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The Incidental Economist (TIE) has a recent short column about the problems of overdiagnosis and overtreatment. It starts the discussion with anecdotes of medical professionals having this happen to them. The conclusion is four simple things patients ...

Following up on this by @Robert Becker : "Coming back to the question of what unites stakeholders, the best answer may also be what motivates them, fires them up, glues them together. The lofty idea that is supposed to do it for us probably doesn't. ...

I hope I am not misunderstood.  I am a zealous advocate for recognizing the value of the long tail, the quiet 80% in the Pareto distribution, the lurkers. That's why I so often raise the issue of how SPM needs to find ways to hear them, understand them, ...

Jay-Great!  Your student did an excellent job of summarizing the impact and value of secure messaging and health apps in the context of the Manifesto.  There are follow-up questions to explore, I think, like why do ~95% of secure messages emanate from ...

Rebecca Kirkland 9:33 AM (5 minutes ago) to DoNotReply This is a very interesting discussion ...

Physicians not trusting the patient’s expertise, even when the patient is medically trained, is not that uncommon. Chrystal Lewis, an RN and academic, has a rare genetic condition that it took her doctors a long time to recognize for what it was and ...

I can't image what could possibly go wrong....arrrgh. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 576-0716 ...

Peter, thanks for the link to the article. It’s quite good. :) Tapping into the wisdom/knowledge of the people on staff who may have worked with a given physician is a great point to make. I did that when I needed to consult with an ENT. I asked the ...

It appears that this problem has been resolved. Thank you. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 576-0716 ...

Thank you for this update. I hope we can look forward to some regular posts here on Connect from these active working groups. In addition to keeping us updated, it might generate suggestions and volunteers. There is some inconsistent information on that ...

The Society for Participatory Medicine community is invited and encouraged to join us for our next SPM Town Hall, scheduled for Thursday, April 29th from 6:00 PM - 7:00 PM (EST). For those unable to attend, a recording of the meeting will be posted to ...

Hi Peter, Thanks for your patience and my apologies for the delay. Click here to be linked to the recording of the SPM Town Hall - March, 2021 In the future, I will endeavor to have the recording link posted as soon as it is made available.  Regards,  ...

SPM colleagues, together with collaborators at the National Library of Medicine I am coediting a book on online misinformation in medicine.  It will be published by Rowman & Littlefield and the Medical Library Association.  I'm attaching a Call for Chapters. ...

There's a lot of useful information in this article by  by Christina Farr. As a retired PCP and health advocate/navigator for family and friends, though, I loved this sentence: "But the experts I spoke to agreed that tech is no replacement for human ...

I'm glad it worked. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME ------------------------------

Hi Board-Please find the board materials for our next meeting.  Please note.  I'm asking you to please review a 15 minute Ted Talk by Simon Sinek that discusses the need for organizations to clarify the "why" of what they do.  We'll be discussing that ...

TOMORROW APRIL 20th: Supporting patients and family caregivers between visits improves care transitions. Join 2 SPM members: CEO Eran Kabakov , PT & Chief Engagement Officer, Geri Lynn Baumblatt , MA for the: National Transitions of Care Coalition ...

Thanks for the fine newsletter . It's exciting to see the energy and activity: the inaugural edition of the Participatorian, resumption of Town Halls, and the conversation about conversations. ------------------------------ Every good deed is worth ...

Ahhh.... I see.  I have to agree: when you have a good relationship with a doctor already, it's easier to roll with it when snafus happen. ------------------------------ Brenda Denzler MedicalPTSD.com Pittsboro NC 919-418-0628 ---------------------- ...

HIMSS21 Global Health Conference & Exhibition  August 9-13, 2021 | Las Vegas, NV  HIMSS Global Health Conference & Exhibition (held August 9–13, 2021 virtually and in Las Vegas) brings you the world-class education, cutting-edge products and solutions, ...

Hi all Is there anyone here who is interested in patient registries? My daughter died from rare disease 4 years ago and since I also have professional experience in data analysis I have been trying to help with some patient registry efforts. I'd be interested ...

I signed up. I had to assume it was a virtual meeting, as in-person meetings are still very few and far between and tend to involve only folks who are already local.  Once, during cancer treatment, when I was in the midst of a raging Code Red PTSD attack ...

You are cordially invited to join the Linnea Olson Hackathon, which is meeting online on Fridays at noon Eastern. The sessions will be recorded if you are interested but have a conflict. Linnea is a charismatic lung cancer patient who has been ...

This is an excellent piece, Geri!  I appreciated hearing the information about how technology can help in this situation - that removing human judgement from the question about symptoms of depression or anxiety allows people to feel more comfortable disclosing ...

Hi Lisa. Thank you for mentioning The Informed Patient in this thread, I have read it. It's a paragon of health literacy! Moreover it's genteel, like a tour guide at Gettysburg.  I wish the book had room for a section on health insurance, the front door ...

I must apologize. I didn't realize that there was a geo restriction until they mentioned it during the discussion of the film. If I had known, I would have only sent the email announcement to my DC area subscribers. They did mention that they are showing ...

https://docs.google.com/spreadsheets/d/1p9aTCZIsD2aLbSt-K1JXkv5sLdrmpu8U/edit#gid=2081922927 Google Docs 3.23.21 agenda.xlsx Sheet1 Society for Participatory Medicine Board Meeting 3/23/2021 6-7:30pm ET Board ...

I read Christakis's Connected. The premise of the book is both illuminating and eerie. That people are strongly influenced by their position in a social network, more than they are by personal contact with individuals. I could say, for example, that many ...

@John Grohol - I'll continue to moderate on a volunteer basis.​ ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 ...

This is a very positive step. Thank you for the hard work and dedication. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ...

If anyone wants to access the free recording of this Athena Forum presentation and discussion on patient engagement and education that @Eran Kabakov and I participated in, it's now available here along with many other great past webinars:  https://athenaforum.net/cv_issues/ ...

A Year in America's First COVID Epicenter | The New Yorker A Year in America's First COVID Epicenter James Ross Gardner Twelve months after Seattle suffered the first reported coronavirus death in the ...

Change of pace.  Learn from the clowns. Embrace failure, take a deep breath, laugh, cry, engage. Revisit chat with Jason Stewart from Laughter League at Boston Children's.Hospital. Listen here https://www.health-hats.com/pod114/ ------------------------------ ...

A quick heads-up:   At 9 ET this blog post will go live. I haven't been involved in the project per se, but as it says, this is a major campaign for SPM this year, so please please circulate to your communities! UPDATE: it's live: https://participatorymedicine.org/epatients/2021/03/shake-up-the-system-sign-and-share-the-participatory-medicine-manifesto.html ...

Good Evening, fellow SPM-ers :) I hope everyone remains safe and healthy.  Over the next few weeks, I will be updating our @S4PM twitter lists, and would like to particularly focus on "SPM Members on Twitter." If you don't know what a Twitter list is ...

The Society for Participatory Medicine has once again added its voice to a letter endorsing an AHRQ seeking more research on some of the most critical health system issues raised by COVID-19.  We are in good company. The are 118 signatories that include ...

https://docs.google.com/spreadsheets/d/1V2Mcqhvf9S98bAIK1UvBPa8ks75Obf8O/edit#gid=1741809881 Google Docs 2.23.21 agenda.xlsx Sheet1 Society for Participatory Medicine Board Meeting 2/23/2021 6-7:30pm ET Board ...

No, VAERS is not a reliable source of informatiion about COVID vaccine side effects. VAERS is a list of reported events that occur after a vaccination. It does not attempt to determine causality. ------------------------------ Every good deed is worth ...

I edit for a number of science-y types who have the added disadvantage of having English as their second language. Thus, most of what they read in English, and thus how they learn the nuances of English, is via science writing in their specific fields. ...

Yesterday's Wall Street Journal had a great article about how patients are taking the lead in research regarding COVID-19. Click below for a link to the article. Covid-19 Patients Are Doing Their Own Research ------------------------------ ...