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Sandy, this is great - thanks so much for sharing! @Amber Soucy, MSN RN , tagging you in because this looks like something that would be worth promoting on social media, in case you're not already planning to do that. ​ ------------------------------ ...

The BMJ has just published a strong review of preventable harm (5% of all hospitalizations!). Prevalence, severity, and nature of preventable patient harm across medical care settings: systematic review and meta-analysis Both should be cited ...

Hello, I'm happy to announce that out next Virtual Town Hall will be Tuesday, Aug. 13 at 7:30 p.m. Eastern time. You can see the Calendar for additional details or click on the link below. We'll begin with a presentation about the Strategic Plan and ...

Thank you Catherine. Having emptied my wallet on the previously mentioned forthcoming Handbook, I will order the two books you mention from the library; and contact Dr. Logan as well. Hoping to meet you some day in Madison or Chicago, wherever our ...

I absolutely agree.  But we are going to need a better graphics person to capture it.  :D  I would also add in Industry (biopharma and medical devices), which could lead us to regulators and even policymakers.  The point is, if we have a basic framework, ...

Thank you for the details, everyone! I will reach out to @Susan Woods for further questions. ​ ------------------------------ Liz Salmi Patient Senior Strategist, OpenNotes Project Lead, Brain Cancer Quality of Life Collaborative ---------------- ...

Unrestricted but we have to report on how we spent it. When I requested it I made the case that this would help us hire an executive director and do other things to grow the organization. - Danny Daniel Z. Sands, MD, MPH +1-617-256-4775 Danny@DrDannySands.com ...

The mailmen and telephoning (boyfriends) are now using Facebook. That leaves the laundry delivery as the next Facebook service after their Libra currency. Remember, you heard it here first. Adrian -- Adrian Gropper MD PROTECT YOUR ...

Dear Amanda  Cc S4PM members Amanda, thank you for sending out this International Pain Summit patient engagement opportunity to be held in Los Angeles November 14-16th. I have forwarded - posted this opportunity in Yammer PCORI Ambassadors and PFCC ...

And thanks to @Denise Brown for organizing - and to her and @Melissa Rowley for speaking. ​Thanks to everyone for coming! ​If you have pics, please share them -- one is attached. And we're looking for speakers and organizers for the Sept meetup. ​​​ ...

I found this quote of interest: "A separate study in the Journal of Clinical Oncology showed that a majority of patients with thyroid cancer felt they did not have a choice about RAI treatment, particularly when their physicians were perceived as ...

Patient-Centered CDS Learning Network 2019 Annual Meeting Registration is OPEN The 2019 Patient Centered Clinical Decision Support Learning Network Annual Meeting, Optimizing Health through Patient-facing Clinical Decision Support, will be held ...

A big start-up grant from the Robert Wood Johnson Foundation, which would mean specific goals/activities for our group. Brenda ------Original Message------ Updating next day - I deleted (strikethrough) my statement that SIDM was started by Hopkins. ...

OK. Thoughts on Project LEAD: 1. Their use of Ph.D. and M.D. researchers as the teachers was important. First, because these folks didn't just "know" the material well enough to teach it, but really used their knowledge on a daily basis in their ...

I just posted (in the Membership Connect Community) an update on the work being done by the Membership Group, in the event that any SPM members would like to follow or help with this effort. ------------------------------ The chief cause of problems ...

Thank you for sharing this, Peter! OpenNotes is having some breakthroughs month by month. It is an exciting space to be in! ------------------------------ Liz Salmi Patient Senior Strategist, Outreach & Communication, OpenNotes Project Lead, Brain ...

Thank you I have sent out two recent webinars where I presented. Thank you Janice Tufte Sent from Yahoo Mail on Android ------Original Message------ Your points highlighted my main focuses, Lynda! Connect is a great resource for thought ...

What she (Casey) just said below... a big #me too (but keep reading anway) >> In short, unless we - as a membership, not just the BoD - can come up with ways to fund the work, we'll just keep having these same conversations. In the almost-decade ...

Encouraging Questions: The July #patientengagement blog is up! Thanks to AHRQ's Cindy Brach for co-authoring on their free resource to help patients ask questions http://bit.ly/JulyPEblog Patient-experience ...

Hi Peter - here's the brief blog on their app. I wasn't able to get data on utilization to date:  Encouraging Questions: The July #patientengagement blog is up: Encouraging Questions  http://bit.ly/JulyPEblog Patient-experience ...

Robert, that is exactly what I did. I had to learn the doctors' language AND their worldview, because the language was foreign to me, and the worldview.... Well, if I'd been trying to live among Martians, it couldn't have been stranger to me. The ...

@Amber Soucy, MSN RN does all the social media and @Judith Danielson does all the marketing ​​ ------------------------------ Burt Rosen Portland OR 2034709948 ------------------------------

This was posted by @Kate Lorig in another thread a few moments ago and deserves its own thread. Here is a website for all the evidence based health programs that are usually offered free or at low cost all over the country http://www.eblcprograms.org/evidence-based/map-of-programs/ ...

Thank you for posting the survey for the National IT PFAC seeking input for the perfect patient portal. Any and all of the input will help to frame to synthesize ideas and hoped for portal opportunities for the PFAC to develop out a prioritization list ...

After a good but nevertheless slightly frustrating meeting with my 2 nd opinion onc doc yesterday, I came away able to articulate something that bothers me: As far as I know, Chinese medicine responds to changes in physiological function at an earlier ...

Thank you, Sue. For a volunteer organization, the amount of energy and involvement across the membership is breathtaking! - Joe ------Original Message------ Hello Friends, This is a milestone year for SPM - a decade old. ...

Returning to a comment I posted a while back about structures and processes. I came across this aside in The Great Influenza , by John M. Barry: "Institutions are a strange mix of the mass and the individual. They abstract. They behave according to ...

thank you all for the comments, input and support! I am going to incorporate the feedback and get it to a writer with @Judith Danielson and hopefully turn it into something that represents us well. In terms of pledge vs manifesto, it might make sense ...

All, I wanted to remind you that as we shape this year's conference, we want to hear from you. Please join our standing weekly 1/2 hour SPM conference planning touchpoint call this coming Monday at 5:30 Eastern. Dial in is 781-202-6465 - no pin ...

Brenda - please despair not. Sorry for the stress interacting with JoPM. The "journal" has 2 parts. One is the Editorial Board. This group of individuals - all SPM members & passionate PM advocates - help get papers reviewed. Papers go out to reviewers ...

If we speak loud and clear we just might get to a patient-centered longitudinal health record. The regulators, the doctors, and the service providers need to hear from you. Please consider adding your voice in this rather public forum: https://thehealthcareblog.com/blog/2019/06/20/remembering-the-real-stakeholders-patient-privacy-rights-comments-to-tefca-draft-2%ef%bb%bf/ ...

@Beth Barnett I agree with you and I would say that was the reason why I have joined spm.  I feel providing a safe environment for patients to participate is what I advocate for, in a concise statement, regardless of whether patients can speak for themselves ...

Here's a very thorough review of CCD access across the land. https://medinform.jmir.org/2019/2/e12348/ Don't be confused by the research focus of the paper. It applies to patient access for clinical purposes just as much. CCDs are good ...

Hello Friends, As we shape this year's conference, we want to hear from you. Please join our standing weekly 1/2 hour SPM conference planning touchpoint call this coming Monday at 5:30 Eastern. Dial in is 781-202-6465 - no pin needed. We want ...

This is quite a roller coaster ride.   Stuart Schreiber, co-founder of the Broad Institute of Harvard & MIT, relates his odyssey of tracking down his family's secrets.  Not for the faint of heart - but, ultimately, an inspiring Father's Day story (a US ...

Indeed. I highly recommend this book! Not just about healthcare... -- J Greg Merritt, PHD CEO/Founder PatientisPartner Patient Advocate Cell: 734 323 3455 Patients contain pearls of wisdom waiting to be tapped to solve your most thorny problems ...

You have an interesting problem with persistent "runner's" leg pain, Gangadhar. When you said, this time, that the pain is there at even a low level all the time, it made me remember something I've been noticing about myself. I'm not getting that ...

Good contribution, Brenda.  Passing responses: > I'm highly skeptical that all human states of ill health can be translated into algorithms  Time will tell ... perhaps more important, though, is the hope that AI can do a  lot  of the  trickier  parts ...

I endorse this - I won't make it this year, but it's DEFINITELY a worthwhile conference. The sessions are very high value. Casey Quinlan (she/her) the "Mighty Mouth" Mighty Casey Media Cancer for Christmas Twitter ...

No, there was absolutely nothing informed-consent-like in either the recruitment email (which is where, as a researcher, I generally put all the informed consent language) OR in the survey -- which is exactly what made me nervous.  The advocacy organization ...