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These forums and libraries are the platforms SPM uses to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to members. We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join

Latest Discussions

  • Posted in: Open Forum

    Adrian, Thank you for sharing this guidance on how to draft a policy compliant with GDPR and how such a policy is similar to a HIPAA policy. I liked your analogy to the nutrition label - in that the label makes it easy for the consumer to know what ...

  • Posted in: Open Forum

    It is 2 posts above yours @John Hoben . ------------------------------ The chief cause of problems is solutions. Peter Elias Member-at-large of the SPM Board Family Physician Auburn ME 207 576-0716 ------------------------------

  • Posted in: Open Forum

    Thanks to @Peter Elias for alerting me:  ​ ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 ------------------------------

  • Posted in: Open Forum

    Congratulations Lorraine and Gene! ------------------------------ Dee Sparacio #gyncsm Community Hightstown NJ ------------------------------

  • Posted in: Open Forum

    S4PM, I am hoping some of you might like to help to set the priorities for coming years on complex care for the National Center, it is a short survey they look forward to your input if you are interested Thank you! https://www.surveymonkey.com/r/8FZ95RK ...

  • Posted in: Open Forum

    Fantastic, @Diane Cashin - are you familiar with the work @Brennen Hodge is engaged in with Citizen Health as there may be some synergies?  Please see http://CitizenHealth.io Citizen Health ...

  • Posted in: Open Forum

    Fantastic lineup, Sarah - very timely in this age of being connected via technology, yet isolation persists. Reminds me of an old friend who lived in the Upper West Side of Manhattan amongst millions of people. Unfortunately he was lonely and isolated ...

  • Posted in: Open Forum

    Thanks, Richard - I'm delighted to be serving on this group and look forward to next steps.  John ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

  • Posted in: Open Forum

    Hello, I'm working with a team to create a survey of nurses who are also family caregivers and a mirror survey for nurse managers or nurse employers. Fi you are or know of anyone who is in any of those roles, I'm looking for people who could take ...

  • Posted in: Open Forum

    First, apologies to the group for not changing the title of the thread in my initial writings on this subject. I’ve tried to do that this time. I hate when that happens... Second, if only the word “provider” was consistently used as Michael Millenson ...

  • Posted in: Open Forum

    In reading your post I became concerned about the speed with which you seem to draw the conclusion regarding Cannabis and Stroke Prevention. While there have been studies and there is evidence that Cannabinoids may, in fact, assist in recovery from Non-Ischemic ...

  • Posted in: Open Forum

    All-In-One IoT Platform Focused On Improving Health Outcomes Pete Ianace | May 9, 2018 https://www.linkedin.com/pulse/all-in-one-iot-platform-focused-improving-health-outcomes-pete-ianace Read more... --- Shared via LinkedIn Sent ...

  • Posted in: Open Forum

    http://bit.ly/PEBlogZeiger Patient-experience Safe! Caregivers Who Feel Cared For Bring Their Best Game Monday, May 07, 2018 Tags: Geri Lynn Baumblatt MA and Dr. Roni Zeiger communication, experience, healthcare, ...

  • Posted in: Open Forum

    I recently became a Board Certified Patient Advocate and this is the reason why!  There are too many stories like these out there. ------------------------------ Nancy Wolkenfeld Patient Advocate Los Angeles, CA 323-842-2646 ------------------------ ...

  • Posted in: Open Forum

    I don't have the bandwidth to respond to the RFP, but I would work with someone who can.  Any interest? ------------------------------ Danny van Leeuwen Health Hats www.health-hats.com @healthhats ------------------------------

    1 person likes this.
  • Posted in: Open Forum

    I have just returned home from this extremely informative conference. I am grateful for the opportunity to not only attend but to learn. Many speakers represented Government Agencies, as well as State. Universities, Philanthropies and hopeful recipients ...

  • Posted in: Open Forum

    I just returned from another amazing experience at the 4th annual HealtheVoices conference, a 2 1/2 day meeting devoted to patient advocates in a number of chronic disease conditions and mental health. HealtheVoices is sponsored by Janssen, a J&J company. ...

  • Posted in: Open Forum

    Joe, we (all) need to figure out collectively how to get you the invitations you need. This invite went to a large number of individuals as well as to several SPM Connect lists, including the entire membership of Connect twice (spm-openforum and spm-lounge). ...

  • Posted in: Open Forum

    more details SPM 2018 Conference: Weekly Planning Call When Weekly from 5:30pm to 6pm on Wednesday Eastern Time Where 781-202-6465 - No Pin Needed ( map ) Calendar spm-openforum@connectedcommunity.org ...

  • Posted in: Open Forum

    All, Sue, Danny, and I developed this draft project plan for SPM's 2018 conference. We need to have a brief standing weekly meeting. I will go with the will of the crowd. Any preference on date/ time? If not, I am propose Wednesdays at ...

  • Posted in: Open Forum

    Ohmygosh, Beth, Thanks so much! Adding here: We also just won the national first place for public service in the 2017 SIgma Delta Chi awards in small-market television reporting from the Society for Professional Journalists. This comes ...

  • Posted in: Open Forum

    Congratulations... I had the opportunity to see this. It was well done. One of the best I've seen. ------------------------------ It's A Great Day To Be Alive Cathy Bandy Tampa Bay, Florida jerzeycate@gmail.com 813-812-6679 --------------------- ...

  • Posted in: Open Forum

    Curriculum here : Please join us! April 24, 2018 7-8pm ET Join from PC, Mac, Linux, iOS or Android: https://zoom.us/j/ 9560424034 Or iPhone one-tap : US: +16699006833 ,, 9560424034# or +14086380968 ,, 9560424034# ...

  • Posted in: Open Forum

    Greetings @DannySands  I hope you enjoyed #IM2018 ​​I read over the session a couple of nights ago and the "How I learned to love engaged patients" session I laughed at with delight when I saw it. I then noticed it you with S4PMs very own @ePatientDave ...

  • Posted in: Open Forum

    Greetings @S4PM​ I attended the #HCSRN2018 conference last week. An opportunity to hear and learn from as well as  meet, thought leaders and doers in Health Care Systems Research. ​​Evidence based studies presented in sessions and posters, glad to see ...

  • Posted in: Open Forum

    Beth,  Yes I am attending and Health Datapalooza is a one of a kind health data research extravaganza, where you can meet with other innovators and learn about the latest best evidence studies and methodologies. Perhaps I might meet you there! ------------------------------ ...

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    Lancet:

    Posted in: Open Forum

    @Danny Sands here's the Lancet article I just showed you.  Everyone here should love it. :) Hypertension: time for doctors to switch the driver's seat? The money shot:  Surely, it is time for care providers to rethink the chain of medical ...

  • Posted in: Open Forum

    Problems solved! Thanks for the references. ------------------------------ If you're not getting the right answers, maybe you are asking the wrong questions. ====================== Michael Robkin, MBA Consultant, Executive, Caregiver, Patient Los Angeles, ...

  • Posted in: Open Forum

    All, On May 7, SPM Board Chair and Co-Founder, Danny Sands, will keynote at the New England Health Executive Network monthly breakfast briefing. SPM Chairman Emeritus and Co-Founder, Dave deBronkart, SPM member Naomi Fried, and Jan Walker, Co-Founder ...

  • Posted in: Open Forum

    ​​https://participatorymedicine.org/epatients/2018/04/support-healthhats-danny-van-leeuwens-nomination-for-pcori-board-of-governors.html Danny van Leeuwen is seeking nomination and support as a "patient/caregiver stakeholder" seat on the Board of Governors ...

    1 person likes this.
  • Posted in: Open Forum

    Hi all, I've been fortunate to be on the road over the last year attending various conferences, events, summits, meetings. Here's my latest piece on refreshing the healthcare conference experience.  https://medium.com/citizen-health/shattering-the-mold-its-time-for-reality-conferences-334291be3b03 ...

  • Posted in: Open Forum

    Hi SPMers, I am attending the lecture described below next Thursday, 4/19; it's part of the U. Chicago Harper Lecture series. I can bring along a guest or 2 if any Boston-area folks are interested in attending. There's a $20 fee, which includes drinks ...

  • Posted in: Open Forum

    All, Am forwarding message below from Bill Doherty,our newest SPM member and a seasoned conference organizer, SPM member, John Novack recruited Bill. You will notice that SPM member Randi Oster is on the dais for this event. Best regards, Joe ...

  • Posted in: Open Forum

    this was a new one to me. I went over their website and agree, mostly developing nations focus. Thanks for the info. ------------------------------ Claire Snyman Patient, Advocate, Speaker & Author Vancouver, Canada ------------------------------

  • Posted in: Open Forum

    Well put together Joyce! Wishing you all the best in your presentation. I am sure you will spread a powerful message :) ------------------------------ Claire Snyman Patient, Advocate, Speaker & Author Vancouver, Canada ------------------------------

  • Posted in: Open Forum

    Dear Members, Many of you are involved in projects and committees for SPM. We use Google Suite (Google Apps) for our work. But some are confused or frustrated by it and need to know how to make better use of it. Member Eran Kabakov is teaching ...

  • Posted in: Open Forum

    All,    This conference is occurring on May 8 and will be held at the Marriott Cambridge, Massachusetts.  I have attended the event most years and will be attending this year.   It is a high quality, very well run event.  If you are attending,  please ...

  • Posted in: Open Forum

    Forwarding this to SPM Connect with permission. Please send tips / leads directly to Kevin at kevinlomangino@gmail.com If you're not familiar with Health News Review , it's an invaluable resource - real journalists rating mass media news stories ...

  • Posted in: Open Forum

    All,   On May 7,   SPM Board Chair and Co-Founder, Danny Sands, will keynote at the New England Health Executive Network monthly breakfast briefing. SPM Chairman Emeritus and Co-Founder, Dave deBronkart,  SPM member Naomi Fried, and Jan Walker, Co-Founder ...

  • Posted in: Open Forum

    Just in case you needed another reason to delete your Facebook account: https://www.cnbc.com/2018/04/05/facebook-building-8-explored-data-sharing-agreement-with-hospitals.html Regards ------------------------------ Ken Masters Researcher / Academic ...

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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Our active participatory medicine community based on the four CARE pillars of Communication, Advocacy, Research and Education. We would love to have you join us.

 

Joseph Ternullo (President)
Susan Woods (President-Elect)
Jonathan Wald (Past President)
John Grohol (Treasurer)
Nancy Finn (Secretary)
Peter Elias (Member-at-Large)
Tracy Zervakis (Member-at-Large)
Danny Sands (Board Chair)
Sarah Krüg (Acting Executive Director)
Mandi Bishop
Kyra Bobinet
Donna Cryer (on leave)
Judy Danielson
Dave deBronkart
Joe and Terry Graedon, (Co-Editors of JoPM, members ex-officio)
John Hoben
Bruno Nardone
Jane Sarasohn-Kahn (on leave)
Charlie Smith (Editor of JoPM, member ex-officio)
Kenneth P. Yale

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