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These forums and libraries are the platforms SPM uses to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to members. We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join

Latest Discussions

  • Posted in: Open Forum

    As I read through my Facebook Feed I become more aware each day of the systems we put into place that support inequality and hate, and promote denial of the very realities that, if we allow them too, will eventually destroy the fabric of our lives and ...

  • Posted in: Open Forum

    May I suggest the America's Health Insurance Plans [AHIP], the most powerful trade group for health insurers?  That may seem a bit odd, but they are interested in solutions that drive high quality care.  Having an open, equal relationship between care ...

    1 person likes this.
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    RE: Warner Slack

    Posted in: Open Forum

    Danny, many thanks for that fitting tribute. While I didn't know Dr. Slack, I did know him through Dr. Ken Walker at Grady Memorial Hospital when living in Atlanta back in the 80's while at Emory University Hospitals.  Looking forward to looking back ...

  • Posted in: Open Forum

    ​Done! ------------------------------ Marilyn Mann Kensington MD (301) 520-5488 ------------------------------

  • Posted in: Open Forum

    Justice is served: https://www.beckershospitalreview.com/legal-regulatory-issues/colorado-health-system-sues-patient-over-229k-surgery-bill-jury-awards-766.html

  • Posted in: Open Forum

    Thank you all for your responses. Yes Richard it was a teleclinic visit. Our institution has signed an agreement with Zoom to provide the platform for us to do telehealth. In our specialty of Otolaryngology Head & Neck Surgery there is big potential for ...

  • Posted in: Open Forum

    I'm also very excited by this news, after some admitted skepticism about this venture. Dr. Gawande has credibility, understanding of the industry, and a track record for change. I am now hopeful that they'll do something more exciting than what the typical ...

  • Posted in: Open Forum

    Marilyn, It's all good... Let me know if I can be of further assistance, or if there are other resources that might be helpful ------------------------------ It's A Great Day To Be Alive Cathy Bandy Tampa Bay, Florida jerzeycate@gmail.com 813-812-6679 ...

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    RE: Member Survey

    Posted in: Open Forum

    Looking forward to seeing your CQI discussions put into action, @Michael Millenson as I noted you've deleted your post. ​ ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben ...

  • Posted in: Open Forum

    In February I was hospitalized after a Migraine headache took control (of everything), even triggering a bout of Angina. Without going into minute detail regarding the whys and whos (because I don't think they are important here)I have a question about ...

  • Posted in: Open Forum

    https://www.eventbrite.com/e/chicago-participatory-medicine-meetup-tickets-47153268696 Eventbrite Chicago Participatory Medicine Meetup Come meet and learn about others in Chiacgo doing work to improve health ...

  • Posted in: Open Forum

    Hi all - I will be in Cleveland for the CC Empathy & Innovation Summit, starting noon Monday 6/18 and leaving Wednesday afternoon.  I know that Grace Cordovano is onsite - anyone else? Let's try to do a #S4PM meetup !  Text me 301-440-3209 or dm me on ...

  • Posted in: Open Forum

    Talya, Thank you for sharing the article in Psychology Today about your colleague who experienced acupuncture.   The point of this article is in line with a concept I am currently exploring - the role of trust in healthcare consumerism.   This is ...

  • Posted in: Open Forum

    The 10 th Annual Health Literacy Research Conference takes place October 21-23 in Bethesda, Maryland.  Scientific abstract submissions are being accepted NOW through June 15. Details and more info here: http://www.bumc.bu.edu/healthliteracyconference/harc-vii-call-for-abstracts-open/ ...

  • Posted in: Open Forum

    While fellow SPM member @Brennen Hodge can personally attest to what Citizen Health is doing, what do fellow SPM members think of another initiative led by a company called Hu-manity.co?  Brennen shared with me Hu-manity.co's founder and CEO's thinking ...

  • Posted in: Open Forum

    All kinds of direct, concrete awesomeness here. Thanks to all who contributed. ------------------------------ Marjorie Spencer Denmark ME 207 452 2011 Peer-to-peer counselor ------------------------------

  • Posted in: Open Forum

    Thanks to co-author David Andrews for sharing his experience: Find Out What I Know About Me: Improving Diagnosis through Patient Partnerships http://bit.ly/June18PEBlog Patient-experience Find Out What I Know ...

  • Posted in: Open Forum

    Thanks for the recap!! Although I didn't arrive until Friday late afternoon, I did get to experience the evening's events and painted a Walking Gallery jacket on Saturday for another member of the tribe! I am surely going to go next year and for the duration!!!​ ...

  • Posted in: Open Forum

    From the article: "We encourage FDA to recognize and support the changing nature of healthcare delivery when considering evolving regulatory schemes," wrote Hines and Wolf. "Demographic pressures of an aging population are driving a shift in healthcare ...

  • Posted in: Open Forum

    Thanks, Joe!  I'll update our blog post on this.  Is there a link to an article or web page about the winners? ------------------------------ Dave deBronkart SPM Board & e-Patient Dave LLC Nashua NH ------------------------------

  • Posted in: Open Forum

    Hi Everyone, I am in Boston this week speaking at BIO2018 and have decided to organize a meetup at Birch Bar at The Westin on Tuesday June 5th from 7-9 pm. Please see details below and RSVP.  Looking forward to seeing everyone! https://www.eventbrite.com/e/pinksocks-spm-meetup-tickets-46712621709 ...

  • Posted in: Open Forum

    Dear S4PM,  I wrote a blog piece about Patient Partners at Medical and Health Research Conferences. This a primer blog piece providing basic steps if an organization is thinking of including Patient Partners in their conferences.  https://hassanahhealth.wordpress.com/ ...

  • Posted in: Open Forum

    Thanks, Peter - always appreciate your diligence in these matters. ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 -------- ...

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    RE: G Suite Support

    Posted in: Open Forum

    To be used to ask questions or get help with our SPM G_suite tool, I assume? ------------------------------ The chief cause of problems is solutions. Peter Elias Member-at-large of the SPM Board Family Physician Auburn ME 207 576-0716 ------------- ...

  • Posted in: Open Forum

    Sarah, thanks for pulling yesterday's webinar together. I reached out to Dr. Holt- Lunstad who shared the following research paper published last year. Other SPM members might find valuable as it relates to social connection / isolation and health.  ...

  • Posted in: Open Forum

    Sarah, I just realized, I don't think I've seen a hashtag for this event - is there one? If we're live tweeting from it we could draw in some last-minute registrations. When I tweeted it I used #socialisolation but that's not even registered on ...

  • Posted in: Open Forum

    We have created the beginning of a collections of resources for our members who use G Suite (formerly known as Google Apps), since this is SPM's primary mechanism for developing and sharing documents, spreadsheets, surveys, etc. You'll notice that ...

  • Posted in: Open Forum

    Thanks for your continued volunteer service to SPM, @Peter Elias .  ​ What is the added functionality on SPM's end from a user's perspective?  ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben ...

  • Posted in: Open Forum

    Adrian, Europeans are much more concerned about loss of their privacy because they lived through the consequences in their history. I think Americans are less concerned because we are somewhat nave to downstream consequences. Thank you for keeping ...

  • Posted in: Open Forum

    Hi All A quick request when saying/asking that/if some is legal / not legal, etc., please give the country (and, if relevant, the state/province/other jurisdiction), or, if it's legal or illegal by international law, then please make that clear. Thanks ...

  • Posted in: Open Forum

    Here are the updated instructions for how to access your health information. You have a solid legal right to do this. EVERYONE should read this and do this. EVERYONE. You may not need the information today, but you will need it at some point. Don't ...

  • Posted in: Open Forum

    You're right, Peter this is excellent! Hopefully will scale to other ongoing complex chronic conditions as well. I'm also impressed with what Stephen Phinney is doing to address Type 2 DM with Virta. https://www.virtahealth.com/ I think the ...

  • Posted in: Open Forum

    Hi SPM-ers - We are closing out our survey looking at whether/how health systems, hospitals, and clinics work with patients and family members to drive transformation. If you've ever worked with a health system, hospital, or clinic to help with improvement, ...

  • Posted in: Open Forum

    It is 2 posts above yours @John Hoben . ------------------------------ The chief cause of problems is solutions. Peter Elias Member-at-large of the SPM Board Family Physician Auburn ME 207 576-0716 ------------------------------

  • Posted in: Open Forum

    Thanks to @Peter Elias for alerting me:  ​ ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 ------------------------------

  • Posted in: Open Forum

    Congratulations Lorraine and Gene! ------------------------------ Dee Sparacio #gyncsm Community Hightstown NJ ------------------------------

  • Posted in: Open Forum

    S4PM, I am hoping some of you might like to help to set the priorities for coming years on complex care for the National Center, it is a short survey they look forward to your input if you are interested Thank you! https://www.surveymonkey.com/r/8FZ95RK ...

  • Posted in: Open Forum

    Fantastic, @Diane Cashin - are you familiar with the work @Brennen Hodge is engaged in with Citizen Health as there may be some synergies?  Please see http://CitizenHealth.io Citizen Health ...

  • Posted in: Open Forum

    Thanks, Richard - I'm delighted to be serving on this group and look forward to next steps.  John ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

  • Posted in: Open Forum

    Hello, I'm working with a team to create a survey of nurses who are also family caregivers and a mirror survey for nurse managers or nurse employers. Fi you are or know of anyone who is in any of those roles, I'm looking for people who could take ...

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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Joseph Ternullo (President)
Susan Woods (President-Elect)
Jonathan Wald (Past President)
John Grohol (Treasurer)
Nancy Finn (Secretary)
Peter Elias (Member-at-Large)
Tracy Zervakis (Member-at-Large)
Danny Sands (Board Chair)
Sarah Krüg (Acting Executive Director)
Mandi Bishop
Kyra Bobinet
Donna Cryer (on leave)
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Dave deBronkart
Joe and Terry Graedon, (Co-Editors of JoPM, members ex-officio)
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Bruno Nardone
Jane Sarasohn-Kahn (on leave)
Charlie Smith (Editor of JoPM, member ex-officio)
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