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These forums and libraries are the platforms SPM uses to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to members. We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join

Latest Discussions

  • Posted in: Open Forum

    Hi, I'm posting on behalf of two friends, both with very complex cases, who are looking for appropriate care providers. Recommendations and suggestions welcome: The first is recommendations for the son of a friend who will live and work in DC. He ...

  • Posted in: Open Forum

    As a result of all the discussion, I've updated the principles. See if this version captures what you were getting at. Again, we are not trying to reinvent the wheel but to have a clear statement of our beliefs and values as an organization. The ...

  • Posted in: Open Forum

    Regarding our conference, Oct. 17 in Boston: The latest pre-conference blog post is live, by Rasu Shrestha.   Social media links for easy click-and-resharing:  A Tweet to RT SPM Facebook post to share  LinkedIn post to share ...

  • Posted in: Open Forum

    Thanks for the link to the article, Peter. This is, indeed, a huge problem. There seems to be a need for balance between "evidence-based medicine," which is so much the watchword in health care, and remaining open to patient reports of health adversity ...

  • Posted in: Open Forum

    This article,  A New Response to the Data-Centric Future of Healthcare , popped up in my feed today.  There may be some value in some of the article, but the lede stopped me cold: DOS is Health Catalyst's response to a simple truth: The future of healthcare ...

  • Posted in: Open Forum

    Please share to your networks! A tweet you can open, for easy retweeting: https://twitter.com/ePatientDave/status/1041687873374875649 FB post for easy re-sharing: https://www.facebook.com/epatientdave/posts/10216287172029767 ...

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    METRICS for metrics

    Posted in: Open Forum

    I post a link to this article because I think it demonstrates that we (the participatory medicine advocates) have made progress. The article is a short commentary published in the WMJ, the journal associated with the Wisconsin Medical Society. (Disclaimer: ...

  • Posted in: Open Forum

    Conference page with full links to reg, agenda, the whole nine Poetry for Personal Power is working on attending this conference in force in service of its PCORI grant aimed at determining the research priorities on the person/patient side of behavioral ...

  • Posted in: Open Forum

    Are you organized? Good with numbers? Are you a leader who wants to hone your skills? What would you think about managing a corporation with a multi-million dollar budget ? Too big? Then consider running for treasurer of SPM. We're currently identifying ...

  • Posted in: Open Forum

    Ken, Yes, I agree with all you say, and I think that is the ultimate goal. The problem is, what do you have to talk about? If we are not gathering the right information about each of these issues, how can there be a discussion, much less sharing of ...

  • Posted in: Open Forum

    Cathy and Geri, Like Geri, I've been unable to find very much that is on point in this area. There's this great study from 2008 that highlights that creating healing relationships with patients (which includes empowering them and reducing the power differential) ...

    1 person likes this.
  • Posted in: Open Forum

    Liz Szabo has an opinion piece in today's NYTimes , in which she argues that the conversations and news reports of precision medicine (for cancer) are unbalanced and misleading. Misinformation obviously makes informed decision making a challenge.  The ...

    1 person likes this.
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    9/11

    Posted in: Open Forum

    ------------------------------ It's A Great Day To Be Alive Cathy Bandy Tampa Bay, Florida jerzeycate@gmail.com ------------------------------

  • Posted in: Open Forum

    I came across a couple of articles regarding the History of participatory Medicine and thought some might find a historical context of current efforts helpful. https://www.cbord.com/cbord-explains-participatory-medicine/ Cbord ...

  • Posted in: Open Forum

    This is a tiny, tiny smattering of things available.... THE BATZ GUIDE--AMAZING GROUP AND PATIENT GUIDES FOR VARIOUS POPULATIONS (ADULT AND PEDIATRIC) http://www.louisebatz.org/the-batz-guide/ Louise Batz ...

  • Posted in: Open Forum

    I don't know if they would have the time to be involved, however I would highly recommend my Carediologist and/ or his Nurse PRacticioner. Superior Skills in this area. We were never without correct and complete information regarding all options.  Up ...

  • Posted in: Open Forum

    This is such a brave and important question.  What I add to the discussion comes from three different angles: - On the legal front, due dilligence is a must. An investor will dig deep to find out all about the company and its founders. Having a mental ...

  • Posted in: Open Forum

    My reply: Depends on lots of variables. What kind of disorder is it? How severe is it? Is it being effectively treated? For many disorders, I believe it *could* be positive to disclose. But most investors would figure there's a personal reason anyway. ...

  • Posted in: Open Forum

    Color me there - look forward to the discussion, since that was one of my "qualifiers" (there have been many, but that was my Rubicon) for full e-patient status ... ------------------------------ Casey Quinlan Mighty Casey Media LLC | Host/Producer "Healthcare ...

    1 person likes this.
  • Posted in: Open Forum

    I really appreciated this article from Kim Bellard, posted last week on Tincture. Hope y'all do as well: What Burning Man Can Teach Healthcare ------------------------------ Mark VanderKlipp Connect_CX Evanston, IL 2316315107 -------------------- ...

  • Posted in: Open Forum

    The SPM Learning Exchange (#SPMLearning) is a series of free webinars on topics of interest to our community. However, they are open to anyone who registers.  The September #SPMLearning webinar is next Tuesday, Sept 11 at 1-2 pm ET on the topic of Digital ...

  • Posted in: Open Forum

    I thought this was an excellent summary describing ways that patients can finally put what their experiencing into visual form, which helps bring forward the words and ideas that lead to better connections. Well done, Geri! Mark VanderKlipp ...

  • Posted in: Open Forum

    Please help a group of SPM members understand the impact of working and family caregiving. If you work at a healthcare organization or if you're a nurse - please take and share these surveys. They're up through the end of September!  More info and ...

  • Posted in: Open Forum

    For All Members registering for SPM 2018 in Boston on October 17th: Save $50 when you use code CHC18SPMMEM Register here .  See you there! ------------------------------ Susan Woods, MD, MPH President, Society Participatory Medicine South Portland, ...

  • Posted in: Open Forum

    Hi Mark:   Code is 'CHC18SPMMEM'. Will look forward to meeting you. -Joe Democratizing HealthCare!   Me. You. Us. Healthocracy "   on October 17 ...

  • Posted in: Open Forum

    Hi Dave. I'm just seeing your response. You should follow me on Twitter @shereesepubhlth . I often share information about the practical uses of the blockchain, as opposed to the "magic pill" notions. I've been studying blockchain since before it was ...

  • Posted in: Open Forum

    Thank you for the comments and questions. Constraints of space for that essay made it impossible to elaborate on some of the things I mentioned. By way of context, my essay was a response to a discussion about errors in diagnosis that happen when a potentially ...

  • Posted in: Open Forum

    I agree Connect, Communicate, Collaborate ------------------------------ Danny van Leeuwen Health Hats www.health-hats.com @healthhats ------------------------------

  • Posted in: Open Forum

    Well said, Peter.  (And hi, @Jay Spitulnik .) Love this topic. So often at informatics ​conferences we hear people talking about how parts of the system and workflows affect everything BUT the individual patient.   Are you teaching anything about OpenNotes ...

  • Posted in: Open Forum

    Submit Nominations Now for a Doc Tom Award. Anyone can. Send name(s) to   doctom@participatorymedicine.org  for one or both awards  Tell us WHO, WHICH AWARD, and HOW THEY MEET THE CRITERIA. Award 1: e-Patient Principles For a person who exemplifies ...

  • Posted in: Open Forum

    * For e-patients only , and yes I know we are all patients, but specifically I am offering this to those who don't work for organizations that would cover their costs for stuff like this* Are any of you really passionate about quality and patient safety? ...

  • Posted in: Open Forum

    Grace, this is an excellent and much needed post. HIPAA became law in 1996 and compliance with its privacy tenets was finally required in 2003. At the time, the list of 18 "identifiers" of Protected Health Information (PHI) seemed reasonably demanding. ...

  • Posted in: Open Forum

    Cathy that was incredibly helpful and very insightful, thankyou for taking the time to share all that with me!!! ------------------------------ Austin Jones Unity Health Score Niceville FL 8508655229 ------------------------------

  • Posted in: Open Forum

    Liz, thanks so much for taking the time to speak with me about my patient experience among others. I'm happy to be a part of this important project/research! www.NancyMichaels.com Check out Nancy's Speaking ...

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    RE: History of

    Posted in: Open Forum

    thanks Beth. I have lots of graphics designed to convey complex topics in a way that can be grasped by patients quickly. We are all about clarifying the patient's role in their own health, which clearly is not blind compliance. Once most patient's understand ...

  • Posted in: Open Forum

    Colleagues, I have been reading about the new treatment guidelines for diabetes.  My point of reference is as a nurse care coordinator.  The ongoing support for diabetes management is part of the domain of nurse care coordination -- understanding the ...

  • Posted in: Open Forum

    I know the event is over but I just ran across this and I want to get it shared for future reference.  Can anyone identify the source and/or author (without Googling)? Forgotten Heroes   I'm thinking of a particular type of medical worker. ...

    1 person likes this.
  • Posted in: Open Forum

    Hi Danny, There are numerous Pain Diaries/Journals/Planners available and can be downloaded via a simple Google Search. Some are excellent and enable chronic pain patients of which I'm one to better monitor their symptoms watching for changes. This works ...

  • Posted in: Open Forum

    Here is the page on that site for the chronic pain program http://www.eblcprograms.org/evidence-based/recommended-programs/chronic-pain-self-management I note that elsewhere on the site is a program called Enhance Fitness.  At my local YMCA I'm just ...

  • Posted in: Open Forum

    I should add that one of the things that first drew me to join SPM was the resource of its members in helping me find and assess new information, and re-evaluate the 'truth' of old information and my assumptions based on that old information.  I still ...

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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