Marjorie Spencer

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I've been a professor, a writer, a manager of rock bands, and a publisher of life sciences journals. In 2012 I became a first time patient, having been diagnosed with a neurodegenerative muscle disease and ovarian cancer within six months. A quick read of The Patient from Hell and a visit to S4PM confirmed what I suspected; I might know some biology, but I sure didn't have the skill set to be a successful patient.

Still learning. Today i'm a full time, unpaid patient advocate, working one on one to help others figure out their treatment goals and disease management requirements. I also review research grant applications and collect the kind of published articles that can convince clinicians to take a flier on an unfamiliar protocol.