response to my question, that I need to be more transparent in my point of view. I am one of the voices that is concerned about the state of healthcare -- I am concerned ...

  • Posted in: Open Forum

    Thanks so much! I responded by PM with some contact info. ------------------------------ Marge Benham-Hutchins PhD, RN Lifetime Member Chair Department of Biobehavioral Nursing Science and Associate Professor College of Nursing and Health Sciences Texas ...

  • Posted in: Open Forum

    This is a complex and very important topic. Hesitancy is a pretty limited framing. Both intuition and the data (such as it is) suggest that accessibility, logistics, and mundane issues of living are at least as big an issue as hesitancy. One real example ...

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    RE: Why SPM?

    Posted in: Open Forum

    The Second Wave feminists had a saying: the personal is political. To a large extent, I think that’s correct. So I think what we’re discussing is “political” in the non-partisan sense of that word. I need to get that book. As more of us are living longer, ...

  • Posted in: Open Forum

    Free Webinar on May 19: How peer/behavioral modeling videos can help people w/ conditions like heart failure  gain understanding,  build confidence & self-efficacy with Dr. Peter Orton, who studied under Albert Bandura (creator of social modeling ...

  • Posted in: Open Forum

    There's no doubt that health information is more widely available these days, but how useful is the information? Most of it is written, much of it is written in medical or scientific jargon that untutored patients don't understand. The average American ...

  • Posted in: Open Forum

    The Incidental Economist (TIE) has a recent short column about the problems of overdiagnosis and overtreatment. It starts the discussion with anecdotes of medical professionals having this happen to them. The conclusion is four simple things patients ...

  • Posted in: Open Forum

    I hope I am not misunderstood.  I am a zealous advocate for recognizing the value of the long tail, the quiet 80% in the Pareto distribution, the lurkers. That's why I so often raise the issue of how SPM needs to find ways to hear them, understand them, ...

  • Posted in: Open Forum

    Jay-Great!  Your student did an excellent job of summarizing the impact and value of secure messaging and health apps in the context of the Manifesto.  There are follow-up questions to explore, I think, like why do ~95% of secure messages emanate from ...

  • Posted in: Open Forum

    Rebecca Kirkland 9:33 AM (5 minutes ago) to DoNotReply This is a very interesting discussion ...

    1 person likes this.
  • Posted in: Open Forum

    Physicians not trusting the patient’s expertise, even when the patient is medically trained, is not that uncommon. Chrystal Lewis, an RN and academic, has a rare genetic condition that it took her doctors a long time to recognize for what it was and ...

  • Posted in: Open Forum

    I can't image what could possibly go wrong....arrrgh. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 576-0716 ...

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    RE: Picking a PCP

    Posted in: Open Forum

    Peter, thanks for the link to the article. It’s quite good. :) Tapping into the wisdom/knowledge of the people on staff who may have worked with a given physician is a great point to make. I did that when I needed to consult with an ENT. I asked the ...

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    RE: Email befuddlement

    Posted in: Open Forum

    It appears that this problem has been resolved. Thank you. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 576-0716 ...

  • Posted in: Open Forum

    Thank you for this update. I hope we can look forward to some regular posts here on Connect from these active working groups. In addition to keeping us updated, it might generate suggestions and volunteers. There is some inconsistent information on that ...

  • Posted in: Open Forum

    The Society for Participatory Medicine community is invited and encouraged to join us for our next SPM Town Hall, scheduled for Thursday, April 29th from 6:00 PM - 7:00 PM (EST). For those unable to attend, a recording of the meeting will be posted to ...

    1 person likes this.
  • Posted in: Open Forum

    Hi Peter, Thanks for your patience and my apologies for the delay. Click here to be linked to the recording of the SPM Town Hall - March, 2021 In the future, I will endeavor to have the recording link posted as soon as it is made available.  Regards,  ...

  • Posted in: Open Forum

    SPM colleagues, together with collaborators at the National Library of Medicine I am coediting a book on online misinformation in medicine.  It will be published by Rowman & Littlefield and the Medical Library Association.  I'm attaching a Call for Chapters. ...

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    Navigation support

    Posted in: Open Forum

    There's a lot of useful information in this article by  by Christina Farr. As a retired PCP and health advocate/navigator for family and friends, though, I loved this sentence: "But the experts I spoke to agreed that tech is no replacement for human ...

  • Posted in: Open Forum

    I'm glad it worked. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME ------------------------------

  • Profile Picture

    April board materials

    Posted in: Open Forum

    Hi Board-Please find the board materials for our next meeting.  Please note.  I'm asking you to please review a 15 minute Ted Talk by Simon Sinek that discusses the need for organizations to clarify the "why" of what they do.  We'll be discussing that ...

  • Posted in: Open Forum

    TOMORROW APRIL 20th: Supporting patients and family caregivers between visits improves care transitions. Join 2 SPM members: CEO Eran Kabakov , PT & Chief Engagement Officer, Geri Lynn Baumblatt , MA for the: National Transitions of Care Coalition ...

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    Newsletter

    Posted in: Open Forum

    Thanks for the fine newsletter . It's exciting to see the energy and activity: the inaugural edition of the Participatorian, resumption of Town Halls, and the conversation about conversations. ------------------------------ Every good deed is worth ...

  • Posted in: Open Forum

    Ahhh.... I see.  I have to agree: when you have a good relationship with a doctor already, it's easier to roll with it when snafus happen. ------------------------------ Brenda Denzler MedicalPTSD.com Pittsboro NC 919-418-0628 ---------------------- ...

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    SPM and HIMSS21

    Posted in: Open Forum

    HIMSS21 Global Health Conference & Exhibition  August 9-13, 2021 | Las Vegas, NV  HIMSS Global Health Conference & Exhibition (held August 9–13, 2021 virtually and in Las Vegas) brings you the world-class education, cutting-edge products and solutions, ...

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    Patient registries

    Posted in: Open Forum

    Hi all Is there anyone here who is interested in patient registries? My daughter died from rare disease 4 years ago and since I also have professional experience in data analysis I have been trying to help with some patient registry efforts. I'd be interested ...

  • Posted in: Open Forum

    I signed up. I had to assume it was a virtual meeting, as in-person meetings are still very few and far between and tend to involve only folks who are already local.  Once, during cancer treatment, when I was in the midst of a raging Code Red PTSD attack ...

    1 person likes this.
  • Posted in: Open Forum

    You are cordially invited to join the Linnea Olson Hackathon, which is meeting online on Fridays at noon Eastern. The sessions will be recorded if you are interested but have a conflict. Linnea is a charismatic lung cancer patient who has been ...

  • Posted in: Open Forum

    This is an excellent piece, Geri!  I appreciated hearing the information about how technology can help in this situation - that removing human judgement from the question about symptoms of depression or anxiety allows people to feel more comfortable disclosing ...

  • Profile Picture

    RE: New Book

    Posted in: Open Forum

    Hi Lisa. Thank you for mentioning The Informed Patient in this thread, I have read it. It's a paragon of health literacy! Moreover it's genteel, like a tour guide at Gettysburg.  I wish the book had room for a section on health insurance, the front door ...

  • Posted in: Open Forum

    I must apologize. I didn't realize that there was a geo restriction until they mentioned it during the discussion of the film. If I had known, I would have only sent the email announcement to my DC area subscribers. They did mention that they are showing ...

  • Posted in: Open Forum

    https://docs.google.com/spreadsheets/d/1p9aTCZIsD2aLbSt-K1JXkv5sLdrmpu8U/edit#gid=2081922927 Google Docs 3.23.21 agenda.xlsx Sheet1 Society for Participatory Medicine Board Meeting 3/23/2021 6-7:30pm ET Board ...

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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