Thomas Caruso

T.P.Caruso & Associates

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T.P.Caruso & Associates

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I have 30+ years of experience managing new initiatives and large-scale projects.  I have been developer of research programs at Virginia Tech, the NIH, and the University of North Carolina at Chapel Hill. I have managed projects for software companies, government contractors, and startups. I have expertise in business development, project and financial management, public relations, contracting, and team building.  Most recently I managed pharmaceutical industry projects for the Innovation in Medical Evidence Development and Surveillance (IMEDS) program at the Reagan-Udall Foundation for the FDA supporting a health plan partnership for public safety research using real world evidence.  Before this I was Associate Director of Program Operations for the Patient-Centered Outcomes Research Institute (PCORI), supporting the PCORnet program – a powerful patient-centered health information network that now supports real world evidence research and was formed from 33 different health information networks, comprising 84 health systems with 110M patient records, and a coordinating center based at Duke Clinical Research Institute and Harvard Pilgrim Health Care.  With UNC Chapel Hill and RTI, I built a Self-Generated Health Information Exchange (SGHIx) for integrating and sharing patient generated health data from mobile apps and devices like the Fitbit band. I also served as project manager on a PCORI-funded Patient-Powered Research Network, one of the 33 PCORnet networks funded by PCORI. My interests over the last 10 years have included personal health records and making electronic health records available to individuals.