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These forums and libraries are the platforms members of SPM use to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for our SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to logged-in members. If you are a member and see this, it means you are not logged in.

We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join.

Latest Discussions

  • Posted in: Open Forum

    John, The event is online, so you can attend. Best Marilyn ------------------------------ Marilyn Mann Kensington, Maryland @MarilynMann (301) 520-5488 ------------------------------

  • Posted in: Open Forum

    This Giving Tuesday, why not consider a donation to the Society? It's quick, it's easy, and it may be tax-deductible (depending on your tax situation)! http://participatorymedicine.org/donate/ I'm going to donate right now... :) Best, John ------------------------------ ...

    1 person likes this.
  • Posted in: Open Forum

    For anyone who is interested to attend: the 1st Caregiver Visionary Awards are taking place on Facebook Live on Tuesday, Nov 24. Please share - half the point of the awards is to raise awareness about the impact on family caregivers and how individuals ...

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    Board Materials

    Posted in: Open Forum

    Hi All, I hope you are all well. Please find a link to board materials and agenda for next Tuesday's meeting. Happy Thanksgiving. Mary https://docs.google.com/spreadsheets/d/1QXnjn8BIAAqIeCq1ynW0-alupzoAJSQb/edit#gid=1511550919 Google Docs ...

  • Posted in: Open Forum

    Hi everyone! I'm Chris, from Abridge. We recently joined the Society for Participatory Medicine because we believe our goals are aligned with SPM's Manifesto. In particular, the tenets of helping patients and clinicians "Share and Listen" and "Share ...

  • Posted in: Open Forum

    Person-included research, co-production, tragedy, grief, health equity, and relationships in life and research. Chat with Amy Price of Stanford and BMJ. https://www.health-hats.com/everyone-included-research . ------------------------------ ...

  • Posted in: Open Forum

    Hi All, Please find materials for tomorrow's special board meeting. Thanks, Mary Agenda link: https://docs.google.com/spreadsheets/d/1PwU0ZW4BgHqQ9_2GrdMwywbcC21W5aRs-uv57k1T7n8/edit#gid=0 ED Sub-Group Discussion Notes link: https://docs.google.com/document/d/1Gq5MtJH3JGpLZtpaVMNsCJTwE6BPYt8Z/edit ...

  • Posted in: Open Forum

    I don't know her, @Susan Woods . But I'll reach out. You can, too. It's a very good idea.​ ------------------------------ Danny Sands Board Co-chair Danny@ParticipatoryMedicine.org Danny@DrDannySands.com http://DrDannySands.com +1-617-256-4775 ---- ...

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    Failure Ink

    Posted in: Open Forum

    Amazing includes failure, frequent failure. Hearing about a failure, we naturally ask, 'And then what happened? What did you learn? What eventually worked?' A brief podcast episode with Health Hats. Podcast episode   ------------------------------ ...

  • Posted in: Open Forum

    Hi Dave Thanks very much this. Regards Ken ------------------------------ Ken Masters Researcher / Academic SQU, Oman ------------------------------

  • Posted in: Open Forum

    Neely Williams, change agent, pastor, attending to communities' spiritual and physical health through engagement and profound listening. Health Hats, the Podcast episode https://www.health-hats.com/minister-to-community-spirit/ ------------------------------ ...

  • Posted in: Open Forum

    Ummm, I checked with two browsers before I posted. The error message is below. YOU can access the black links because you are on the Board. The problem is (and has been for a long time) that the Board by default stores pretty much everything it does ...

  • Posted in: Open Forum

    If Brad is having trouble logging on to Connect, he should let Danny Sands know. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician ...

  • Posted in: Open Forum

    Thanks Peter.  I added them to the show notes ------------------------------ Danny van Leeuwen Health Hats www.health-hats.com @healthhats ------------------------------

  • Posted in: Open Forum

    This has been a much discussed concern for years. Too much of the conversation has focused on why our membership remains small rather than how to invite, inspire, engage and retain more members. (I've been guilty of that.) Discussing how we got here ...

  • Posted in: Open Forum

    Thank you @Adrian Gropper ! Though kudos go to @Michael Millenson as he did the heavy lifting​​. Thank you also to the BOD and @Danny Sands who made sure that the letter was reviewed and approved in a timely matter.​ ------------------------------ ...

  • Posted in: Open Forum

    Thanks for posting this Katherine and for all the great work you and @Mitchell Li did to put this together. I highly recommend people check it out. ​Direct Primary Care is a very interesting model and also seems like a way for clinicians to thrive vs ...

  • Posted in: Open Forum

    I have written to her as well, now, John. She may not join, but at least she will have had two folks suggest that she consider it. Brenda

  • Posted in: Open Forum

    Thanks, Geri. ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 office +1 585 370 0847 mobile / text john.hoben1 Skype ------ ...

  • Posted in: Open Forum

    Hi all - please nominate people and orgs for these family caregiving awards! - geri https://www.caregiving.com/awards Caregiving Caregiving Visionary Awards 2020 - Caregiving.com Show your appreciation ...

  • Posted in: Open Forum

    Hi all,  I have come to know Moyez Jiwa, MD, a physician and researcher working in Melbourne, Australia, who publishes the Journal of Health Design (JHD). He also does the Health Design Podcast as a companion of sorts to the JHD.  Dr. Jiwa shared some ...

  • Posted in: Open Forum

    Congratulations Danny! I know you'll represent us well. It's interesting that a research institute doesn't include representatives from higher ed. Jay Spitulnik, PhD, CPT Associate Teaching Professor Director of Health Informatics ...

  • Posted in: Open Forum

    Janice, I just sent you an invitation to join the group. If you go to Facebook, you should be able to accept the invitation. Otherwise, anyone can send a request to join and then the administrators can approve it after checking to see if the person ...

  • Posted in: Open Forum

    Sara Welcome to SPM and thank you for your efforts in writing this book! What an accomplishment. The Informed Patient is a wonderful title. I am hoping you enjoy your colleagues and discussions here on connect and hopefully in person one day! Sincerely ...

  • Posted in: Open Forum

    Hi Victoria, Nice to "see" you again!  My thinking is no, SPM is not a member of NHC. NHC has a number of requirements for membership, including paying a significant fee and meeting all of its Standards of Excellence, two of which, I believe are an annual ...

  • Posted in: Open Forum

    Join tonight's #carechat on Twitter for a discussion on the intersection of caregiving & working with myself and other members: @Pete Wendel , @George Karavattuveetil & Olga Masevich & others. ​​ Sept 27 at 8pm CT / 9pm CT #CareChat ​​ ...

  • Posted in: Open Forum

    Thanks for letting us know about this. I read the Facebook blogpost, and looks like they are doing a number of things, such as archiving groups that no longer have an admin, flagging misinformation, limiting the extent to which Facebook recommends groups ...

  • Posted in: Open Forum

    Update to my recent post. According to the National Consumer Voice for Quality Long-Term Care, CMS just yesterday (9/17/2020) has amended the guidance for visitation in Nursing Homes. This is a great win for patient advocacy! I'll refer you ...

  • Posted in: Open Forum

    Thank you @John Novack and @Beth Barnett  I appreciate your comments and article on the importance of Patients included in conferences. At UW ITHS FHIR conference held Friday and Saturday, I learned quite a bit about APIs (4.20 = 611 APIs 23% FHIR ...

  • Posted in: Open Forum

    @Adrian Gropper , I recently started working at an advocacy company called https://www.northshorern.com/ . We are in Chicago area but my boss has networks of people she knows if you need a referral in other areas. We do help out on issues like you have ...

  • Posted in: Open Forum

    Hi Catherine, I understand well your concern and I hope your mother gets better soon. This may sound like self promotion but helping with communications to family and caregivers was the central idea in developing our platform. We hope applications like ...

  • Posted in: Open Forum

    Hi Beth, In the past, thy've mainly included patients on some of their panels, but it's definitely more of an academic/research event. At this point, the date has passed to submit panel proposals, etc. Since they only added the patient advocate rate when ...

    1 person likes this.
  • Posted in: Open Forum

    Dear SPM colleagues, How are you?  I hope you are keeping safe and well in these extraordinary times.  I am writing because I need your help. When I first joined SPM circa 2014, I was still in the middle of intensive treatments at Stanford ...

  • Posted in: Open Forum

    Thank you for sharing.  This is an area of great interest for me. ------------------------------ VictoriaFerro ria.ferro@gmail.com ------------------------------

  • Posted in: Open Forum

    Hi, fellow spmers! I have an important initiative I am promoting and looking for help. 9/17 is World Patient Safety Day and I am looking for influencers who can light up their buildings in orange. Full guideline is here: https://patientsafetymovement.org/unite-for-safe-care/take-action/support-uniteforsafecare/ ...

  • Posted in: Open Forum

    The Federal Trade Commission and state AGs enforce commercial speech, including mis-labeling. The standard is key because if someone says 5 g of Sugar and it's really 15, then the breach is clear. You don't need to go to a court. Apartment Lease contracts ...

  • Posted in: Open Forum

    Sorry, Marilyn - I don't know how that happened!  I fixed it, and here's the link for you. https://www.caringbridge.org/visit/davedebronkart/journal/view/id/5f4828bb1a8cec000156691b ------------------------------ Dave deBronkart e-Patient Dave LLC SPM ...

    1 person likes this.
  • Posted in: Open Forum

    @Susan Woods ​ and everyone involved with the JoPM, a big congratulations! PubMed, PubMed Central and Scopus is a huge win for the journal and for S4PM (echoing previous comments, and speaking as a board member of a collection of medical journals). ...

  • Posted in: Open Forum

    I am working with Dr. Lakshman Swamy, (pulmonary and critical care) on a project that helps people understand the inner-workings of an intensive care unit.   It is actually a card game with medical terms "translated" into language that is understandable ...

  • Posted in: Open Forum

    The Society for Participatory Medicine has added its voice to a letter endorsing a House bill seeking more research on some of the most critical health system issues raised by COVID-19. Of particular interest to our community is expanding telehealth and ...

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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