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These forums and libraries are the platforms SPM uses to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to members. We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join.

Latest Discussions

  • Posted in: Open Forum

    Hi all, On Wednesday, Nov 20th Dr. Jiayun Xu and I will be discussing how to better support family caregivers. We'll be going over our research we partnered with the Society on to understand the challenges of nurses who also caregive informally for people ...

  • Posted in: Open Forum

    When it comes to electronic health records and their impact on in-person communication —- maybe it should be called Care Is Somewhere Else 😂😂😂 Sue ------Original Message------ You know their external interface really was called Care Elsewhere, ...

  • Posted in: Open Forum

    Interesting concept.  If I understand it right, you are creating a  bidding platform that enables patients to obtain discounts on healthcare.   Providing information for patients to even access healthcare options is a formidable task.  Putting the data ...

  • Posted in: Open Forum

    @Brenda Denzler @Adrian Gropper @Dave deBronkart Data and Goliath by Bruce Schneier recommended by Brian Kaney, speaker on the FHIR Standard Society for Participatory Medicine Conference October, 2019FHIR session SPM 2019 https://www.facebook.com/participatorymedicine/videos/539567450143262/ ...

  • Posted in: Open Forum

    Thank you Danny and Peter. It's my privilege! Brian ------------------------------ Brian Mack Great Lakes Health Connect Grand Rapids MI 6165884694 ------------------------------

  • Posted in: Open Forum

    So how did it go?? I sometimes wonder how life would be different if I'd moved to DC ten years ago ... other than "my mortgage payments would be a TEENSY bit huger than here in New Hampshire..." ------------------------------ Dave deBronkart e-Patient ...

  • Posted in: Open Forum

    I was so confused today on the patient empowerment workgroup call, Lisa ... the FHIR community is so full and diverse and inter-relating that I completely missed (at first) that the Lisa on this call was YOU!  And boy did that add to my own confusion. ...

  • Posted in: Open Forum

    I just tweeted to them , including your screenshot :-)  Hola @nejmcatalyst ... may I humbly suggest, the demographic categories on your newsletter sign-up list lack "patient" and "caregiver"? I believe this is called a modeling bias, and it ...

  • Posted in: Open Forum

    I thought so too. Marilyn ------------------------------ Marilyn Mann Kensington, Maryland @MarilynMann (301) 520-5488 ------------------------------

  • Posted in: Open Forum

    Hi all, @Denise Brown will be hosting the 4th Annual National Caregiving Conference here in Chicago Nov 7-9th. On Nov 8th,  @MaryAnne Sterling will be hosting a policy/advocacy track with a panel session called: Act at a State & Local Level. I'll ...

    1 person likes this.
  • Posted in: Open Forum

    That's an excellent question Janice. The answer is probably no, unless research shows that voice prompts add value. The reason why I can guess no in advance is that we are using video games as our educational technology; and our market is folks who already ...

  • Posted in: Open Forum

    Every now and again I come across an essay so good it is painful to pick a teaser quote, because the entire essay demands to be read. Careful and Kind Care Requires Unhurried Conversations is such an article. Here's part of the lede: "In order to ...

  • Posted in: Open Forum

    This is fantastic news, @Brenda Denzler - well deserved! Godspeed to you in Amsterdam.  ​ ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

  • Posted in: Open Forum

    Starting a "daily" (translated 'when I see something') health hacker award shout out for neat people I see doing amazing things. Today's award goes to this ortho surgeon:  https://twitter.com/cadiulus Twitter ...

  • Posted in: Open Forum

    Dear Participatorians: Members of the Society for Participatory Medicine elect two members-at-large to participate in the executive committee and the board of directors. Any member is eligible to self-nominate for member-at-large. Besides participating ...

  • Posted in: Open Forum

    Just shared via our SPM twitter! https://twitter.com/S4PM/status/1189323771322228736?s=20 ------------------------------ Amber Soucy, MSN RN S4PM Board of Directors S4PM Social Media Lead Twitter: @wheezynurse Email: wheezynurse@gmail.com Website: ...

  • Posted in: Open Forum

    Hi all, Just resurfacing the Quick Start Guide for SPM Connect that @Peter Elias took the time to create.​ Please give if it a read if you haven't already and offer any suggestions for additional information that it will be beneficial to include. ...

  • Posted in: Open Forum

    I went to AHIP's main event a few years ago - seemed very much like HIMSS in that it was a lot if industry professionals talking to each other and there was less interaction / engagement with other stakeholders. I haven't been to the other AHIP events. ...

  • Posted in: Open Forum

    I wanna gooooooo.....     Seriously, Chicagoland, it was exhilarating to visit with this group - twice, so far, I think.  Well worth an evening. ------------------------------ Dave deBronkart e-Patient Dave LLC SPM co-founder and past co-chair Co-admin ...

  • Posted in: Open Forum

    Gretchen I'm so very sorry to hear of this devastating loss. I would speak to someone knowledgeable about inherited cardiovascular disease and sudden cardiac death in the young for what questions to ask. If you can arrange to speak to the pathologist ...

  • Posted in: Open Forum

    Dear board colleagues (copy to all members): Next board meeting is 10/29 at 6pm ET at usual Zoom line. Let me know if you can't attend for any reason. Draft agenda is here .  Please do pre-reads and be prepared for discussion. Comments welcome. ...

  • Posted in: Open Forum

    Greetings, This is a starting resource opportunity  though no resources should be referenced until researched. I have specialized in resource guides for individuals seeking assistance for three decades, I would not refer people here. As I mentioned it ...

  • Posted in: Open Forum

    Do you have an iPhone? I was able to access it with the iPhone Podcasts app. Marilyn ------------------------------ Marilyn Mann Kensington, Maryland @MarilynMann (301) 520-5488 ------------------------------

  • Posted in: Open Forum

    It was a wonderfully organized conference. I have taken some time to reflect, but I will get some thoughts out on the blog next week. And now, because I shared this publicly, I will have to deliver! :) ------------------------------ Thanks, Ileana ...

  • Posted in: Open Forum

    " I want to see patients have direct access to the same information that providers have (or at least access to more of the information that providers have) so that they're not dependent on their clinicians to offer access to information that could be ...

  • Posted in: Open Forum

    Wow, Peter, that's the best thing I've ever seen about the agile rationale - and when not to use it.  I'm looking back now at my last few years, thinking about whether I've tried too much to think things out when there's in fact been no clear path forward. ...

  • Posted in: Open Forum

    Or "engaged patient" -- Dave's ePatient moniker? ------------------------------ Brenda Denzler MedicalPTSD.com Pittsboro NC 919-418-0628 ------------------------------

  • Posted in: Open Forum

    Thanks, Peter - what's the original link just for context? ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 office +1 585 370 ...

  • Posted in: Open Forum

    Thanks, Dave! @Amber Soucy, MSN RN ​, please let me know how I can help as I will have some volunteer time available this Sunday. ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben ...

  • Posted in: Open Forum

    I agree that the choice of one technology or another is neither the problem nor the solution. I think we should stay with Connect using Higher Logic until other issues have been successfully resolved and there is a clear plan for how a discussion platform ...

    1 person likes this.
  • Posted in: Open Forum

    @Kate Lorig - thanks for permission to share your excellent private response. Yes, please do go “on and on” as you indicated! :-)   ​ The following message has been sent to you in response to your Discussion message Message From: Kate Lorig John, ...

  • Posted in: Open Forum

    John, I will be there and will look for Greg. Are you attending? Kevin Freiert Salem Oaks Consulting ------Original Message------ @Kevin Freiert , will you be in Boston this week?  Please be sure to connect with fellow SPM member, ...

  • Posted in: Open Forum

    Yes, @Janice Tufte - I am ABSOLUTELY OPTIMISTIC beyond measure in our fellow neighbor helping neighbor! All health care is local. Washington, DC is nearly 400 miles away. Here's to the eternal flame burning in each and every fellow human, neighbor ...

  • Posted in: Open Forum

    Thanks, Grace - I am very eager to use Unblock Health! ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 office +1 585 370 0847 ...

  • Posted in: Open Forum

    Yes, as a first scroll-through, that table is the eye-grabber.   I'm not sure what diabetes examples you mean, unless it's OpenAPS.org . ------------------------------ Dave deBronkart e-Patient Dave LLC SPM co-founder and past co-chair Co-admin for ...

  • Posted in: Open Forum

    Great seeing this will be streamed live as I have a conflict and will be attending portions remotely.  @Amber Soucy, MSN RN , will there be Q&A capability through the FB Livestream? ​ ------------------------------ John Hoben Lifetime Member Society ...

  • Posted in: Open Forum

    Hi all, this is my last patient engagement blog. I'll still be writing and always looking for co-authors, but I'll be writing a column on the Healthcare Scene. Thanks to everyone who has co-authored these with me since 2013!  @Casey Quinlan , @Danny ...

  • Posted in: Open Forum

    This appears to have been resolved. Thank you. ------------------------------ The chief cause of problems is solutions. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 576-0716 ...

  • Posted in: Open Forum

    Brenda, You raise a valid point: Patient Safety vs. Patients feeling safe. I totally agree. The framework has been limited or at least short-sighted when using the term & when referring to the concept of Patient Safety. I myself recognize the difference ...

  • Posted in: Open Forum

    Check out this amazing #WTFix  blog post by our very own @Burt Rosen Time 2 Meet + Time 2 Talk = Time 4 Change https://whatsthefix.info/time-2-meet-time-2-talk-time-4-change/ ​​​ ------------------------------ Amber Soucy, MSN RN S4PM Board ...

    1 person likes this.

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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