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The Society for Participatory Medicine's (SPM) online community is here for its members, to enhance collaboration and to allow members to share with one another in their own personal journey of participatory medicine. 

Some forums and discussions are visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic is only available SPM members. (If you are a member and see this screen, it means you are not logged in.)

We hope you will look around, like what you see, and become a member of the Society for Participatory Medicine. Not a member? Join us today!

Latest Discussions

  • Posted in: Open Forum

    Ahhh.... I see.  I have to agree: when you have a good relationship with a doctor already, it's easier to roll with it when snafus happen. ------------------------------ Brenda Denzler MedicalPTSD.com Pittsboro NC 919-418-0628 ---------------------- ...

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    SPM and HIMSS21

    Posted in: Open Forum

    HIMSS21 Global Health Conference & Exhibition  August 9-13, 2021 | Las Vegas, NV  HIMSS Global Health Conference & Exhibition (held August 9–13, 2021 virtually and in Las Vegas) brings you the world-class education, cutting-edge products and solutions, ...

  • Posted in: Open Forum

    Hi all Is there anyone here who is interested in patient registries? My daughter died from rare disease 4 years ago and since I also have professional experience in data analysis I have been trying to help with some patient registry efforts. I'd be interested ...

  • Posted in: Open Forum

    I signed up. I had to assume it was a virtual meeting, as in-person meetings are still very few and far between and tend to involve only folks who are already local.  Once, during cancer treatment, when I was in the midst of a raging Code Red PTSD attack ...

    1 person likes this.
  • Posted in: Open Forum

    You are cordially invited to join the Linnea Olson Hackathon, which is meeting online on Fridays at noon Eastern. The sessions will be recorded if you are interested but have a conflict. Linnea is a charismatic lung cancer patient who has been ...

  • Posted in: Open Forum

    Thanks, Marilyn.  Moral of the story: What goes into your medical record can make a difference in all kinds of ways that you may not foresee. So make sure that it's as accurate as possible.  Brenda ------------------------------ Brenda Denzler MedicalPTSD.com ...

  • Posted in: Open Forum

    This is an excellent piece, Geri!  I appreciated hearing the information about how technology can help in this situation - that removing human judgement from the question about symptoms of depression or anxiety allows people to feel more comfortable disclosing ...

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    RE: New Book

    Posted in: Open Forum

    Hi Lisa. Thank you for mentioning The Informed Patient in this thread, I have read it. It's a paragon of health literacy! Moreover it's genteel, like a tour guide at Gettysburg.  I wish the book had room for a section on health insurance, the front door ...

  • Posted in: Open Forum

    I must apologize. I didn't realize that there was a geo restriction until they mentioned it during the discussion of the film. If I had known, I would have only sent the email announcement to my DC area subscribers. They did mention that they are showing ...

  • Posted in: Open Forum

    Thanks. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 576-0716 ------------------------------

  • Posted in: Open Forum

    https://docs.google.com/spreadsheets/d/1p9aTCZIsD2aLbSt-K1JXkv5sLdrmpu8U/edit#gid=2081922927 Google Docs 3.23.21 agenda.xlsx Sheet1 Society for Participatory Medicine Board Meeting 3/23/2021 6-7:30pm ET Board ...

  • Posted in: Open Forum

    I read Christakis's Connected. The premise of the book is both illuminating and eerie. That people are strongly influenced by their position in a social network, more than they are by personal contact with individuals. I could say, for example, that many ...

    1 person likes this.
  • Posted in: Open Forum

    @John Grohol - I'll continue to moderate on a volunteer basis.​ ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 ...

  • Posted in: Open Forum

    This is a very positive step. Thank you for the hard work and dedication. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ...

  • Posted in: Open Forum

    If anyone wants to access the free recording of this Athena Forum presentation and discussion on patient engagement and education that @Eran Kabakov and I participated in, it's now available here along with many other great past webinars:  https://athenaforum.net/cv_issues/ ...

  • Posted in: Open Forum

    A Year in America's First COVID Epicenter | The New Yorker A Year in America's First COVID Epicenter James Ross Gardner Twelve months after Seattle suffered the first reported coronavirus death in the ...

  • Posted in: Open Forum

    Change of pace.  Learn from the clowns. Embrace failure, take a deep breath, laugh, cry, engage. Revisit chat with Jason Stewart from Laughter League at Boston Children's.Hospital. Listen here https://www.health-hats.com/pod114/ ------------------------------ ...

    1 person likes this.
  • Posted in: Open Forum

    A quick heads-up:   At 9 ET this blog post will go live. I haven't been involved in the project per se, but as it says, this is a major campaign for SPM this year, so please please circulate to your communities! UPDATE: it's live: https://participatorymedicine.org/epatients/2021/03/shake-up-the-system-sign-and-share-the-participatory-medicine-manifesto.html ...

  • Posted in: Open Forum

    Good Evening, fellow SPM-ers :) I hope everyone remains safe and healthy.  Over the next few weeks, I will be updating our @S4PM twitter lists, and would like to particularly focus on "SPM Members on Twitter." If you don't know what a Twitter list is ...

    1 person likes this.
  • Posted in: Open Forum

    The Society for Participatory Medicine has once again added its voice to a letter endorsing an AHRQ seeking more research on some of the most critical health system issues raised by COVID-19.  We are in good company. The are 118 signatories that include ...

  • Posted in: Open Forum

    https://docs.google.com/spreadsheets/d/1V2Mcqhvf9S98bAIK1UvBPa8ks75Obf8O/edit#gid=1741809881 Google Docs 2.23.21 agenda.xlsx Sheet1 Society for Participatory Medicine Board Meeting 2/23/2021 6-7:30pm ET Board ...

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    RE: VAERS

    Posted in: Open Forum

    No, VAERS is not a reliable source of informatiion about COVID vaccine side effects. VAERS is a list of reported events that occur after a vaccination. It does not attempt to determine causality. ------------------------------ Every good deed is worth ...

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    RE: Storytelling

    Posted in: Open Forum

    I edit for a number of science-y types who have the added disadvantage of having English as their second language. Thus, most of what they read in English, and thus how they learn the nuances of English, is via science writing in their specific fields. ...

  • Posted in: Open Forum

    Yesterday's Wall Street Journal had a great article about how patients are taking the lead in research regarding COVID-19. Click below for a link to the article. Covid-19 Patients Are Doing Their Own Research ------------------------------ ...

    2 people like this.
  • Posted in: Open Forum

    The event description sounds good. I'm looking forward to it. H U M A G I N A R I U M Robert S. Becker, PhD, CEO https://www.humaginarium.com (312) 788-7719

  • Posted in: Open Forum

    Sorry for the error in posting! Mary https://drive.google.com/drive/folders/1f5btLeygi-3keE3GoKFF31q7tzuw2I_v?usp=sharing ------------------------------ mary hennings concord ma 978-369-2759 ------------------------------

  • Posted in: Open Forum

    Hi Robert, I think it depends where you look, what you have access to, and what you call it:  health promotion, patient education, shared decision making, health communication, etc.  Many of us have spent decades creating interactive, engaging content ...

  • Posted in: Open Forum

    https://drive.google.com/drive/folders/1PE181cZim-5BrblWOW2t48cArWkA2T0i The link to the folder with board materials for 1.26.21 is above. Thanks, Mary Hennings Interim Board Chair ------------------------------ mary hennings concord ma 978-369-2759 ...

  • Posted in: Open Forum

    For those who are interested, more information can be accessed at ResearchtothePeople (website https://www.researchtothepeople.org/ and Slack researchtothepeople). If you have any questions, difficulties in plugging in, or comments, I am happy to help. ...

  • Posted in: Open Forum

    This looks great. Thanks for sharing it! ------------------------------ Erin Moriarty Wade Self-employed Boca Raton FL 404.931.2377 ------------------------------

  • Posted in: Open Forum

    SPM members are collaborating to offer a free screening Dr. Jessica Zitter's new film on #familycaregiver burden later this month for HCPs: Family Caregivers need more support both from care teams. Healthcare providers are invited to join a  free ...

    1 person likes this.
  • Posted in: Open Forum

    Excellent tip, thank you Brenda. The lead author Len Berry is a venerable master of marketing science, a learned amplifier of the voice of the customer. The article leverages the theory of learned helplessness, a pillar of positive psychology discovered ...

    1 person likes this.
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    RE: Journal Review

    Posted in: Open Forum

    Thanks John, I was hoping you'd say that. Hope you had a nice Christmas... Are you down in Bradenton? ------------------------------ It's A Great Day To Be Alive Cathy Bandy Tampa Bay, Florida jerzeycate@gmail.com ------------------------------

  • Posted in: Open Forum

    Michael, thanks again for your original post. Please forgive me if I took things off track. Personally, I think everything is connected so we will persevere. Peter, thanks for your cogent description of aerosols outdoors. Your description lines up ...

  • Posted in: Open Forum

    I'm fond of lifting pearls of wisdom from unlikely places, like popular culture for example. I think it was Bob Dylan who said, "don't criticize what you can't understand."  Do patients understand medicine and healthcare? I think not. I doubt that ...

    1 person likes this.
  • Posted in: Open Forum

    @Danny Sands Well done, my friend. I'm sure the few minutes of opened time will swell shortly.  ​ ------------------------------ Danny van Leeuwen Health Hats www.health-hats.com @healthhats ------------------------------

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    Board Materials

    Posted in: Open Forum

    Board Agenda Link https://docs.google.com/spreadsheets/d/1vV2tLYOGXq6k3D4s5qeti8qw5mNZjEwq/edit#gid=647762765 ------------------------------ mary hennings concord ma 978-369-2759 ------------------------------

  • Posted in: Open Forum

    Transparent communication in healthcare. Connection, trust, control. Research to practice. Change management. Community organizing. @Liz Salmi tells her story of OpenNotes. Listen to podcast episode here https://www.health-hats.com/pod102 ...

  • Posted in: Open Forum

    I love it when people do that, Peter! The docs I've had who've done that with me--they are exceptional. And what I've found is that THOSE are the docs practicing in my health care system who, it seems, wind up leaving not just the system, but medical ...

  • Posted in: Open Forum

    Hello, I am doing some freelance work for a company that helps connect patients and their physicians with Clinical Trials and other pre-approval treatment options. I was wondering if any physicians here might be able to speak with me for a few minutes ...

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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