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Ahhh.... I see.  I have to agree: when you have a good relationship with a doctor already, it's easier to roll with it when snafus happen. ------------------------------ Brenda Denzler MedicalPTSD.com Pittsboro NC 919-418-0628 ---------------------- ...

HIMSS21 Global Health Conference & Exhibition  August 9-13, 2021 | Las Vegas, NV  HIMSS Global Health Conference & Exhibition (held August 9–13, 2021 virtually and in Las Vegas) brings you the world-class education, cutting-edge products and solutions, ...

Hi all Is there anyone here who is interested in patient registries? My daughter died from rare disease 4 years ago and since I also have professional experience in data analysis I have been trying to help with some patient registry efforts. I'd be interested ...

I signed up. I had to assume it was a virtual meeting, as in-person meetings are still very few and far between and tend to involve only folks who are already local.  Once, during cancer treatment, when I was in the midst of a raging Code Red PTSD attack ...

You are cordially invited to join the Linnea Olson Hackathon, which is meeting online on Fridays at noon Eastern. The sessions will be recorded if you are interested but have a conflict. Linnea is a charismatic lung cancer patient who has been ...

Thanks, Marilyn.  Moral of the story: What goes into your medical record can make a difference in all kinds of ways that you may not foresee. So make sure that it's as accurate as possible.  Brenda ------------------------------ Brenda Denzler MedicalPTSD.com ...

This is an excellent piece, Geri!  I appreciated hearing the information about how technology can help in this situation - that removing human judgement from the question about symptoms of depression or anxiety allows people to feel more comfortable disclosing ...

Hi Lisa. Thank you for mentioning The Informed Patient in this thread, I have read it. It's a paragon of health literacy! Moreover it's genteel, like a tour guide at Gettysburg.  I wish the book had room for a section on health insurance, the front door ...

I must apologize. I didn't realize that there was a geo restriction until they mentioned it during the discussion of the film. If I had known, I would have only sent the email announcement to my DC area subscribers. They did mention that they are showing ...

Thanks. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 576-0716 ------------------------------

https://docs.google.com/spreadsheets/d/1p9aTCZIsD2aLbSt-K1JXkv5sLdrmpu8U/edit#gid=2081922927 Google Docs 3.23.21 agenda.xlsx Sheet1 Society for Participatory Medicine Board Meeting 3/23/2021 6-7:30pm ET Board ...

I read Christakis's Connected. The premise of the book is both illuminating and eerie. That people are strongly influenced by their position in a social network, more than they are by personal contact with individuals. I could say, for example, that many ...

@John Grohol - I'll continue to moderate on a volunteer basis.​ ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 ...

This is a very positive step. Thank you for the hard work and dedication. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ...

If anyone wants to access the free recording of this Athena Forum presentation and discussion on patient engagement and education that @Eran Kabakov and I participated in, it's now available here along with many other great past webinars:  https://athenaforum.net/cv_issues/ ...

A Year in America's First COVID Epicenter | The New Yorker A Year in America's First COVID Epicenter James Ross Gardner Twelve months after Seattle suffered the first reported coronavirus death in the ...

Change of pace.  Learn from the clowns. Embrace failure, take a deep breath, laugh, cry, engage. Revisit chat with Jason Stewart from Laughter League at Boston Children's.Hospital. Listen here https://www.health-hats.com/pod114/ ------------------------------ ...

A quick heads-up:   At 9 ET this blog post will go live. I haven't been involved in the project per se, but as it says, this is a major campaign for SPM this year, so please please circulate to your communities! UPDATE: it's live: https://participatorymedicine.org/epatients/2021/03/shake-up-the-system-sign-and-share-the-participatory-medicine-manifesto.html ...

Good Evening, fellow SPM-ers :) I hope everyone remains safe and healthy.  Over the next few weeks, I will be updating our @S4PM twitter lists, and would like to particularly focus on "SPM Members on Twitter." If you don't know what a Twitter list is ...

The Society for Participatory Medicine has once again added its voice to a letter endorsing an AHRQ seeking more research on some of the most critical health system issues raised by COVID-19.  We are in good company. The are 118 signatories that include ...

https://docs.google.com/spreadsheets/d/1V2Mcqhvf9S98bAIK1UvBPa8ks75Obf8O/edit#gid=1741809881 Google Docs 2.23.21 agenda.xlsx Sheet1 Society for Participatory Medicine Board Meeting 2/23/2021 6-7:30pm ET Board ...

No, VAERS is not a reliable source of informatiion about COVID vaccine side effects. VAERS is a list of reported events that occur after a vaccination. It does not attempt to determine causality. ------------------------------ Every good deed is worth ...

I edit for a number of science-y types who have the added disadvantage of having English as their second language. Thus, most of what they read in English, and thus how they learn the nuances of English, is via science writing in their specific fields. ...

Yesterday's Wall Street Journal had a great article about how patients are taking the lead in research regarding COVID-19. Click below for a link to the article. Covid-19 Patients Are Doing Their Own Research ------------------------------ ...

The event description sounds good. I'm looking forward to it. H U M A G I N A R I U M Robert S. Becker, PhD, CEO https://www.humaginarium.com (312) 788-7719

Sorry for the error in posting! Mary https://drive.google.com/drive/folders/1f5btLeygi-3keE3GoKFF31q7tzuw2I_v?usp=sharing ------------------------------ mary hennings concord ma 978-369-2759 ------------------------------

Hi Robert, I think it depends where you look, what you have access to, and what you call it:  health promotion, patient education, shared decision making, health communication, etc.  Many of us have spent decades creating interactive, engaging content ...

https://drive.google.com/drive/folders/1PE181cZim-5BrblWOW2t48cArWkA2T0i The link to the folder with board materials for 1.26.21 is above. Thanks, Mary Hennings Interim Board Chair ------------------------------ mary hennings concord ma 978-369-2759 ...

For those who are interested, more information can be accessed at ResearchtothePeople (website https://www.researchtothepeople.org/ and Slack researchtothepeople). If you have any questions, difficulties in plugging in, or comments, I am happy to help. ...

This looks great. Thanks for sharing it! ------------------------------ Erin Moriarty Wade Self-employed Boca Raton FL 404.931.2377 ------------------------------

SPM members are collaborating to offer a free screening Dr. Jessica Zitter's new film on #familycaregiver burden later this month for HCPs: Family Caregivers need more support both from care teams. Healthcare providers are invited to join a  free ...

Excellent tip, thank you Brenda. The lead author Len Berry is a venerable master of marketing science, a learned amplifier of the voice of the customer. The article leverages the theory of learned helplessness, a pillar of positive psychology discovered ...

Thanks John, I was hoping you'd say that. Hope you had a nice Christmas... Are you down in Bradenton? ------------------------------ It's A Great Day To Be Alive Cathy Bandy Tampa Bay, Florida jerzeycate@gmail.com ------------------------------

Michael, thanks again for your original post. Please forgive me if I took things off track. Personally, I think everything is connected so we will persevere. Peter, thanks for your cogent description of aerosols outdoors. Your description lines up ...

I'm fond of lifting pearls of wisdom from unlikely places, like popular culture for example. I think it was Bob Dylan who said, "don't criticize what you can't understand."  Do patients understand medicine and healthcare? I think not. I doubt that ...

@Danny Sands Well done, my friend. I'm sure the few minutes of opened time will swell shortly.  ​ ------------------------------ Danny van Leeuwen Health Hats www.health-hats.com @healthhats ------------------------------

Board Agenda Link https://docs.google.com/spreadsheets/d/1vV2tLYOGXq6k3D4s5qeti8qw5mNZjEwq/edit#gid=647762765 ------------------------------ mary hennings concord ma 978-369-2759 ------------------------------

Transparent communication in healthcare. Connection, trust, control. Research to practice. Change management. Community organizing. @Liz Salmi tells her story of OpenNotes. Listen to podcast episode here https://www.health-hats.com/pod102 ...

I love it when people do that, Peter! The docs I've had who've done that with me--they are exceptional. And what I've found is that THOSE are the docs practicing in my health care system who, it seems, wind up leaving not just the system, but medical ...

Hello, I am doing some freelance work for a company that helps connect patients and their physicians with Clinical Trials and other pre-approval treatment options. I was wondering if any physicians here might be able to speak with me for a few minutes ...