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These forums and libraries are the platforms SPM uses to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to members. We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join.

Latest Discussions

  • Posted in: Open Forum

    I see two problems, Peter.  Yes, the "payer" (or "plan", as some insiders call insurance) is not the intellectually right one to make such a call. Except that in the US, the whole freaking industry has become run by the money people. THE RESULTING ...

  • Posted in: Open Forum

    Again, so glad to have you with us, @Lorraine Johnson ! And I'm glad you find the discussion here meaty.  I've just finished composing a related post on my blog that will go live at noon ET ​Sunday.  I'll post a link here when it does. Earlier I uploaded ...

  • Posted in: Open Forum

    30 years ago, Professor Paul Arntson (my PhD advisor at Northwestern) wrote a paper entitled Improving Citizens’ Health Competencies, which was published in the inaugural issue of Health Communication. He argued for the primacy of the citizen role over ...

  • Posted in: Open Forum

    Another source of challenging (in both the sense of challenging one's ideas and often challenging to digest) conversations about evidence, science, and scientific method, I suggest looking at Less Wrong . It publishes a pretty steady stream of essays ...

  • Posted in: Open Forum

    I just tweeted this vignette from this morning: Me to provider office: I got an alert that you sent something via MyChart. I logged in and nothing's there. Can you just email it? Provider: We're not allowed to because HIPAA. Me: No, I know HIPAA, ...

  • Posted in: Open Forum

    If you don't regularly check all message sections, you may not have noticed that THREE people have already posted this week in Introduce Yourself.  Some pretty interesting profiles - glad to see this expansion! If you're not new but have never introduced ...

  • Posted in: Open Forum

    https://press.princeton.edu/books/hardcover/9780691174952/the-tyranny-of-metrics This is a great book on the topic across many fields. J. Greg Merritt, Ph.D. Founder and CEO Patient is Partner, LLC & Informational Interviewing, LLC Questionologist ...

  • Posted in: Open Forum

    In light of the recent Google / Ascension health data uproar, this tweet from July (at #Cinderblocks) is eye-catching: ​ "All @ AbridgeHQ employees take a digital hippocratic oath before they touch your data?! Wow." ------------------------------ ...

  • Posted in: Open Forum

    Interesting, Catherine. I'd like to hear more about your patient perspective about the usefulness of bedside patient portals. The thing that immediately occurred to me, in the study you described above? The patients/caregivers were provided with tablets. ...

  • Posted in: Open Forum

    Dear Colleagues, The draft agenda for the next board meeting Nov 26 at 6pm ET is here . There are likely to be some changes leading up to the board meeting. Please let me know if you have additional items or suggestions. For those on the board I will ...

  • Posted in: Open Forum

    I have long and vocally been in favor of SPM doing a test-of-concept initiative teaching clinicians-in-training how to collaborate with patients as partners. I was working on setting this up in a primary care residency setting but that project stopped ...

  • Posted in: Open Forum

    The Manifesto expresses the goals as follows: "Our goal is to empower and embolden patients, healthcare professionals and caregivers by spreading the practice of participatory medicine. Our movement will shake up the system to create a collaborative, ...

  • Posted in: Open Forum

    I was reading an article about emotional abuse by bosses, and this was one of the items listed: 6. 'Your therapy appointments make the company look bad.' "'Your visits to a therapist make the entire company look bad.' That's how I found out they ...

  • Posted in: Open Forum

    The recording of the webinar is now available:  https://centerhxd.com/resources/video-designing-a-more-humane-workplace-supporting-employees-that-juggle-working-and-caregiving/ ------------------------------ Geri Lynn Baumblatt, MA Pnicipal, Articulations ...

  • Posted in: Open Forum

    Yes, and thanks for considering this option. I’ll let you know (off list) if something develops. ------Original Message------ Hi Liz, they're visiting and have a tight schedule while in Chicago visiting different hospitals, etc. If you want, I can ...

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    NEJM Catalyst

    Posted in: Open Forum

    Hello All, I would like to get the group's opinion on the NEJM Catalyst journal. They used to publish articles about Digital Health. They were free. They were in-depth views of digital health issues in clear language and I shared them with my undergrad ...

  • Posted in: Open Forum

    This is a good look from EPIC. I'm glad they're doing this. ------------------------------ Shereese Maynard Salisbury MD 443-500-1422 ------------------------------

  • Posted in: Open Forum

    That was nine months ago and talked about future research - is anything happening??  Sounds like something SPM should try to get connected with! ------------------------------ Dave deBronkart e-Patient Dave LLC SPM co-founder and past co-chair Co-admin ...

  • Posted in: Open Forum

    Interesting concept.  If I understand it right, you are creating a  bidding platform that enables patients to obtain discounts on healthcare.   Providing information for patients to even access healthcare options is a formidable task.  Putting the data ...

  • Posted in: Open Forum

    @Brenda Denzler @Adrian Gropper @Dave deBronkart Data and Goliath by Bruce Schneier recommended by Brian Kaney, speaker on the FHIR Standard Society for Participatory Medicine Conference October, 2019FHIR session SPM 2019 https://www.facebook.com/participatorymedicine/videos/539567450143262/ ...

  • Posted in: Open Forum

    Thank you Danny and Peter. It's my privilege! Brian ------------------------------ Brian Mack Great Lakes Health Connect Grand Rapids MI 6165884694 ------------------------------

  • Posted in: Open Forum

    So how did it go?? I sometimes wonder how life would be different if I'd moved to DC ten years ago ... other than "my mortgage payments would be a TEENSY bit huger than here in New Hampshire..." ------------------------------ Dave deBronkart e-Patient ...

  • Posted in: Open Forum

    I was so confused today on the patient empowerment workgroup call, Lisa ... the FHIR community is so full and diverse and inter-relating that I completely missed (at first) that the Lisa on this call was YOU!  And boy did that add to my own confusion. ...

  • Posted in: Open Forum

    I just tweeted to them , including your screenshot :-)  Hola @nejmcatalyst ... may I humbly suggest, the demographic categories on your newsletter sign-up list lack "patient" and "caregiver"? I believe this is called a modeling bias, and it ...

  • Posted in: Open Forum

    I thought so too. Marilyn ------------------------------ Marilyn Mann Kensington, Maryland @MarilynMann (301) 520-5488 ------------------------------

  • Posted in: Open Forum

    Hi all, @Denise Brown will be hosting the 4th Annual National Caregiving Conference here in Chicago Nov 7-9th. On Nov 8th,  @MaryAnne Sterling will be hosting a policy/advocacy track with a panel session called: Act at a State & Local Level. I'll ...

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  • Posted in: Open Forum

    That's an excellent question Janice. The answer is probably no, unless research shows that voice prompts add value. The reason why I can guess no in advance is that we are using video games as our educational technology; and our market is folks who already ...

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    Unhurried Conversations

    Posted in: Open Forum

    Every now and again I come across an essay so good it is painful to pick a teaser quote, because the entire essay demands to be read. Careful and Kind Care Requires Unhurried Conversations is such an article. Here's part of the lede: "In order to ...

  • Posted in: Open Forum

    This is fantastic news, @Brenda Denzler - well deserved! Godspeed to you in Amsterdam.  ​ ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

  • Posted in: Open Forum

    Starting a "daily" (translated 'when I see something') health hacker award shout out for neat people I see doing amazing things. Today's award goes to this ortho surgeon:  https://twitter.com/cadiulus Twitter ...

  • Posted in: Open Forum

    Dear Participatorians: Members of the Society for Participatory Medicine elect two members-at-large to participate in the executive committee and the board of directors. Any member is eligible to self-nominate for member-at-large. Besides participating ...

  • Posted in: Open Forum

    Just shared via our SPM twitter! https://twitter.com/S4PM/status/1189323771322228736?s=20 ------------------------------ Amber Soucy, MSN RN S4PM Board of Directors S4PM Social Media Lead Twitter: @wheezynurse Email: wheezynurse@gmail.com Website: ...

  • Posted in: Open Forum

    Hi all, Just resurfacing the Quick Start Guide for SPM Connect that @Peter Elias took the time to create.​ Please give if it a read if you haven't already and offer any suggestions for additional information that it will be beneficial to include. ...

  • Posted in: Open Forum

    I went to AHIP's main event a few years ago - seemed very much like HIMSS in that it was a lot if industry professionals talking to each other and there was less interaction / engagement with other stakeholders. I haven't been to the other AHIP events. ...

  • Posted in: Open Forum

    I wanna gooooooo.....     Seriously, Chicagoland, it was exhilarating to visit with this group - twice, so far, I think.  Well worth an evening. ------------------------------ Dave deBronkart e-Patient Dave LLC SPM co-founder and past co-chair Co-admin ...

  • Posted in: Open Forum

    Gretchen I'm so very sorry to hear of this devastating loss. I would speak to someone knowledgeable about inherited cardiovascular disease and sudden cardiac death in the young for what questions to ask. If you can arrange to speak to the pathologist ...

  • Posted in: Open Forum

    Dear board colleagues (copy to all members): Next board meeting is 10/29 at 6pm ET at usual Zoom line. Let me know if you can't attend for any reason. Draft agenda is here .  Please do pre-reads and be prepared for discussion. Comments welcome. ...

  • Posted in: Open Forum

    Greetings, This is a starting resource opportunity  though no resources should be referenced until researched. I have specialized in resource guides for individuals seeking assistance for three decades, I would not refer people here. As I mentioned it ...

  • Posted in: Open Forum

    Do you have an iPhone? I was able to access it with the iPhone Podcasts app. Marilyn ------------------------------ Marilyn Mann Kensington, Maryland @MarilynMann (301) 520-5488 ------------------------------

  • Posted in: Open Forum

    It was a wonderfully organized conference. I have taken some time to reflect, but I will get some thoughts out on the blog next week. And now, because I shared this publicly, I will have to deliver! :) ------------------------------ Thanks, Ileana ...

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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