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I see two problems, Peter.  Yes, the "payer" (or "plan", as some insiders call insurance) is not the intellectually right one to make such a call. Except that in the US, the whole freaking industry has become run by the money people. THE RESULTING ...

Again, so glad to have you with us, @Lorraine Johnson ! And I'm glad you find the discussion here meaty.  I've just finished composing a related post on my blog that will go live at noon ET ​Sunday.  I'll post a link here when it does. Earlier I uploaded ...

30 years ago, Professor Paul Arntson (my PhD advisor at Northwestern) wrote a paper entitled Improving Citizens’ Health Competencies, which was published in the inaugural issue of Health Communication. He argued for the primacy of the citizen role over ...

Another source of challenging (in both the sense of challenging one's ideas and often challenging to digest) conversations about evidence, science, and scientific method, I suggest looking at Less Wrong . It publishes a pretty steady stream of essays ...

I just tweeted this vignette from this morning: Me to provider office: I got an alert that you sent something via MyChart. I logged in and nothing's there. Can you just email it? Provider: We're not allowed to because HIPAA. Me: No, I know HIPAA, ...

If you don't regularly check all message sections, you may not have noticed that THREE people have already posted this week in Introduce Yourself.  Some pretty interesting profiles - glad to see this expansion! If you're not new but have never introduced ...

https://press.princeton.edu/books/hardcover/9780691174952/the-tyranny-of-metrics This is a great book on the topic across many fields. J. Greg Merritt, Ph.D. Founder and CEO Patient is Partner, LLC & Informational Interviewing, LLC Questionologist ...

In light of the recent Google / Ascension health data uproar, this tweet from July (at #Cinderblocks) is eye-catching: ​ "All @ AbridgeHQ employees take a digital hippocratic oath before they touch your data?! Wow." ------------------------------ ...

Interesting, Catherine. I'd like to hear more about your patient perspective about the usefulness of bedside patient portals. The thing that immediately occurred to me, in the study you described above? The patients/caregivers were provided with tablets. ...

Dear Colleagues, The draft agenda for the next board meeting Nov 26 at 6pm ET is here . There are likely to be some changes leading up to the board meeting. Please let me know if you have additional items or suggestions. For those on the board I will ...

I have long and vocally been in favor of SPM doing a test-of-concept initiative teaching clinicians-in-training how to collaborate with patients as partners. I was working on setting this up in a primary care residency setting but that project stopped ...

The Manifesto expresses the goals as follows: "Our goal is to empower and embolden patients, healthcare professionals and caregivers by spreading the practice of participatory medicine. Our movement will shake up the system to create a collaborative, ...

I was reading an article about emotional abuse by bosses, and this was one of the items listed: 6. 'Your therapy appointments make the company look bad.' "'Your visits to a therapist make the entire company look bad.' That's how I found out they ...

The recording of the webinar is now available:  https://centerhxd.com/resources/video-designing-a-more-humane-workplace-supporting-employees-that-juggle-working-and-caregiving/ ------------------------------ Geri Lynn Baumblatt, MA Pnicipal, Articulations ...

Yes, and thanks for considering this option. I’ll let you know (off list) if something develops. ------Original Message------ Hi Liz, they're visiting and have a tight schedule while in Chicago visiting different hospitals, etc. If you want, I can ...

Hello All, I would like to get the group's opinion on the NEJM Catalyst journal. They used to publish articles about Digital Health. They were free. They were in-depth views of digital health issues in clear language and I shared them with my undergrad ...

This is a good look from EPIC. I'm glad they're doing this. ------------------------------ Shereese Maynard Salisbury MD 443-500-1422 ------------------------------

That was nine months ago and talked about future research - is anything happening??  Sounds like something SPM should try to get connected with! ------------------------------ Dave deBronkart e-Patient Dave LLC SPM co-founder and past co-chair Co-admin ...

Interesting concept.  If I understand it right, you are creating a  bidding platform that enables patients to obtain discounts on healthcare.   Providing information for patients to even access healthcare options is a formidable task.  Putting the data ...

@Brenda Denzler @Adrian Gropper @Dave deBronkart Data and Goliath by Bruce Schneier recommended by Brian Kaney, speaker on the FHIR Standard Society for Participatory Medicine Conference October, 2019FHIR session SPM 2019 https://www.facebook.com/participatorymedicine/videos/539567450143262/ ...

Thank you Danny and Peter. It's my privilege! Brian ------------------------------ Brian Mack Great Lakes Health Connect Grand Rapids MI 6165884694 ------------------------------

So how did it go?? I sometimes wonder how life would be different if I'd moved to DC ten years ago ... other than "my mortgage payments would be a TEENSY bit huger than here in New Hampshire..." ------------------------------ Dave deBronkart e-Patient ...

I was so confused today on the patient empowerment workgroup call, Lisa ... the FHIR community is so full and diverse and inter-relating that I completely missed (at first) that the Lisa on this call was YOU!  And boy did that add to my own confusion. ...

I just tweeted to them , including your screenshot :-)  Hola @nejmcatalyst ... may I humbly suggest, the demographic categories on your newsletter sign-up list lack "patient" and "caregiver"? I believe this is called a modeling bias, and it ...

I thought so too. Marilyn ------------------------------ Marilyn Mann Kensington, Maryland @MarilynMann (301) 520-5488 ------------------------------

Hi all, @Denise Brown will be hosting the 4th Annual National Caregiving Conference here in Chicago Nov 7-9th. On Nov 8th,  @MaryAnne Sterling will be hosting a policy/advocacy track with a panel session called: Act at a State & Local Level. I'll ...

That's an excellent question Janice. The answer is probably no, unless research shows that voice prompts add value. The reason why I can guess no in advance is that we are using video games as our educational technology; and our market is folks who already ...

Every now and again I come across an essay so good it is painful to pick a teaser quote, because the entire essay demands to be read. Careful and Kind Care Requires Unhurried Conversations is such an article. Here's part of the lede: "In order to ...

This is fantastic news, @Brenda Denzler - well deserved! Godspeed to you in Amsterdam.  ​ ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

Starting a "daily" (translated 'when I see something') health hacker award shout out for neat people I see doing amazing things. Today's award goes to this ortho surgeon:  https://twitter.com/cadiulus Twitter ...

Dear Participatorians: Members of the Society for Participatory Medicine elect two members-at-large to participate in the executive committee and the board of directors. Any member is eligible to self-nominate for member-at-large. Besides participating ...

Just shared via our SPM twitter! https://twitter.com/S4PM/status/1189323771322228736?s=20 ------------------------------ Amber Soucy, MSN RN S4PM Board of Directors S4PM Social Media Lead Twitter: @wheezynurse Email: wheezynurse@gmail.com Website: ...

Hi all, Just resurfacing the Quick Start Guide for SPM Connect that @Peter Elias took the time to create.​ Please give if it a read if you haven't already and offer any suggestions for additional information that it will be beneficial to include. ...

I went to AHIP's main event a few years ago - seemed very much like HIMSS in that it was a lot if industry professionals talking to each other and there was less interaction / engagement with other stakeholders. I haven't been to the other AHIP events. ...

I wanna gooooooo.....     Seriously, Chicagoland, it was exhilarating to visit with this group - twice, so far, I think.  Well worth an evening. ------------------------------ Dave deBronkart e-Patient Dave LLC SPM co-founder and past co-chair Co-admin ...

Gretchen I'm so very sorry to hear of this devastating loss. I would speak to someone knowledgeable about inherited cardiovascular disease and sudden cardiac death in the young for what questions to ask. If you can arrange to speak to the pathologist ...

Dear board colleagues (copy to all members): Next board meeting is 10/29 at 6pm ET at usual Zoom line. Let me know if you can't attend for any reason. Draft agenda is here .  Please do pre-reads and be prepared for discussion. Comments welcome. ...

Greetings, This is a starting resource opportunity  though no resources should be referenced until researched. I have specialized in resource guides for individuals seeking assistance for three decades, I would not refer people here. As I mentioned it ...

Do you have an iPhone? I was able to access it with the iPhone Podcasts app. Marilyn ------------------------------ Marilyn Mann Kensington, Maryland @MarilynMann (301) 520-5488 ------------------------------

It was a wonderfully organized conference. I have taken some time to reflect, but I will get some thoughts out on the blog next week. And now, because I shared this publicly, I will have to deliver! :) ------------------------------ Thanks, Ileana ...