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These forums and libraries are the platforms members of SPM use to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for our SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to logged-in members. If you are a member and see this, it means you are not logged in.

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Latest Discussions

  • Posted in: Open Forum

    As I said on Twitter, Grace, I for one admire the strength and clarity of your wording.  It looks to me like the forces of data blocking are digging in for a goal-line stand, and participatory medicine needs action. Meanwhile,  @Keith Boone (a savvy ...

  • Posted in: Open Forum

    You're right, John. I either wasn't aware of these resources from the Joint Commission, or else I had forgotten about seeing them before. I think the handout from my hospital is more detailed than the one from the Commission (or perhaps is a compilation ...

  • Posted in: Open Forum

    Dear members, the agenda for next week's board meeting is here . Danny ------------------------------ Danny Sands Board Co-chair Danny@ParticipatoryMedicine.org Danny@DrDannySands.com http://DrDannySands.com +1-617-256-4775 ----------------------- ...

  • Posted in: Open Forum

    From BMJ Patient Editor Juliet Dobson. All three pieces are open access. At bottom I'll paste in the research paper's Visual Abstract. ========== The BMJ has just published a new package of articles on the topic of patient organisations financial ...

    1 person likes this.
  • Posted in: Open Forum

    Oo, just ran across this weekly event in Blackford Middleton's Nuzzel newsletter, from the Society to Improve Diagnosis in Medicine.  It's targeted to med students but what a great opportunity for us to learn things and listen in on their conversations.  ...

  • Posted in: Open Forum

    https://www.linkedin.com/posts/activity-6624947830236725248-D06B Linkedin Sign Up | LinkedIn 500 million+ members | Manage your professional identity. Build and engage with your professional network. Access ...

  • Posted in: Open Forum

    Thank you Peter I will reach out to David. ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 office +1 585 370 0847 mobile / text ...

  • Posted in: Open Forum

    @Thomas Caruso , @Jan Oldenburg Do you know of a review of this book? Thanks for alerting us to that book. I have included Jan because she has published for HIMSS regarding participatory medicine. Would you pass along a link to a review of the book. ...

  • Posted in: Open Forum

    The lobbying goes much deeper than people realize. CARIN Alliance has been set up by would-be intermediaries that want to keep patients from being able to direct sharing of records among Epic and other provider systems. https://thehealthcareblog.com/blog/2019/12/18/patient-directed-uses-vs-the-platform/ ...

  • Posted in: Open Forum

    Dave, Thank you for sharing. I was in a sort of heated discussion with a friend about this Saturday evening, where he was insisting the current situation is similar to historical Pakistan/Indian feud. I kept saying no this is current situation is much ...

  • Posted in: Open Forum

    Thank you again, Kate! So glad for your participation here. I've been involved in a very modest amount of peer review myself, and I've been pretty shocked at show schlocky it can be, failing to spot things that even I can tell are poorly done. And that's ...

  • Posted in: Open Forum

    I too noticed that I have the ability to add photos/ images on my patient portal at KPWA.  Another opportunity us KPWA  portal users have available, is the ability to add a thumbnail photo of ourselves to our patient portal main page that pops up when ...

  • Posted in: Open Forum

    Fascinating and challenging post, Peter.  I've never heard it put that way. Who are the exemplar organizations you've seen, in this framework? Have any of us ever seen an organization flip from faith to "religion" or the other way? ------------------------------ ...

  • Posted in: Open Forum

    Thanks for the feedback, Peter. I'm going to think about what you've written.... I mean, really give it some thoughtful brain time. As for the "bargaining" thing...that is precisely what the hematologist and I did at the end of May last year. I conceded ...

  • Posted in: Open Forum

    BTW, back to the original topic on hospital profitability, today's "Vitals" update from the Axios website says it perfectly with actual data: rural hospitals struggle, while not-for-profit systems increasingly act "like corporate titans." A true reality ...

    1 person likes this.
  • Posted in: Open Forum

    Finally made time to read this. Nice paper. We've come a long way. The paradox, of course, is that we also have a better understanding of how long the total journey will be. ------------------------------ The chief cause of problems is solutions. Peter ...

  • Posted in: Open Forum

    As a nurse, this looks very familiar. This is what we had to decipher in both provider notes and orders sections of the paper health record. Not only were there issues with the handwritten style for immediate patient care, these notes had to reviewed ...

  • Posted in: Open Forum

    Had I seen it in 2018, I would have posted about it then.  I posted today because that's when I saw it. Thanks to a Tweet. I posted it because of its relevance to OUR annual conference and to SPM's mission in general. I know we provide some assistance ...

  • Posted in: Open Forum

    Precision medicine - we're in the earliest days, compared to where we will probably be someday. I have nothing to add about that drug, but in light of Brad's response, I'll note something about my own kidney cancer case. (Long-timers already know this ...

    1 person likes this.
  • Posted in: Open Forum

    contact me off line lorig@stanford.edu ------Original Message------ Hi Kate, I'll definitely take it and share it with my network. Care partners/family caregivers is my main focus these days, so I'd LOVE to hear more about the scales you're working ...

  • Posted in: Open Forum

    Done :-) ------Original Message------ Holy crap, a blog post I wrote, linking to this "one-pager," just got published a week earlier than planned.  So it's time to finish ASAP. https://www.solutionreach.com/blog/important-hipaa-update-new-penalties-clinics-get-85000-fines-for-not-releasing-data-to-patients ...

  • Posted in: Open Forum

    It's in the original post  (November 22nd) about the Town Hall when it was scheduled for December.The contaxt information was not added to the announcement about rescheduling.  Here is the info, assuming it is still accurate:   ...

  • Posted in: Open Forum

    Here's a short blog post that made me feel good. It is written by Dr. Hans Duvefelt, a family physician in Maine whom I know (and respect) from the time he was a resident and I was an attending and a part-time faculty member in our local residency. ...

  • Posted in: Open Forum

    Fair point. ------------------------------ Michael Millenson Health Quality Advisors LLC Highland Park 312-952-1075 ------------------------------

  • Posted in: Open Forum

    https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/MMS/TEP-Currently-Accepting-Nominations Cms TEP Currently Accepting Nominations This page serves as the designated site that ...

  • Posted in: Open Forum

    @Sara K Schneider , tagging you to make sure you saw this as it relates to "the human journey."   ​ ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

  • Posted in: Open Forum

    Thanks for your transitional support, @Peter Elias as we serve interim capacities.  Who would like to help us find a more "permanent" admin team, @Sara K Schneider , @Cathy Aumack , @Grace Cordovano , @Francie Grace , @Linda Stotsky , @Tom Rivers ...

  • Posted in: Open Forum

    Thought fellow SPM members might find this note I sent earlier today to the Healthcare Hackers list of interest.  John ___________________________ Good morning, FFLFFFnF (fellow faces like flint for 1st n' 1st),  Thought you might find this ...

  • Posted in: Open Forum

    Hi Geri. You'll find plenty of information about NSF SBIR here . There is plenty of information about NIH SBIR here . I have considerable experience with both programs and can answer questions based on that. Be aware that NSF is a consolidated program ...

  • Posted in: Open Forum

    'Tis good seeing you participate here on SPM connect, Teresa. @Amber Soucy, MSN RN asked me to administer the two social media channels of LinkedIn S4PM and S4PM FB presence going forward. Having commentary from members like you adds great value in ...

  • Posted in: Open Forum

    The problem with unavailable minutes from the Board and ExeCom meetings continues. The most recent posted Board minutes are from the August 27th meeting, posted in September. The most recent posted ExeCom minutes are from the September meeting, posted ...

    1 person likes this.
  • Posted in: Open Forum

    BTW, @Sara K Schneider - I am DELIGHTED to see you posting not only on the non-member SPM LinkedIn community page but also here on Connect.  Would you please help me think through ways to get others on the public LinkedIn page to do the same? Many ...

  • Posted in: Open Forum

    Thank you @Lorraine Johnson for raising this, particularly during this season where I'm tempted to review my own behavior relative to the systems I interact with. I feel that I know a lot about systems, not just because I'm 67, but also because I studied ...

    1 person likes this.
  • Posted in: Open Forum

    Wasn't it Huey Lewis & the News who recorded, "I Want a New Drug"? That song is running through my head. Recent issue between a physician and me re: did I tell him I didn't have pain on a certain date, or did I not? Which leads to the question of what ...

  • Posted in: Open Forum

    I agree with Adrian.  Much (most?) of medicine is practiced in the grey zone of uncertainty where algorithms are premature at best. Brenda I think the interview was about making decisions in the context of inherent uncertainty where an incremental piece ...

  • Posted in: Open Forum

    This from Katy Talento, former policy advisor to Trump on price transparency and a whole lot of other health care reform. Thought fellow S4PM members might find it valuable.  John ------------------------------ John Hoben Lifetime Member Society for ...

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    RE: CARIN Alliance -

    Posted in: Open Forum

    @Lorraine Johnson - The technical and policy issues are Byzantine and inaccessible to most patients or clinicians. What I urge all of my SPM colleagues to do is start with Amy Gleason's approach and just ask really simple questions on Twitter like https://twitter.com/ThePatientsSide/status/1207519373273059331?s=20 ...

  • Posted in: Open Forum

    People might be interested in a video of my interview with the Primary Care Development Corporation on my book, Patient-Centered Primary Care: Getting from Good to Great. Patient partnership in their care is front and center in the video. https://bit.ly/36Jd6IO ...

  • Posted in: Open Forum

    I've been pretty busy with other pursuits over the last 6 months. If things settle down in the New Year as I anticipate, I think I might take you up on that: taking some of the more meaty posts of general interest here, doing a copy-paste into the blog, ...

  • Posted in: Open Forum

    Dear colleagues: As agreed at last board meeting, we will be holding our last board meeting of 2019 a week early to avoid Christmas. Draft agenda, which is shorter than usual, is here .  Please let me know about other items or changes. There has ...

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