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These forums and libraries are the platforms SPM uses to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to members. We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join

Latest Discussions

  • Posted in: Open Forum

    Just learned from @John Sharp that there are 4 full conference registrations ​for patients and patient advocates.  Please contact me if you are interested.  Thanks Sue ------------------------------ Susan Woods, MD, MPH SPM Past President @SueWoods ...

  • Posted in: Open Forum

    I welcome feedback and discussion on my recent blog post --  http://e-caremanagement.com/wsj-article-md-referrals-leakage/ A preview: The Wall Street Journal (WSJ) recently published an article entitled  https://t.co/LiPlISSMtR The article discusses ...

  • Posted in: Open Forum

    This related article on medical education was posted by the Lown Institute today  https://lowninstitute.org/news/blog/education-transformation/ Lown Institute "Medical schools have it completely ...

  • Posted in: Open Forum

    Dave,  I know Anne Llewellyn well. She's a co-founder (along with Trish?) of PPAI. I'm not sure of the structure of the organization at present, but Anne was telling me about it when I last saw her almost a year ago. Anne has a long history in training, ...

  • Posted in: Open Forum

    Register for free webinar now! January 22nd 2-3PM EST Some of you might be interested in the CHCS-National Center for Complex Care -IHI collaborative effort 'Blue Print for Complex Care' learning seminar. Health care innovators across the country are ...

  • Posted in: Open Forum

    Looking for options, sure. Calling that process "reframing" carries with it connotations that go far beyond merely "looking for options." Brenda ------Original Message------ @Brenda Denzler I agree that it's not just semantics, ...

  • Posted in: Open Forum

    Hey @Adam Lasnik , if you're creating a Google Group and/or Google Calendar for HIMSS19, please add that meetup! And @Susan Woods or anyone - where can I get more #PinkSocks??  Mine wore through from overuse!​​​ ------------------------------ Dave ...

  • Posted in: Open Forum

    Bhushan, thanks for introducing yourself.  I've had two infuriating episodes of stupid pricing recently.  I fear that as drug companies say goodbye to the era of blockbuster drugs (where one invention can bring in billions), some are becoming worse than ...

  • Posted in: Open Forum

    Sue, the link to the post on DoctorWeighsIn is open - no subscription required.  WOW, what a post - caught me by surprise.  The mild-mannered reference to the folk song "There's a hole in the bucket" threw me off.  I've seen numerous pieces by docs ...

  • Posted in: Open Forum

    @Chethan Sarabu it's so good to see you here - don't be a stranger! @Gretchen Riccardi the discussions about (for instance) @Hugo Campos wanting to access his device data were far enough in the past that they pre-date the SPM Connect system, so ...

  • Posted in: Open Forum

    I've previously taken Lisa's Digital Strategy course and highly recommend it. I used what I learned to map out a digital strategy for the organization I worked for at the time. Very interesting and helpful! I'm now taking Lisa's social media and health ...

  • Posted in: Open Forum

    Thanks for sharing this - I've been interested in both visualization and drawing in many uses in healthcare. ------------------------------ Chethan Sarabu Redwood City CA ------------------------------

  • Posted in: Open Forum

    Yes, that would be great to share on the blog! -- Wheezy Nurse MSN RN www.wheezynurse.com Twitter: @wheezynurse ------Original Message------ Hey Amber - thanks for this!   I registered.   As a precursor, last year I recorded ...

  • Posted in: Open Forum

    I would say as far as which way to go, that is a strategy question. With regard to understanding members, as I said, a member survey is a good place to start . It's not the only thing to do, but it is a really good way to start.  It also gives a voice ...

  • Posted in: Open Forum

    I was a little surprised that the at-large members were not asked to continue to serve until the new members were identified. One implication is that there will be no at-large contribution to the retreat. Another will be that the new at-large members ...

  • Posted in: Open Forum

    Interesting.  At first it sounded flaky-magic (partly because of the automatic response "If it's so good, why hasn't it been publicized?") but having it in a reputable journal is indeed a boost.  I searched Twitter for the NCBI URL and there are zero ...

  • Posted in: Open Forum

    Kate, I feel your pain, but I am not a pessimist. The use of power when people are sick and vulnerable for profit is a terrible injustice. It harms human dignity for both the patient and the physician. The reason I'm an optimist is because physicians ...

  • Posted in: Open Forum

    Cross posting is the term for submitting a post in two (or more) communities.  People often do this in order to maximize the number of readers and participants in a conversation, but it can result in duplicate conversations, neither of which is complete. ...

  • Posted in: Open Forum

    On the first day of medical school (September 1969 in Rochester, New York) the Dean told us that by 10 years after graduating half of what we had learned in medical school would no longer be true or useful - but that no one could predict which half, so ...

    1 person likes this.
  • Posted in: Open Forum

    Awesome conference! Lots of patients, conference was cheap, but very well organized. really a model of what patients included should look like.  I plan to go back this year, it was that good. ------------------------------ Thanks, Ileana Ileana Balcu ...

  • Posted in: Open Forum

    >  "they hire consultants so they can have someone to blame when the work doesn't pan out." Hrmph.  Where I come from in industry, someone who hires an INEFFECTIVE consultant gets the criticism.  Unless you're talking about C-suite and board. THOSE ...

    1 person likes this.
  • Posted in: Open Forum

    Hey John! Thanks so much for keeping a tab on my publications. I really appreciate this. The recent JMIR one is special because we looked at birth stories as women posted them online, focusing only on stories that diverged from the birth plan. What ...

  • Posted in: Open Forum

    Past president @Susan Woods posted this in the Event Planning section.  I know lots of people don't go there, so I'm going to paste it in here.  I'm also going to lock THIS message so you can't reply to it  -  replies should go on  the original message ...

  • Posted in: Open Forum

    The StartupHealth Festival was excellent!  I followed it both days January 8 and 9 on livestream. For anyone interested, the livestream recording for both days are available for free: Day 1:  https://youtu.be/z-1AeyvmJUo Day 2:   https://youtu.be/_NNUuXjcl2g ...

  • Posted in: Open Forum

    Hello John and Happy New Year to you, No worries.  I am glad that you started the thread.  SPM is a great place to bounce around ideas.  I need to catch up on emails this week.  Seems like there were some very interesting topics up for discussion. Thanks ...

  • Posted in: Open Forum

    Happy New Year everybody! I've lost count the number of presentations, discussions, white papers, conferences I've seen and heard theorizing and advising on how to improve clinical trial recruitment. We are failing at clinical trial recruitment and clinical ...

    1 person likes this.
  • Posted in: Open Forum

    Hi Kevin, Great points. Patients do need to learn, "what does it mean to be engaged?" (which I believe is what you are doing) and "what are the ways I can get more involved in research?" Patients will likely need to learn where to look for those ...

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    RE: Member rolodex?

    Posted in: Open Forum

    Sounds awesome, Peter, thanks much! ------------------------------ Adam Lasnik Google Mountain View CA ------------------------------

  • Posted in: Open Forum

    I ask because they (NQF) has a call out for "Next Generation Innovator" abstracts for their 2019 conference, and I have a project in the mental health recovery space that I'm pretty sure qualifies under that next-gen/innovation tag. Here's the conf ...

  • Posted in: Open Forum

    When I tried to register with a different email address, it accepted it. It appewars that it chokes if you try to re-register with the same email address, but does not send a user-firendly error message, something like: "We see that you have already registered. ...

  • Posted in: Open Forum

    Thanks so much John.  Will definitely listen.  Sounds amazing! Cheers and appreciation, Victoria ------------------------------ Maria VictoriaFerro The Unpatient Revolution victoria@theunpatient.com ------------------------------

    1 person likes this.
  • Posted in: Open Forum

    Hello Folks, New Article on the Unpatient Blog for you: 10 Things You MIssed By Not Being Onsite at XMed 2018 (and why you should plan to go in 2019    Today I'm following the livestream of StartupFestival:  http://www.startuphealth.com StartUp ...

    1 person likes this.
  • Posted in: Open Forum

    Thanks, John. I need to start using such search engines, I guess, instead of relying on direct links. Brenda ------Original Message------ Brenda, a treasure trove of publications appear when you Google "Marla Clayman Greg Makoul" - I believe ...

  • Posted in: Open Forum

    Ah, Dave. Diagnosing thyroid cancer via spirit guides, eh? Well...therein lies a story. And you know me and "stories!" My degree is in religious studies. While not everyone in this field has a strong spiritual tendency or a keen appreciation for ...

  • Posted in: Open Forum

    I'm honestly not sure that even members can comment - the AfPE has a minimal staff so they may have turned off comments. Usually people comment on them in the groups on LinkedIn - I posted it there to the SPM group, in my main timeline, and to a few other ...

  • Posted in: Open Forum

    Heh, good example!  After much thinking, I  finally figured out the answer, but that may be because I've heard it before :D ------------------------------ Adam Lasnik Google Mountain View CA ------------------------------

  • Posted in: Open Forum

    Thank you Marilyn, I have sent an email. Looks like an interesting opportunity. Have a good day ------------------------------ Janice Tufte Patient Partner @Hassanah2017 Seattle WA https://janicetufte.com https://hassanahhealth.wordpress.com/ --- ...

  • Posted in: Open Forum

    Hello Everyone! I've actually been a member for some years now but I've never posted in here before.  Mostly I lurk or engage with the community through the SPM Facebook page.  But Dave deBronkart read my recent article covering the recent Exponential ...

  • Posted in: Open Forum

    I was pleasantly surprised to see that I can now access up to 3 full text articles that are coded as "subscriber only" per month on NEJM. It requires registering, which I had done long ago. I'm not sure when NEJM implemented this, but today was the first ...

    1 person likes this.
  • Posted in: Open Forum

    Brenda, Dave, John, Peter, Thank you!  I know I'm supremely biased (as a Google employee, and one who works on Healthcare-related stuff), but I am really heartened to see your take on this article and the balanced commentary on Google I've seen from ...

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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