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As an admin here on Connect, I think this is a good time to remind participants of our Forum Guide and Netiquette , which includes in part: Be nice:   Be  patient and tolerant . We were all newbies once. Be hard ...

Hi all, I have offered to spearhead the effort to develop a conference travel fund policy. This shouldn't be too hard and require too much time. I am looking for a few good people and/or any suggestions or opinions. The goal, following my conversation ...

Planning for our first live SPM conference is going well. It is scheduled for Wednesday, October 5th, from 8:00 am to 5:00 pm at the Seaport Hotel in Boston.  If you are a patient or caregiver with knowledge/expertise and/or a personal story related ...

This is our first but surely not the last live conference we put on. We have been working hard on the schedule and logistics.   Look for details here! ------------------------------ The chief cause of problems is solutions. Peter Elias Member-at-large ...

In the Lounge section, which is for non-SPM topics, board member-at-large Peter Elias has posted about an inspiring organization, Live The Green Dot, "built on the premise that we can measurably and systematically reduce violence within any given community." ...

This one is on patient-centered care, and I mention the S4PM in it. Hope it meets with everyone's approval...! http://www.curetoday.com/community/brenda-denzler/2017/08/patient-centered-care-in-cancer?p=1 Bre

Hi Vera - I am happy to join your advocacy team. Let me know what to do. I am new to the group.  Thanks for what you are doing.  Jim Skinner ------------------------------ James Skinner Smart Patient Academy New Braunfels TX 8888224770 ------------------------------

Hi all - this note will document how to change your SPM membership address, which automatically becomes your login for SPM Connect.  1. Start by logging in to our membership system, members.participatorymedicine.org.  2. Click View Profile. 3. Click ...

Hi Peggy! Happy to know about the Xplain materials and others mentioned here in this thread. SInce getting involved in the Choosing Wisely at Consumer Reports, I have also been impressed with how many topics their libraries cover too, but I am still so ...

Adding to Adrian's excellent response. Yes, the  HIPAA Privacy Rule gives individuals pretty much an absolute right to individually access their own records. Furthermore it describes the covered entity as "maintainers", not owners. For example: ...

Hi all, can anyone point me to a Pediatric GI who is particularly good at Participatory Medicine?  Any suggestions appreciated. Thanks! -Tyson ------------------------------ Tyson Ortiz Boston MA ------------------------------

I'd like to share information about a 1-day conference in Crystal City, VA, on October 3, 2017, that is open to both professionals and patients/consumers with an interest in how to promote and advance patient safety and evidence-based decision making ...

Just a reminder that this month's SPM Town Hall Call is 7pm EDT. See the Events page for details and hope you can join us for this open forum discussion. ------------------------------ John Hoben SPM Internal Communications Team https://www.linkedin.com/in/johnhoben ...

Kudos to @Anatoly Postilnik and his colleague Alex for their "behind the scenes" volunteer programming effort interfacing SPM's membership management system with this Connect forum. So many members volunteer hundreds of hours every year. This is another ...

Dave, This is very exciting follow-up! Looking forward to learning more.  Interested in seeing how a platform of such large scale will balance 2 distinct authorities: professionals such as doctors & patients. While all edits will be recorded, offering ...

We continue to grow in terms of users and activity. Here is the most recent month's update: ------------------------------ The chief cause of problems is solutions. Peter Elias MD Family physician, advocate for collaborative, patient-driven, evidence-informed ...

FDA Sets Inaugural Meeting of First-Ever Patient Engagement Advisory Committee For the first time, an FDA advisory committee will focus on patient-related issues. On Oct. 11-12, 2017 , FDA will hold the inaugural meeting of the new ...

Please forgive this short notice as the July 26th SPM Town Hall Call has been rescheduled tentatively to August 8th due to several board members not being available to attend.  Many thanks,  John ------------------------------ John Hoben SPM Internal ...

That is a really great article Danny. Inspirational, educational, and practical! Mike ------------------------------ ====================== Michael Robkin, MBA Consultant, Founder, Executive, and Janitor Los Angeles, CA ====================== ------------------------------

Hi  @Danny van Leeuwen -- I served on a similar BMJ review panel a couple months back, and if this one works the same way, the reviewers are not paid. But the BMJ is at times able to list patient reviewers as full,co-authors on the papers which I thought ...

Thanks, Peter - looking forward to learning more as plans crystallize. ------------------------------ John Hoben SPM Internal Communications Team https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 ------------------------------

It would be helpful if you could see the number of scores behind each ranking. Also, a search function for your city would be useful. I didn’t see one. Finally, having a good definition of what the different categories mean would be helpful. One person’s ...

In response to new activity on this forum vs the listserv, I went in and did take a look at the past 4 years' worth of listserv activity and came up with the attached handy spreadsheet. In short, for the years prior to 2017, listserv activity average ...

Tired and engaged tonight. I did just read the "rwjf" link Ileana posted and Jan mentioned. I find the divisions interesting. Personally my awareness of chicanery has also risen. There are pockets of immigrant population around the country. I speak for ...

Hi James, The deadline for submitting a proposal is open until July 20 - and then it sounds like there will be voting with a decision at the end of July. I should clarify that by caregiver they mean family caregivers and care partners, not clinicians ...

Peter:  Here is a link to the Playbook For High Performance Patients and Caregivers. It is Version 1. Comments welcome.  There are 4 tabs and some of the innovative material is near the back. fyi.   https://jmsbenefitsolutions-my.sharepoint.com/personal/jim_jmsbenefitsolutions_net/_layouts/15/guestaccess.aspx?docid=1353bab2a2f1e42168858f75c5d3bc0b7&authkey=AULTU7H1ch_8Ud1LuigHbmg ...

I like the term  "personal health engagement" because it encompasses life outside of a "treatment" context: which is where most patients spend almost all of their time.   (Sorry for the late response - way behind on my reading.) ------------------------------ ...

If the goal is to make it easy for members to know who else is going, given that the conferences are not things SPM sponsors or schedules so we do not have access to the specific registration information, it might help if we encouraged people who planned ...

Thanks, Michael. Good to have you here in this more robust forum!  Several of us are hoping it will enable much better discussion participation than the old listserv did. Yesterday I posted a bunch of Weed coverage into comments on Ileana's original ...

Great article and work,  @Grace Cordovano - thanks for sharing! What medical schools are currently practicing this fantastic idea?  ------------------------------ John Hoben SPM Internal Communications Team https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

Hi, I'm Danny (Health Hats Danny).  As the new Editor of The SPM Newsletter, I invite you to join our team.   The Society of Participatory Medicine publishes an online Newsletter 4 to 6 times a year. The Newsletter's purpose is to communicate to ...

Thanks Dave Dolton for plugging SPM on stage at the Telehealth conference in D.C. You did a great job!  It was an interesting mix of attendees too - from patients to consultants/IT and health professionals.  - Susan ------------------------------ Susan ...

Thanks,  @Ileana Balcu - how active are Dr. Wen and the others you mentioned in SPM's LinkedIn / Facebook spaces this past year? ------------------------------ John Hoben SPM Internal Communications Team https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

I have one of those pins! Ileana sent them to me years ago. ------------------------------ Beatrice (Trixie) J. Tiangco Medical Oncologist and Mother of 4 ------------------------------

Health Literacy researchers Stan Hudson and RV Rikard are examining the impact of health literacy on the Quadruple Aim. They want to include promising HL practices and interventions that haven't made it into publication yet: findings from service projects, ...

Thank you. It looks very interesting. I have registered as well. Mike ------------------------------ ====================== Michael Robkin, MBA Consultant, Founder, Executive, and Janitor Los Angeles, CA ====================== ------------------------------

The article was about a panel discussion at a recent symposium highlighting the challenges in getting people the right people the right treatment at the right time. Mental health remains a secondary, often-invisible healthcare system that plays second ...

Following the SPM town and a conversation with Adrian we started experimenting with open.epic. Besides other features that are not relevant to this post open.epic is an app store that allows to extend Epic's functionality with patient facing apps.  The ...

What does anyone know about DIA in general and this year's keynote speaker in particular for their annual meeting?  See http://www.diaglobal.org/en/flagship/dia-2017/program/keynote-speaker for details as this gentleman looked like a prime SPM recruiting ...

There is a MOOC from MIT to evaluate technologies https://www.edx.org/course/technology-evaluation-global-development-mitx-cite101x edX Technology Evaluation for Global Development Learn ...